Best Of
Re: Second DCIS, same breast, strong family history -- remove one breast or both?
I was diagnosed with DCIS and ended up after 2 surgery’s having a bilateral mastectomy. Pathology showed minor DCIS in the “good” breast. I’m so thankful I went ahead and had the bilateral.
Re: thread for middle age to older Christian women.
Hello,
My name is Susie, I'm 49 and I am a Christian. Thank you for starting this thread! When I first started visiting bc.org, it broke my heart to see the "anybody else an atheist but me" thread and the fact it had so many posts. I don't know how people get through this without the Good Lord. I know without a doubt that all the prayers that were said for me brought me through this and I give him all the praise and the glory for it! Our Heavenly Father is SO Good!
Susie123
Re: Starting radiation October 2025? Let's support each other!
Seems like most of the people on this site are busy sharing recipies and pictures of trips, aka living their lives, which is a good thing, to respond to posts so as someone who is also starting radiation this month I hope we both have an easy time of it and that it will truly help do away with the chances of reoccurrence of this horrible disease. If I may ask, do you know how many treatments you are getting and are you doing whole or partial breast? I had hoped for a quick five and partial but my radiologist recommended 20 and whole. The idea of having to do this every day for four weeks is freaking me out some. How are you doing?
july31
Re: My Husband, My Life, My Love, My Family, My Cancer
Irish - so glad you had a great hospitalist and now have correct dx and treatment. May your recovery begin.
Here for pocket duty for those in need and with upcoming scans. Mine happen to be tomorrow.
Second DCIS, same breast, strong family history -- remove one breast or both?
I had DCIS 18 years ago, treated with lumpectomy and radiation; I was 41 and premenopausal at diagnosis. I tried Tamoxifen but stopped after 6 weeks because I couldn't tolerate it. Now I have DCIS again, same breast. My sister was diagnosed with advanced invasive breast cancer at 39. I tested as BRCA negative 18 years ago.
I know I need the DCIS breast removed, and I'm fine with that. I'm debating whether removing the second breast is also a good idea, especially if it can be done with nipple-sparing so I can retain some sensation. It's unlikely I'd be able to tolerate oral endocrine meds like Tamoxifen any better now than before.
Anyone know how much a second DCIS diagnosis increases the odds of a new cancer in the unaffected breast, down the road? Especially when combined with a strong family history?
I meet with the surgeon next week; I want to be prepared for likely recommendations. Just want to get my head on straight ahead of time if possible.
Thanks.
Re: Bone Mets Thread
So glad your home. Hope things steadily improve.
I stopped Kisqali for 2 weeks in June, in addition to my "break week" for a total of 3 weeks.
I have scans on Thursday. Will let you know.
eleanora
Re: Stage III Cancer Survivors........20+ years and out
@ausykaren I remember all our messages back and forth when you were first diagnosed…..thrilled to see 8 1/2 years!!!! You go girl!!!!!
yatcomw
Re: My Husband, My Life, My Love, My Family, My Cancer
In everyone's pockets… Mel, I'm so deeply sorry you are going thru this crap with of all medical personnel, a pallative care team member. Withdrawal is a very real and unhealthy and totally unnecessary hurt to put on you.
I hope the time passes quickly for Gabby and she has much success with reconstruction. Send our love and support to her and save some for you, too.
Mkestrel, best of luck tomorrow and thank you for kitty picture. It soothes one's nerves and reminds me of a Hemingway kitty we rescued from under a trailer years ago. She was so sweet…
That was ridiculous three trips to the hospital and those folks could not give you proper standard of care. I sure like the idea of an ID bracelet for MBC patients. Thank you all for your caring notes. I just got home from the hospital, again. This time, oh boy, it was tested properly and is bacterial pneumonia. I was quarantined till they could identify any and all issues. Now I'm settled in my own room and will be on two different types of antibiotics after nonstop IV's. New hospitalist and he was brilliant. Went over images, talked shop visited twice with me and I was quite impressed as was the head charge RN. He wanted another day but I begged to come home to my own bed and be a good girl. It worked…
Re: scanxiety, cant stop thinking im going to die
This website is filled with people who have had elevated CA 27.29 results and who turned out to be just fine.
Is it a good thing to have a doctor that checks the markers? No, because as MountainMia said, the markers are unreliable. Checking these markers is specifically not recommended by ASCO and the NCCN. I've had breast cancer twice. I've seen 4 MOs over the years. None has ever mentioned doing marker tests.
Your MO has her own Hematology lab? Yeah, it's not a very charitable thought, but that could be why she is doing these unnecessary tests and scaring you with unreliable results.
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove - Oh Irish, I am so sorry to hear about what's going on with you. Not fair! I sure hope the doxicycline does the job. No need for any apologies whatsoever. I understand wanting to keep up with posts, but sometimes it's just not easy or possible. I've not been able to keep up with posts when I've had far less going on than you do. Please just take it easy, take care of yourself as best you can, and maybe get a second opinion or something? I agree, it seems like perhaps they should have kept you initially. I'm in your pocket for sure, Irish, thinking of you with fingers crossed. Get well soon!
@candy-678 - Yes! A good report - good news indeed!