Best Of
Re: Bone Mets Thread
@gailmary - sorry you are in so much pain. Hope you can find something to relieve it. Wonder if heat, ice, something like arnica (be carefully of Voltaren. I found a drug interaction with one of my meds) or tylenol might help with the pain. Good question about whether or more the weather has an effect on mets like it does with arthritis.
Most of the time I have not had any pain especially when it comes to my spine. Sometimes I wish I did so I could tell my team where the pain is and they would take me seriously. I fine out about my mets and progression to areas when it lights up on scans. 😒
Thanks for the well wishes. 😀
Re: oncotype dx roll call
They didn’t have Oncotype DX or Her2 testing when I was DX the first time in 1999, at age 27. I had 1cm IDC, grade 2, Er+/Pr+. Sentinel node and axillary nodes negative. I had lumpectomy, Sentinel Node and Axillary node dissection, radiation, and Tamoxifen.
My current diagnosis, Oncotype is 26. 3.2cm IDC, ER + 95%, PR + 69%, Her2 -, KI-67 14%, grade 3, node negative. I’m 46. I just had a BMX with first phase of reconstruction, I will start TC chemo x 4 on 9/4, then ovarian suppression with Tamoxifen or AI
tmh0921
Re: ER-, PR-, Her2+ Roll call
I've had my 2nd Enhertu/Perjeta infusion. The nausea and stomach pain are tough. Neither zofran nor compazine are helping. I'm getting a Udenyca injection today, which I don't want. Good news is that my tumor markers have really plummeted, CA27-29 is back in the normal range.
Re: My Husband, My Life, My Love, My Family, My Cancer
Happy 4th of July to all US folks.
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove I did monthly Xgeva in the beginning-maybe for 2 years b/c I had so many bone mets. Then I have been on an every three month schedule for the past 7 years. It was my initiative and my oncologist agreed to it. The cost is one factor, also dislike monthly medical appointments and worried about the long-term effects of monthly Xgeva. So far, all has been well.
Happy Anniversary!!!
Re: I’m on hospice - anyone else?
@irishlove Thank you!
I actually do take Omeprazole daily as one of my meds. I’m not having any GERD symptoms, thankfully. I think things are just starting to squeeze in and block things from moving at a normal pace. I’m also having pretty good cramping for about 30 seconds a few times in the morning, but my bowels are still working, so for that I am very grateful.
I love the quote. Thank you for that as well.
kbl
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove Congrats on good scan! You crack me up , love your sarcasm with DH being your artifact lol .Yes a bit of a rough night for the dogs last night. I slept on the couch to help Mr Buster relax.
@mara51506 Always nice to see you. When I read your posts and all posts here I feel like I’m talking with my gf’s seeing what’s on their agenda. I enjoy hearing about everything and everyone’s daily lives.
Well our weekend was cut a little short due to my poor mil being hospitalized yesterday with multiple PE’s and DVT’s . She is 87 and not very mobile, has been giving up on life lately. So we are there to support her needs and give her comfort and love. One day at a time.
Hi to all here, hope you’re having a nice weekend.
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
Mara, our creeks are flowing and should only be driven through in a truck but it’s not bad. The worst of it is about 4 hours east of me and I’m up at 7,000 ft. Sad to see the loss of life, water can get crazy so fast.
2 weeks of monsoon season sure did green up the chihuahuan desert.
illimae
Re: My Husband, My Life, My Love, My Family, My Cancer
@illimae, Were you affected by the flooding in Texas where you are? I do hope you are safe.
Re: Starting Chemo June 2025? Let's support each other here!
So nice to meet you Linda @iambecoming ! Chemo went well but starting to feel a little drowsy and fatigued with a touch of nausea. Yay! haha How are you feeling?
