Best Of
Re: Ladies in their 30s?
nikisworld- so sorry you find yourself here. 25 is young to have to deal with this disease...30 is very young for stage 4...I’m sure there are lots of thoughts and feelings surrounding your dx. I just wanted to chime in and say welcome and offer a little hope...although I was older and am older now...I was dx stage 4 at 34 years old and I am now 41 1/2! I have no words of wisdom or what to do or not to do...this disease is simply about finding the right drug for your specific cancer...I will pray that you find the magic combo and things go as well as possible! Sending hugs.
kjones13
Re: Ladies in their 30s?
hi all, I was diagnosed with stage 2 triple positive breast cancer at 25. Just found out last week that there is a met to the lung which was confirmed to be the same cancer from the breast. I’m currently 30 years of age. I’m struggling with the uncertainty of life ahead and unknowingly how everything’s going to turn out. Emotionally I’m a mess. Feels like my whole world has fallen apart
Re: Ladies in their 30s?
Hi Ladies! I'm 34, dx stage IV from the get go in 2011 with Mets to bone. In 2018 I was dx w/ liver Mets and in 2019 lung mets. I've been on a handful of treatments in my years and had radiation more times then I can count. I think my hands and feet are the only places I don't have bone mets. This last year has been particularly rough as I fractured my T-12 and coccyx last fall. This place on my spine had been treated with both standard radiation as well as cyber knife before fracturing and expelling bone fragments to the surrounding area. Even Chicago surgeons don't want to touch me and said only if my symptoms start affecting QOL. I have weakness in my rt arm, a tremor in my left and pain in the general area. I had to give up my job as a dialysis tech to take an office job after that due to safety and lifting restrictions. I also broke my hip in January (thanks for failing hard and fast ibrance!). I'm just getting ready to go back to work. This despite not being as severe an injury has been the longest I've taken to recover. Each one seems less and less likely I will bounce back to being able to work and care for myself. I just started Gemzar about 2 months ago. Lots of fatigue, dry mouth, dry skin. White cells plummit on it though so we switched my schedule to two on one off otherwise I never made the 3rd treatment. Otherwise not too bad.
Re: My Husband, My Life, My Love, My Family, My Cancer
Sorry the storms made you feel crappy, but glad they brought cooler temperatures. Being able to go outside, even just to sit and look at the sky and the trees and flowers is a definite mood booster. Hope the experts can create an effective plan for your back pain.
Does your MO stop Ibrance while you're on augmentin? I had it for 3 weeks for my recent bout with diverticulitis and my MO had me stop Kisqali for that time. Have my first regular 4 week bloodwork today and hoping the numbers are still in the normal range despite the Kisqali "vacation".
eleanora
Re: My Husband, My Life, My Love, My Family, My Cancer
@wren44 Reporting for pocket duty. Prayers for the day to be over quickly and that all is well. You need a lot of pockets with all the gals supporting you. You got this!!!!
I sure am immune compromised. Years of MS treatments and of course Ibrance now. Neuo said he will not add any other treatment plan at this time. I rejoiced. Just tired of one bottle after another of antibiotics. The salivary gland blockage came back. 7 days of augmentine. Last month diverticulitis. 10 days of antibiotics. Month before, UTI. You get it.
The weather did change here. Much cooler after tremendous storms rolled thru. I feel crappy as the storms lasted all day. I find my legs super weak right now. Get to see Neuo Tuesday and the Pain Management clinic on Thurs., to see if an epidural will aide with severe back pains. PT and cortisone did not work.
In pockets for all my sweet friends. May your days be pain free and your spirit bright.
Re: Anyone starting brand drug, Enhertu?
@more_cowbell. It's so interesting how people react so differently to treatments. I suppose it depends on what they'd been through before. I had very few issues with Ibrance, Truqap, and now Enhertu. My hair loss started before my second infusion, so maybe that won't be a thing with you. However, I have not had any nausea issues. My fatigue hasn't come back since my fifth infusion (just finished my seventh). My onc says it's possible that it just takes a while for people to adjust to new treatments. So I might be done with side effects (?!). My hair is growing back. Peach fuzz, but I don't have completely bald patches anymore. I hope you keep your hair and your nausea gets better as time goes on. My first set of scans while on Enhertu were good. Bone mets still NEAD and liver progression is stable, so I hope I can keep on Enhertu for a long while. Not sure what my next line would be.
Re: Elacestrant (ORSERDU)
Hi, I am new here as well. Just started Orserdeu about 2 weeks ago. So far just lots of fatigue.
Taking a down day today. It is a beautiful day in the Pacific Northwest.
I also have a new grandbaby due this week. Number 3 and this one is a girl!
Hope everyone is managing well and finds some enjoyment and heart opening.
Re: Elacestrant (ORSERDU)
Hi all,
New here…..started Orserdu about 2.5 months ago. Doing well with little side effects.
I am ESRU1 mutation, and did not tolerate Kisquali & Verzenio.
Saw by wonderful oncology team yesterday, and am so thankful everyday for such wonderful care. I told them, "I see this cancer treatment is almost like an 'art form'". What to take, when, the continual dance of it all. When to intervene and when not to.
I was initially dx in 2003. ILC (I found it). Double mastectomy ( in situ in other breast). AC & tamoxifen.
Fast forward, October 2023….in a car accident. Fractured sternum on CT scan. Went home, read COMPLETE report next day. Last sentence, Intermittent scherlotic bone metastatic cancer. NO ONE told me. If I would not have know the meaning, I would be just cruising along. I believe everyone is free to choose their beliefs, but I gotta tell you ladies the Holy Spirit was ALL OVER this one. I also developed two pulmonary embolisms after accident and drove myself to hospital. The doctor told me "I got chills when I read your file". Thank you Jesus
Kisquali & Verzenio sent liver enzymes through the roof. ESRU 1 mutation, so now on Orserdu.
Thanks for reading & listening. Hugs to all, C
cgs19
MRI Waiting
I’m 28, almost 29. I’ve had breast pain for about 5 months now. It’s spread to surrounding areas like my back, rib, shoulder, and arm. A lump showed up around 3 months ago, another one followed a couple weeks later. I had an ultrasound (they didn’t want to do a mammogram due to my age) and it showed dense breast tissue but no concerns. My doctor and ultrasound tech could feel the lumps. I have an MRI scheduled the beginning of September. I’m honestly just scared and looking for advice and support. The pain is unbearable some days. I hate to put pressure on that side, it hurts with or without a bra, and sometimes just walking or living I feel like I got punched in the side. Today, I was walking into a store and had to pause and catch my breath against my vehicle at my back/side hurt so much. I can feel the pain radiating from my breast whenever it hurts. Anyone have any similar experiences?
crgw1119
Re: Who else is starting radiation in September 2025? Let's support one another!
Just want to say that I just finished RT all the month of August. 16 full breast doses and 4 boosts at the lumpectomy site. I am surprised that I am as fatigued as I am and my boob hurt but it’s totally do-able. The staff was lovely and the hardest part was getting lined up each day. I was in the face-down position. I am told I’ll be fatigued most of next week but already I feel a little better. This is just to encourage you all. It’s worth it and you can keep moving. I’ll start aromitase inhibitors in 2 wks. 💪🏻💪🏻
Stage I Invasive pleomorphic lobular Grade 2. Er+, Her2 -
hiker21