Best Of
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
my inspiration here was Kangaroo ??
There’s more of us *oldtimers out there and on here. I hope I don’t come across as smug , nobody knows if it’ll work or not. Maybe my pet in December goes all yellow , who knows 🤷🏻♀️ there’s micronodules in my lungs that come and go without any intervention. The day will come, but NOT TODAY !!!
x
forza
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
good morning! I had the genetic screening right at the start, I asked for it immediately but probably would have had it anyway since I have children. I am negative across the board. My adult kids were thrilled to hear tho know it is no where near a guarantee - look at me.
My closest friend died of BC back when we were 39. We learned afterward that she carried both BRCA genes and her 2 daughters also inherited them. They were 4 & 7 when she died. OMG - what a terrible time and I can’t believe it was over 25 yrs ago now… 😢
Her younger daughter had a preventive mastectomy at age 31 (last year) and her older daughter is waiting to get pregnant first but has a team at Sloan’s keeping close watch. My friend would have lived if she were diagnosed now, I am positive of it! Needless to say, my diagnosis from out of the blue freaked us all out.
Long story short, I found my MO at Sloans through my friend - wild coincidences one after another that resulted in my choice of doc! It is one of those stories that help keep mediums in business 😂 @forza Your success with this combo of miraculous drugs keep newbies like me clam and inspired. The great scans I recently had help too 😊 Thank you!
Hope everyone enjoys the 2025 summer’s end! juliana xo
eddiej
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
The best and most beautiful things in the world cannot be seen or even touched - they must be felt with the heart.
betrayal
Re: So...whats for dinner?
Carole, I hope you enjoy your breakfast out and the bluegrass festival. I have never added a cob while cooking corn chowder but it sounds like a good way to enhance the flavor.
Dinner tonight was the rest of the cube steak with tomatoes, onion and corn braised in chili powder mix served on rice. It turned out well.
maggie15
Re: So...whats for dinner?
Laurie, how do you make the chicken-salsa and brown rice dinner? Is it as simple as it sounds? I love new ideas for brown rice and am trying to eat more lean protein so that sound perfect...
SusansGarden, the more you eat anti-bc food, the more you may come to like it... I still crave "bad" foods at times but they taste less and less good to me. I'm a huge veggies, fruit and whole-grains fan now.
PB & banana -- the best way to eat PB! I don't get the PB & pickle thing, though 
Stay warm and safe, everyone -- I'm off to fix my dinner!
Re: My Husband, My Life, My Love, My Family, My Cancer
Had the exact same dental procedure to replace a crown last year. Hope the pain is subsiding. I have the same problem with having a very small mouth and fortunately found a wonderful dentist 4 years ago. The one before him actually dislocated my jaw trying to force his huge hands in there. I have had several dentists over my lifetime who seem to be oblivious to the fact that there is a human being attached to the mouth they're working on.
Glad you're getting cooler weather. Still touch and go here in the mid-atlantic.
I am immune compromised and yes, @irishlove , I went from being someone who rarely had a cold to a prolonged bout with pneumonia last year and a miserable episode of diverticulitis this year that is still lingering. I miss my stamina and resilience. Between the symptoms of that and the side effects of Kisqali, my intestines will never be the same. The gastroenterologist is pressuring me to have a colonoscopy and I told him to back off. He persisted, saying that he needs to rule out cancer and I reminded him that I was already metastatic and I doubted that one more would have a significant impact on my life expectancy. I'm in an unusually ornery mood, probably in anticipation of the 🤬faslodex injections scheduled for Monday.
Hope everyone has a peaceful weekend with at least one small joy in each of your days.
Eleanora
eleanora
Re: GammaKnife (CyberKnife) Surgery for Brain Mets: What to Expect
@hbbboudreaux. You’ll do fine on Tuesday. The mask or frame fitting can be scary and weird but it doesn’t hurt (except for the numbing needle injection but I hate needles, so probably worse for me). The procedure itself is quick and painless. I would definitely rest for the rest of the day and maybe take an ibuprofen later, if needed but that’s about it as far as recovery time. If you can get someone to cook or deliver dinner while you relax to a show or movie, that’s even better. Please report back afterwards, if you’re up to it.
illimae
Re: How are people with liver mets doing?
i did have such high hopes, JFL, he is the specialist after all.
Z once you said on some thread that you don't trust afinitor. Will you share your reason? Or was your decision after personal testing on what is best for you?
Edited to add - Z net mind, I finally found it when there was a lengthy discussion back in May of this year. What I am most concerned about is the lung issue. And the new onc' s opinion that it will be of little effect for me. I'm looking for another choice, frankly. And I don't mean taxol infusion. Maybe faslodex revisited with ibrance. Since he has such a low hope of my survival then I think I should be able to choose whatever I want. Hope the new onc has great ideas.
Re: Confused about genetics testing, treatment, risk of second recurrence
@moderators Thanks so much for the links to all this information, it's so helpful and I appreciate the direction. I plan to join a virtual group too. So glad I found this group right away, I know I need the support and I hope I can help support others along the way. Yes, I've got this!