Best Of
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@kbl Im so sorry about that my dear. What youre going thru cant be easy and I continue to pray you get painless days and nights in as much as is possible. Youre a shining light on how to manage the MBC journey. Big hugs
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@Rosebessie Thank you, Rose. I tried upping a dosage of a medication for the second time, and it throws me over the top of nonfunctional. I didn’t take it today. It will take a few days. Sadly, it does help with my breathing, but I just can’t do it.
Hope you’re doing well.
kbl
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
Trump did this. Elon Musk did this. Republicans did this.
A part of me didn't want to have to put this in here and experience the pain over again, but then on the off chance some of the right people would see it.
Re: Can we have a forum for "older" people with bc?
Yesterday was my yearly pap, uneventful. Only thinking to switch drs because she’s about 84. Because I have no problems it’s not in the forefront but I debate it internally.
I picked up GN and got her to class. Then I ran to BJ’s, walked my foot off, and they didn’t have any q-tips in the store. My 2 items took me 45 minutes! Muscle along my left shin was screaming at me.
As I got home I grabbed my items and noticed a dusting on the “purple” seat cushion - picked it up to dust it off and saw 2 cards I should have mailed days ago. UGH! Backed out of my driveway and went up to the post office. One sympathy card and a bday card.
After a rest, I went to a local garage for a car inspection. They got me in without an appointment, then had bad news for me. I needed 2 new tires. I yi yi, $485 later I was on my way.
Trying to get a car purchased for my nephew. Today was told they’re (seller is SIL of my BIL, her dad passed) turning in the plates because insurance expires at midnight; when previously, it was staying on so we could drive it the 3.5 hrs to get it here. I need to call my insurance company to ask for help. We can’t use a transport dolly, it’s an all wheel drive Subaru. Note to self - I won’t do this again. No good deed goes unpunished.
It’s been hot & humid. I’m still of little use with my foot. I’ve watered some things but can’t get around well. One day at a time. HA!
cindyny
Re: Didn't have a clean margin, go back in and re-excise?
Thank you for the advice truly appreciate it :) yes, according to pathology I have a positive node which did show on MRI prior to surgery, along with poor response to my neo adjuvant therapy as well as positive for lymphatic/vascular involvement. The team advised a re-excision and ALD because of the results from pathology and they believe that is the best course moving forward along with doing targeted therapy, radiation and PT. I trust my team with their plans as they are the professionals, but just want to make sure that it is truly the right path for me. I due plan on getting a second opinion. When I did my MRI prior to surgery it showed shrinkage of the tumor and that my node was clear, but its not what pathology showed after surgery. Hoping and praying that second surgery will be better and will be clear.
Re: Night sweats and acupuncture
@ moderators I have been at this for years. Thanks for the links i will look again. I ended up stopping also early in 2015 one due to a dr who didnt believe me and 2nd because none of the natural and over the counter remedies worked. This time I have been on multiple different meds. My body hates drugs. If cancer doesn't kill me side effects from meds will. For example gabapentin worked great for hot flashes. By the end of a month I had burning in my feet and hands the developed pain in my calves.
@Hippmark i have a cooling mattress. I can't imagined sleeping on a towel. Need something soft. I also make the top sheet and my nightgown wet when it happens. Usually once a night. They are brutal. I have been the antidepressant route but they turn me into a zombie.
@tougholdcrow not sure how ulta freeze would help. One thing I find is the sweatscan be triggered be being to hot or two cold. Its like my body forgot how to regulate it temperature and goes crazy.
Re: Bone Mets Thread
@maggie15 and @iacmelis11 - thank you both for posting what you went though. It does make the rest of us aware about se from radiation. And the fact that you experienced side effects months/year later came as a huge surprise to me. I was never told that at the time of the radiation.
I have radiation (10 sessions) in April '25 to treat mets to C2 and C4. About half way through, I developed a sore at the back of my mouth just above and to the right of my uvula and was not able to eat. Tylenol with codeine and Sucralfate helped but it did take quite awhile to heal.
Now, I am undergoing radiation to my mandible (right side) and am having issues initially with a very unconformable feeling first in the area between my tongue and the bone/gum of my lower teeth. Last night (yesterday was session 6/10) the side of my tongue is feeling a little numb and the inside of my lip is sore and puffy. My RO said these a normal se to the radiation and suggested gargling with warm water, salt and baking soda. It does help somewhat. Hope it doesn't get to the point that I can't eat.
Re: Birads 5 with calcification
My MRI results just came in on my patient portal, but I’m honestly too scared to open them. I’ve decided to wait and review them with my oncologist tomorrow. Lately, it feels like every other day brings a new test result or another appointment to be anxious about. I’m really trying to stay positive, but this is incredibly difficult.
I now understand why some people give up or choose to ignore their symptoms, facing something this overwhelming takes an unbelievable amount of strength. Dealing with a cancer diagnosis feels like living through a horror movie in real time.
There are ways to cope with many of life’s hardships, losing a job, a home, struggling to conceive, or financial stress. As hard as those are, life still moves forward. But when you’re staring down something like cancer, a true life or death situation that no amount of money can fix, it’s a different kind of fear altogether. Someone compared me having cancer to their experience with menopause on yesterday. Although, she meant good and her intentions were only to comfort me, I couldn’t help but think that that the 2 is no way comparable. It’s the most helpless, gut wrenching feeling I’ve ever experienced.
Re: Are you currently (or have you been) in a Clinical Trial?
Wonderful, GailMary, Maybe taking that Paxil is helping!!! Why would you need to add chemo when its working so well? The studies they are looking at probably didn't have an anti-depressant in the mix..
Re: How long have you been Stage IV?
@alden722 sorry about your recent diagnosis. I’m on Zometa because of a met on my L4 and a history of osteoporosis. I don’t have side effects from it. It’s pretty easy for me.
I listen to that podcast too. Sometimes it’s a little repetitive but I’m enjoying the series about long term survivors. Very inspiring. I’m 2 and ½ years since stage 4 diagnosis.
aj