Best Of
Re: Starting Chemo May and June 2024 Support Thread
Hi everyone!
I hope you feel better soon, @jlhmom75 and @lyniepooh 🧸❤️
Hi @maitri. I’m glad you found us, but I’m so sorry about your new dX. 💙
Sunday was day 13. Talking to someone, I tucked my hair behind my ear and came away with a clump of hair. I yelped, then laughed it off, even though I felt a lot worse. This morning, the very top of my head is tender, and I’m losing hair a little faster. I’m putting off washing it and being verrryy gentle with it, trying to stretch it out as long as possible. I hate the free and cheapie headwear I have. I may baseball cap it, once I have to shave it. I’m also losing hair lower down now. (Secretly hoping I’ll lose the leg hair and won’t have to shave my legs all summer.)
Re: Starting Chemo April 2024 Support Thread
hi all! I hope you are staying to feel much better now, @chickenlovva, and I hope you feel better soon, @lbn2222!
My eyes do start randomly watering and sometimes feel super dry, @grammie2.
Busch Gardens went well! I took it very easy, but then the bottoms of my feet started feeling raw, and it was time to hang out with the flamingoes and parrots at the bird aviary. The next night, we went out to see a cover band in St Pete Beach, as my husbands friends were in town and he refused to go without me. Lots of icy unsweetened tea for me. There was no way I felt like putting alcohol in the mix, finally feeling like myself again. I had a lot of fun and even got out on the dance floor a bit. The rest of the weekend I slept well! Turns out, it was my hair’s last hurrah— it’s shedding. On my head and lower! I worry I’m one wash away from bald. I am verrrrry gently brushing it, trying to stretch it out 😁
Re: Long term survivor examples.
I haven't been here in years, but this forum was a lifeline for me when I was going through treatment at the age of 51.
I'm now 8 years out from TNBC, stage IIIC, 3/9 nodes. 16 weeks of chemo with complete response, lumpectomy and 36 rounds of radiation. Lingering effects of peripheral neuropathy in my feet and some minor joint pain, but otherwise I've gone on to live a full and happy life.
Wishing those who are fighting this beast the very best outcome. It can happen!
Re: how about drinking?
I'm drinking a Grenache and thinking of Goldie. She has been on my mind (and in my soul) since the post.
I've got my onco appointment on Thursday and having icky feelings about going/stress/panic, blah, blah…I miss my retired onco. I emailed her and she wished me luck with my appointment. Not sure why doctor appointments freak me out. I'm usually a veg, deer in headlights, till after my appointment. I've gotten all my labs, so nothing they can't tell me that I don't already know…still….
Anyone with Rotter’s Nodes Metastases??
My surgical consult thinks my recent recurrence involves the Rotter’s Nodes and surrounding pectoral muscles . They are trying to come up with a plan to treat it locally but everyone seems to be scratching their heads about how to approach it. I am now being sent to a thoracic surgeon for a consult. Not instilling a lot of confidence in me ( I am at DF .. so the best around where I live). I am also being treated systemically with exemestane and Verzenio to try and shrink the mass. I get the feeling that this type of recurrence is very unusual and am thinking I may want a second opinion?? Anyone else have surgery involving these nodes? Thanks!
Re: Starting Chemo May and June 2024 Support Thread
@ebfitzy I plan to wait until my hair starts falling. I had it cut short a few days ago so it would hopefully be easier emotionally when it's time to shave it or clip it short.. whatever they do.
Re: how about drinking?
Thinking of Goldie tonight as I get caught up here on some updates. Praying for an easy transition for her during this time.