Best Of
Re: How are people with liver mets doing?
@threetree Thank you for taking the time to write all of this. I haven't had that specific conversation with a specialist surgeon but my oncologist agrees with what you said. I have been summoned to see my oncologist Friday morning probably to discuss changing treatment since I now have progression in both liver and bones. I have no idea what she will say.
Re: How are people with liver mets doing?
Three tree, thanks for the info although it is discouraging to hear. Xeloda was my first treatment and after two months I was so dizzy it was discontinued. Pharmacy said it’s a side effect for 4% of patients. I’m currently on Doxil.
wren44
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Sweet Girl So much you are facing and having to plan for. I know your SIL & DB will be a blessing for you standing by your side. You will be in my prayers today and because you are so much on my mind and in my heart I will light a candle for you when I come upstairs to my room tonight. This is my way of telling you that I will be in your pocket. I know how overwhelming it is to have so many appointments one after the other so close together and how they all connect with each test & follow Up and treatment. I remember how stressed I was during the summer for that reason. I tend not to cry easily, and just to one day at a time in my mind rather than allowing myself to feel the emotion of it all. Then if ‘m told something by the Dr. I break down and cry…I know for now you are holding everything in until you hear from your RO and Neurosurgeon what’s what and numbing yourself from feeling anything. The few days off from all of this will be a reprieve for you to rest your mind and body, so give into that…🩵😘
Re: newly diagnosed invasive ductal carcinoma case
Hello! Today is actually the anniversary of my surgery in 2021. I had IDC and had the single mastectomy surgery. It's amazing how time flies. I still flinch at every little pain, twinge, etc. and wonder if it's something else. So far, so good. And that is all I feel I can ask for. I actually wanted to have both breasts removed, but since I didn't have any genetic abnormalities, they would only remove the one. I honestly would say do what you feel is best in your situation and what you feel your body needs. We are all so very diferent. Sending you big hugs.
kotchaj
Re: Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Hi @katg and @kathrynw1thasea, we are so sorry you weren't able to get into last night's Zoom meetup. We've had reports from 3 members who weren't able to get in, and we're trying to look into what happened. Last night we had many more attendees than usual, so we're wondering whether the waiting room might've "maxed-out", but this would seem unlikely. Again, we're so sorry for the frustration! We hope we can see you both at our next upcoming meetups.
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight I appreciate the thoughts and prayers. Just feel really overwhelmed with all appointments so close together but been there before. I still plan to pack a bag for a hospital stay with chargers etc just in case they keep me over the weekend. He is gone in January so whatever happens is soon. Have followup to consult with RO, this will be a phone appointment. It would be nice to get a few days off in between stuff if I am honest. I will ifnd out tomorrow what neurosurgeon is thinking, have phone appointment with RO at cancer clinic. Just have to remember not to whine about the early hour as well. Once I hear what is what from the consult, I will post.
Re: My Husband, My Life, My Love, My Family, My Cancer
Woken up by phone call from neurosurgeon office, consult at 830 am tomorrow. Will get a ride, was told to bring family members. Already got DB and SIL on board for a ride. Possible I may be put into hospital from there since he is gone in Jan, may just pack up my little bag to prepare for a hospital stay in case I am admitted Just a thought in back of my head. Not too anxious yet, I do not believe it will be life altering but you never know. I am just glad things are moving. Get through Herceptin today, pack up supplies and hopefully go to bed early. No staying up all night.
Other than Herceptin, I have laundry and clothes to pick out to wear, probably use the air fryer for pizza this morning. Get about chores, app't for Herceptin at 2pm so being picked up at 130.
Overall, SIL thinks I may cry today, I assured I do not feel that way right now. Have to get info first, may or may not get emotional but overall, I think overall my mind is one day at a time. If I hear something I do not like, then tears may happen but today, not feeling overly anxious. I hope I am right about the outcomes, either surgery to remove or drain. If benign no radiation and if cancerous, radiation. We will see. I am just glad this is moving along now. I am also glad phone is able to wake
I am keeping simple with meals, just some pasta and chicken, the frozen stuff this morning, air fryer pizza later maybe.
Got wash on go, working harder on sink clearance so sticking with fewer dishes made before leaving, need water and charger put aside for music phone and regular phone and a pair of pants, earbuds already in purse. On a half an hour at a time schedule so I do get some stuff done beforehand.
I still was coughing quite a bit but that is just getting rid of stuff and postnasal drip. I did set up my humidifier, I am sure it made a difference but still had coughing spells. They are less than before.
I do hope everyone has a good day and in pockets for all. My own pocket to not whine tomorrow about being out early, I did not whine when had MRI at 645 am last week, should be easy this time.
Re: My Husband, My Life, My Love, My Family, My Cancer
@goldensrbest good morning lady. I understand your frustration with your hip. I went thru it for years with my cervical spine in my neck and after several years of cortisone shot for pain mgmt, he finally said I needed to see neurosurgeon in the group who wanted to do a very invasive surgery through my esophagus and needed my oncologist to sign off on it. My Oncologist was angry and “said”bullshit” I will not sign off on this. He’s orthopedist and I would prefer you see those Oncology Neurosurgeons and oncology orthopedics who work with me and my patients at the Brain, Spine Center.” Wow it made perfect sense to me that he wanted oncological specialists caring for my bone issues in my neck and hip. My neck has no Mets, but these drs work with his bone & brain met patients, and I’ve been doing well with their treatment recommendations. My Oncologist helped me understand that these orthopedic drs focus on surgical sport medical procedures without bothering to focus on the metastic needs of the patient. I had gone to this orthopedic group for years for both knee replacements and the neck pain for years. Even before mets. So it never occurred to me that I should work with oncological orthopedic and neuro drs who are in constant communication by text with my Oncologist.
Maybe your oncologist works with a team who specializes in orthopedic issues like your torn labrum and will care for you from an oncological point of view. My own scans when the oncological radiologist and oncological orthopedic drs viewed them saw that my Acetabulum, though metastic with a new lesion, but also stated that my labrum was frayed/Labrum: No fluid-filled tear or paralabral cyst. Fraying of the anterosuperior labrum…
Does your onc have a recommendation for a second opinion for other procedures or treatment form your labrum other than a full hip replacement.he may want to treat it differently. Just throwing it out there @goldensrbest 💗😉
Sent from my iPad
Re: Can we have a forum for "older" people with bc?
We had to leave our house by 9 yesterday to get to my former home town for the funeral service of DB's FIL. Al had lived a good life and was one of those perpetually happy people who loved life. His decline was rapid and options few, so he entered hospice and DSIL was surprised by how quickly he died. His wife was devastated because this is the second husband she has buried. Hard to believe that we sat with him and his wife at his DGD's wedding just over a year ago.
The minister who spoke was also one that officiated at my niece's wedding and has a tendency to motor mouth, blurring his lovely messages. He did the same yesterday and again I felt like his message missed the mark due to his rushing through it. The military ceremony was the moment when most become tearful.
The luncheon after was at the restaurant where we had hosted my parents 60th wedding anniversary party. It has changed hands and has a new name, but the food was fantastic and plentiful. I came home with enough leftovers for another meal for me. The bruschetta was so good. It is a BYOB and my niece purchased a wine called Santa's Little Helper which is from a local winery. It was so good and I seemed to be the only one who drank it, so she gifted me the bottle. I was able to buy some for Christmas at the local liquor store and gifted a bottle to DSIL because as the designated driver he abstained from drinking. He did taste mine, but that was it. Al would have approved of his sendoff.
When we got home, I finally caught up with our next door neighbor who had worked with Al many years go. My DSIL had wanted me to inform him about her Dad's death. He was surprised to hear it.
Today is supposed to hit the 40's and I am hoping so since we still have an ice encrusted driveway which I am reluctant to navigate. Of course, I also have back x-rays and MRI's scheduled for today late in the afternoon. I am hoping we can drive up the driveway later since tomorrow is supposed to be in the 50's.
Chris, condolences on the death of your aunt. She certainly had longevity at 99.
I took my family on a tour of my hometown while we were trying to kill time between the funeral and the luncheon. I had to walk to school and my DD was amazed at how far we had to walk then. The walk to the grade school was probably the shortest, the one to the junior high longest and the one to the high school the middle length. No buses to school then and we walked in all sorts of weather. We passed the venue where we had had our wedding reception on the way to the grade school.
Saw my middle brother at the funeral home. He had bypass surgery 5 years ago and really did not look well. He is debating about having another cardiac implant surgery, but undecided as to its benefit. He is 6 years younger than I, was a physical fitness nut, and even though still lean, looked gray and drawn. This is the first I have seen him since my mother's funeral in 2019. He only reaches out to his siblings when it's bad news, though he does keep in more frequent contact with my youngest brother. My youngest brother was also there, but neither attended the luncheon. Nice to see both even if briefly. I will see youngest brother after Christmas when he will paint for me.
Finally received PFT results and they were actually better than expected. I did very well on the 6 minute walk which translated to a speed of 2.3 mph pace. Pleased with that.
I hope everyone has a great day and waving "hi" to everyone.
betrayal
Re: Managing the Holidays and Breast Cancer - how are you coping?
this year is much better that last year. I went through radiation treatment from 12/19/24 to 1/17/25. This year I am focusing on gratefullness for being NED. I am also trying to not be concerned about what I could be doing to reduce risk of getting it again.
