Best Of
Re: Can we have a forum for "older" people with bc?
Good afternoon. I had a whole nice post done and lost it. I think really I forgot to hit the post button when done. Sigh!! Anyway, when I noticed, I had seen that Betrayal had posted and she in fact mentioned most of the same thoughts I had for the most part — so perhaps you can figure out most of my conversation.
The sun has been covered by clouds now and I hope it stays that way and should it rain, that would be okay as well. It is 81 out but the humidity has it feeling so much warmer. No breeze so that keeps it putting you on the sticky side even if you aren't doing much.
Making some stew (on top the stove) for supper tonight. It is one of my favorite foods and we always have Lesure Peas to go with it. Everyone loves that brand.
We have decided to get rid of our old rain gutters ( staring with Lil' Red's new pen area first) as they are a pain and in a couple of spots pretty much beyond repair now. Going to put heavy landscape plastic down and then the bigger Rik-Rak Rock and let the water come off the roof onto the rocks. Easier all way around and better on the yard too.
I hope you are all having a good Sunday and glad you and Dh chose not to ride you bikes today Carole. Saying hi to all and wishing I hadn't lost my post because I had used names so often — but know if you posted recently, I likely had your name there too. Hugs.
Re: Can we have a forum for "older" people with bc?
Harley, you take a 15 mile bike ride, I limped around Fenway and it felt like I took many many steps, but Fitbit said just over 3k.
Bus trip was fun. On the bus I sat w gf, while my SO sat with her dh. Lots of yakking. The bus dropped us off right at Gate B, very little walking to get in. Once in we took an elevator to the third level, but I had a ton of walking to get to our seat. We came in at the top row just about, maybe row 28; and had to get down to row 9. Once seated in the blazing sun, I stayed put for sometime. So did gf dh, he has a bad back in need of surgery. While we roasted, sweating more than we could believe, my SO & gf went to scope out the stadium.
The only thing I didn’t like was a not having a constant screen - for instance pitch speed, it’s hidden with a Bank of America electronic sign, until after the pitch. We had to ask the guys in front of us if they could show us where it was. At first he said he couldn’t remember because it’s hidden, but he found it and pointed it out. Also our seats, purchased in bulk from the bus company- if you looked straight ahead the view was the first baseline and foul pole. It did look straight at the replay screen so I guess I shouldn’t complain. The Sox won and it was a super fast game at 2 hrs 9 minutes or so. It was 85 with real feel 88. Using the bathroom was like removing wet clothing, and putting it back on.
If anyone attends a game at Fenway - there is a souvenir cup for $10.75, best part it’s with free refills. We filled it with ice & water and later Minute Maid lemonade. It’s the only “deal” we found and had I not seen a man in front of me get a refill, I wouldn’t have known.
Everyone seems to be doing well, even Tippy & Lil Red.
I’ve got to get my car in for an oil change, might drop it off tonight - keys in an envelope for their drop box. I’ve got a wake Monday & Tuesday, as well as GN getting to the regents refresher both days. I hope the humidity drops. While I was baking in the sun, here at home had rain. I’m headed out now to check on plants.
Re: So...whats for dinner?
Sharon just told me that the lightening caused Dragon Bravo Fire, burning in the Grand Canyon destroyed the North Rim Lodge, visitor center and several cabins. Sharon and I spent a lot of time there.
Re: So...whats for dinner?
Carole, Great news about your sisters’ husbands. Finally you’ll be able to make the eggplant lasagna.
Eric, Glad to hear the blogger you follow is OK.
Minus, I put crushed potato chips in tuna noodle casserole to give it crunch.
Nance, Enjoy the fresh peaches.
Special, It’s good to hear from you. I’m glad you are enjoying your new pool enclosure with good food and friends, I hope your DD’s labyrinthitis clears up completely.
Unexpectedly I’m in Boston another night. I didn’t know I was getting sedated and wouldn’t be able to drive home.
Dinner tonight was a hamburger for DH and tortellini for me from the hospital cafe.
Re: Decision about lumpectomy or mastectomy
(I posted this in "Considerations…" but I believe it belongs here.) Hi everyone, recent dx of IDC, Stage 1B, Grade 2. I'm trying to decide whether to have lumpectomy or bilateral MX.
I initially thought the medical advantage of MX would be I'd never risk BC again, no worries, no mammos, no sonos, etc. But at the first appt with breast surgeon, I learned that Post-Mastectomy Pain Syndrome lasting long after surgery has healed is not uncommon. I'm a wimp when it comes to pain! Lumpectomy healing is much simpler/ faster.
For me, there will be many lifestyle advantages to going flat—on hot humid days, and at the gym, staying cooler, and no sweating into a bra. No bouncing when jogging. Then when I want, I can wear falsies. (I do recognize that it will be a long journey to get used to seeing myself without breasts. But I can do that.)
I have to learn more about what radiation would be for me if I choose lumpectomy. My sister had 6 weeks, 5 days/week, but she was 49 years old. I've heard now it's only 5 days! Another factor is that I don't get sick leave. No work = no paycheck. So lumpectomy would have faster recovery. BUT I'd never get the lifestyle advantages of going flat, and I'd continue to have risk of new BC. If I get BC again, I'll regret NOT having MX. If I have significant Post-Mastectomy Pain Syndrome, I'll regret having MX.
My plan is to keep reading and talking to people, including doctors. I have an appt in two weeks with a plastic surgeon who will be part of the surgery to ensure I'm smooth with less scar tissue. I plan to make appts with my regular GYN and the breast surgeon I saw once. I wish the decision was easier! I went into my first appt with breast surgeon 100% sure I wanted bilateral MX. I knew NOTHING—I actually thought I could go back on hormone replacement therapy after MX.
So scared- expansile mixed lytic sclerotic density Found on ct scan
I went into the er for kidney pain, and we did find a stone. But in that scan they found “2 areas expansile mixed lytic sclerotic density in the right anterior 6th and 7th ribs. These are new from 2023. Suspicious for pathologic lesions.” And I’m scared. So scared. I got home from the er Thursday night and called oncology. I’m 7 years basically out from stage 2b triple negative grade 3, no nodes involved….and you guessed it…the rubs in question are right behind where my tumor was 😮💨😕😅 I’m trying not to panic. But I want info and truth. Does anyone have any info or stories or just anything. I’m 36. I’m a mom of a five year old. I dont want to do this again 😭
Re: ER-, PR-, Her2+ Roll call
hi all. Newbie here for HR- HER2+. Had my first TCHP cycle on Wednesday 7/9. I was feeling ok for the first couple of days but now starting to feel more nausea, stomachaches and lack of appetite. My mouth/tongue also feels dry and can’t seem to taste very much. Will this eventually get better? Do most feel better after a week of chemo? I’m living alone so I feel a little scared not knowing how to navigate through this.
Re: ER-, PR-, Her2+ Roll call
@blackcat5 hello!
I’m sorry to be meeting you through this forum, but we’re here for whatever you need.
What’s your diagnosis and age?
Chemo isn’t easy, but you won’t feel bad all the time… your body recovers between infusions. For me, the worst days were around days 4 to 10, then I’d feel much better.
As for tasting things, unfortunately in my case I had problems with that throughout the whole chemotherapy. There were very few days when I could taste food normally. But you’ll find ways to cope with everything, you’ll see.
It’s not easy living alone during treatment… do you have friends/family who can give you some support?
I wish you lots of strength — you’ll see that it’s over faster than you think… now that I look back, it feels like the whole process went by in the blink of an eye.
Re: ER-, PR-, Her2+ Roll call
hello @blackcat5. So sorry you are on this crazy train but you are on the right place. I always felt worst days 4-10 and really got to feeling better just in time for my next treatment. My side effects changed over time but everyone does react differently. Like catarina, I do hope you have a network to lean on because you may need them. This group is a lifesaver because THCP is different than some others with different type of BC has a different experience. We are here for you. Take your nausea meds even of you just have a whiff of nausea. Your tastes will change amd your mouth may hurt. Do your best to stay hydrated. Get fluid infusions a few days after treatment if hydration is hard(i had to). Come to this forum anytime you have a question or concern and we will help you. Sending you love and prayers. D



