Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Sorry if I miss people.
Goldens- Sorry about your hip issues. I too have issues with a hip; need a hip replacement but don't want to do it.
Intolight- Sorry to ready about your progression. Keep us informed about your next plan, I know you will. I was getting my hair cut yesterday and gave my hairdresser (used to go to church with) an update on my cancer. I told her I was stable again in November. I said something about when progression happens and she said "maybe it won't". I said "no it doesn't work that way". People don't understand that someday we will have progression, that is the nature of MBC.
Mel- Yes, it gets cold here (Illinois). This last weekend Sunday morning was 6 degrees with a wind chill of -14. But our crazy weather is tomorrow, Wednesday, is supposed to be in the 50's!
Re: My Husband, My Life, My Love, My Family, My Cancer
hi Candy…. Thinking of you. Hope you’re ready for the cold if it gets cold where you are. It’s 13 degrees here tonight. Theo has a sports coat I’ll have to get a picture. It’s navy blue and fits perfectly. Momma said Theo needed a coat. Theo got his coat. Daddy loves his coat too. So he’s warm when he goes outside. He hightails inside doesn’t like the cold at all. He’s snuggled between my legs right now. His little cave to keep him warm. Sending love to intolight cookie wren, Goldens sf cakes, Elenora, Tanya hope your eye is ok. Mae. How are you?????. I’ll be back for those I missed.
micmel
Re: Elacestrant (ORSERDU)
@cure-ious Some progression on my bones was found in late August through an MRI for my hip. The tumors did not show up on the bone scan or CT scan. I had a guardant test done and now show an ESR1 mutation. My oncologist is suggesting Orserdu plus a CDK 4/6 inhibitor-probably Kisqali. What do you think of the combination approach? I appreciate your thoughts. She's ordering Orserdu right away. I'm having a new CT scan and bone scan in early January. For now the plan is to stay on Ibrance and Orserdu if my insurance and pharmacy will approve.
Re: Elacestrant (ORSERDU)
@cure-ious My PET results show Interval progression of disease with increased number of metastatic liver lesions and osseous metastatic lesions. Sounds like I will be making a change. I have not heard back from onc yet…
Re: My Husband, My Life, My Love, My Family, My Cancer
@goldensrbest I’m glad to hear DH’s colonoscopy went smoothly and benign polyps is all. Keeping you and your Dh in my heart and prayers. Your labrum issue must be painful enough to interfere with mobility. I hope you don’t have to face surgery.
@mara51506 I’m glad you’ve been moving along with your brain issues you are looking into. Now another wait for your for your consult with neurosurgeon. I am in your pocket as you continue to solve the puzzle pieces.
@sf-cakes my heart hurts for you in the memory of your sweet husband. I love the idea of lighting a candle, and it’s on my mind to do it this evening in honor of you and your grief over DH and also ai will light the candle here in my night table for all here dealing with our struggles.
@intolight I am sorry you are seeing progression increase in liver and osteous lesions. Now it’s a wait to see what your onc wants to do regarding your treatment. My MRi last month showed a new lesion on my posterior Asetabulum which was causing the pain and limp when walking.. Palliative radiation for 10 days was done by Rad Onc., Pain and limp when I first get up from a sitting position but diminishes as I get moving. They want me to use a cane and practice how to use it correctly in PT🙄. I feel when progression happens suddenly I am even more nervous about scans coming up the end of December.
@candy-678 Hey there girl. always glad to hear from you🩵
@micmel Yes it's been so cold. The snow was pretty but not melting and it’s really cold and windy here at the Jersey Shore. My 2 little pugs don’t like the cold and come right back inside to get warm and cuddle in a blanket next to me.
@irishlove I’m thinking of you and Hope all is well.🥰
@wren44 Take care of that sore throat. try some orange peel slices without the white bitter part, and boil them for 10 minutes, pour into a tea cup with “throat tea” teabags, add some raw honey 🍯 and stir and sip. This combination is soothing and healing.
@cookie54 Hey Jersey, you and your hubby are in my heart and prayers. Hope all is well this evening. Saying good night to everyone and hoping you all get a restful 😴 🛌 🥱 So now I am lighting my candle 🕯️ next to my bed with 💗 and caring vibes for all her on what we all struggle with and saying a prayer 🙏
Re: My Husband, My Life, My Love, My Family, My Cancer
So I've had the first two infusions of Trodelvy.. . I've had diarrhea for days and now the rest of my hair is falling out. It was already thin from Enhertu but now I'm shedding like a dog and look like the evil Borg queen on Star Trek. This is the first time losing hair for me and I know it's not the serious side effect but I'm sulking. Hmph. ##$$ cancer.
Wishing all a better week.
mkestrel
Re: My Husband, My Life, My Love, My Family, My Cancer
I had a Grammy K. She was the best woman I’ve ever. Known.
micmel
Re: Can we have a forum for "older" people with bc?
Sandy, I am sure He understands as if it never happened.
So many people do not know the real story. 1 Maccabees 4:52-60 and 2 Maccabees 10. These do not tell of the miracle of the oil for the lights lasting for eight days when the supply was much less.
1 Maccabees 4:36-37,1 Maccabees 4:52-59 NABRE - Purification and Rededication of the - Bible Gateway
The tragedies at Bondi Beach and Brown University are unspeakable.
My 99 year old aunt fell yesterday and broke her upper arm, in two places. She died this morning>
mcbaker
Re: How has normal, day-to-day life changed for you after diagnosis? Share your “different normal.”
@reader425 and @maggie15
Thanks for responding to me. I’ll look on Amazon for the triangular forms. I too prefer the stretchy sports bras for the compression.
Thanks again!
Re: This sucks - Osteonecrosis of the jaw
Well, it looks like after 6 years of XGEVA, it has finally become a problem for me as well. Last week my dentist referred me on to a periodontist who surprisingly had an appointment open up the same day I called. He said that he is extremely certain it is ONJ but that it has been caught early while the bone hasn't come through the skin and is still covered by my gums. The symptoms where puss in my gums and when he went to digging around and taking some X-rays. My dentist had already put me on a week of antibiotics and the periodontist will continue me on with the antibiotics and also added a mouth wash that I have to use twice a day. I am supposed to see him again in January. He said he will get with my MO and let him know what is going on. I have been getting my XGEVA shots every three months for about a year or so after getting them every month previously. I am trying to figure out what to expect with this latest situation. I am assuming that my MO will likely take me off XGEVA but I have no idea what they will do for the ONJ beyond that. Anyone have any ideas of what I should expect?
cowgal