Best Of
Re: Bone Mets Thread
@tougholdcrow @shanagirl @threetree
I completely agree with you, and your words will reassure many people like me who live with bone pain all the time.
I will share my personal observations.
I always experience bone pain in different areas; each time it lasts for a few days or weeks, to the point where I start to imagine it is something serious.
However, the tests do not show anything.
When there was actual progression in the tibia, which later showed on imaging to be cancer, the pain was more like something constant but mild. There was also a sensation of heat at the tumor site, similar to an electric current starting from the upper leg and traveling down to the foot—not an actual current, but a feeling of heat.
At that time, I informed my doctor, but before the disease spread to the bones, he did not give it much importance and only ordered PET scans up to mid-thigh, despite my repeated complaints.
It later turned out that the tumor had returned to the tibia, which had never been included in any of the scans.
Now I am experiencing pain in the lower shoulder and the corresponding area in the front of the chest at the mastectomy surgery site.
However, it does not persist all the time; it only occurs when I get up from sitting or sleeping, and it limits my ability to move my arm or do any physical effort.
Thank you for all the information in your post about the liquid biopsy
I will come back to you to explain what happened with me 🧡
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Wow you always totally amaze and inspire me with your focused determination in going about your day which includes your nutritional self care as well as appointments, along with keeping up your household chores, and arranging para -transit etc etc. I still like to think of you as the engerzier bunny, with a strong survivor skill. I’m always in awe of you girl🥰🩵 get some rest. and I’m in yours & SIL’s & DB’s pockets
Re: My Husband, My Life, My Love, My Family, My Cancer
@goldensrbest Yes, praise god for the good news for your DH. That is an answer to prayer.
@mara51506 Covering you in prayers this morning.
Re: Over 60, Birads 3 and a Story you Can’t Believe
I wanted to give an update, mostly in case someone else in my shoes sees this post later. I had my ultrasounds done at the new facility. They look very reassuring, but I am getting bilateral biopsies in January. This is the first time I feel calm since this whole mess started, because I will get a definitive answer. As women get older, new focal asymmetries have a higher risk of cancer than they do in younger women. I wish I’d never Googled that, but it’s definitely more than the 2% risk that is the standard for Birads 3. When you add in my family history, it’s just scary. I’m very hopeful this will be benign, but for me it is better to know now than wait.
There is one other thing that I can’t stress enough. If you aren’t happy with your care, get a second opinion. Every thing about this second facility has been better than the first. I was able to see the radiologist in person and he spent time answering my questions. There was one thing where he didn’t have an answer and he called me before I was even out of the parking lot with the information. No matter what happens, I feel secure that the care I get will be appropriate. There is no way that I could have said that if I’d stayed with the first radiology group.
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight The decision to stop treatment or to continue on is definitely a hard decision, I am in your pocket as you decide what to do and hope that the choice is for you as much as others who love you. Holding you in my thoughts.
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight @threetree I am so sorry to hear of your treatment changes coming up. That is hard to do when you do not know SE that may be involved, in my pocket for sure.
@intolight a change in treatment is a big deal. What I am going through is similar to the first time around. I will admit not really looking forward to it but at least it is a known experience from before. As long as I have stuff to do whilst sitting in bed post surgery and a sleep mask when bored, it will all be fine. So many here have endured hospital stays, I can hardly complain.
Re: So...whats for dinner?
Wally, What a crummy day. Definitely have some wine. If I were there I’d give you a real hug; a virtual one will have to do.
Eric, Those first responders realize they are doing a service for the individuals they help and society in general. One of them said the goal is to keep people in their homes for as long as possible. Their experience means they also recognize when it is no longer safe.
Aging is like child development in reverse: things happen at different rates for each person and you have little control over how they unfold. Some things can't be fixed (like my DH's brain lesions.) As Wally said the emotional part is the hardest. Looking over the edge of the cliff changed my mindset. Since the day my pulmo called and told me he now thought I would see my next birthday (six months after "the talk") I count each day as a gift. I guess having been to that place means I no longer fear it. I vowed I wouldn't whine whatever happens but sometimes I still do, lol.
Dinner tonight was corned beef hash.
maggie15
Re: So...whats for dinner?
Dinner ended up being a hard boiled egg. DH had another seizure and we went to the emergency.
Turns out he has 4 brain lesions. They suspect mets from prostate cancer but could be a new primary. Will call onco on monday. One of the nurses hugged me when she saw me sobbing….
They had 2 huge traumas and it took 2 hours just to get stuffed into a closet of a room….got there at noon and just got home at 6.
I'm having wine. Lots of it, I hope.
wallycat
Re: So...whats for dinner?
I appreciate all of your kind words. I know getting older has pitfalls and I hope I have the strength to get both of us to a nice finish-line-landing. Emotionally and physically.
I ended up making tuna melts last night. I'm thawing chicken thighs and unsure what they'll become.
wallycat
Re: Bone Mets Thread
@shanagirl - you had 13 years before the bone mets hit, @xsuzx - you had 8 years. I only managed 3 🙁. @tougholdcrow - I agree that a lot of these pains, as in the sternum, are from all sorts of things and not necessarily mets. I get pain from exercise, inactivity, posture and ergonomic problems, and the weather. My oncologist too, suggested that the pain I have in my sternum, and in the area below it, is likely "multifactorial", so we're just keeping an eye on things. I did have a scan on Veterans Day and they saw nothing "glaring or acute" at that time. Going for routine scans again today (CT and bone with contrast), so we shall see. It's always so scary and stressful!