Best Of
Re: how about drinking?
I hate the bad news but appreciate the update. Not sure what my next drink will be but it’ll be for Goldie.
Re: how about drinking?
Kim - I also just got a message from her daugher, Jennifer. I'm so sad to hear that the end is near for Lori that is my sadness for my loss. I'm glad that she won't be suffering anymore. And glad that she is surrounded by her family.
Re: how about drinking?
I just got a message from Lori's (Goldie's) daughter Jeannette. Lori is now on hospice with her family taking care of her. This is what Jeannette sent me:
"Good afternoon. It is with sad news that my mom Lori Kiser. Wanted me to let you know that she is now on hospice and we arr keeping her comfortable. She loved you guys and that support group. She was very fortunate to have had the long life she lived. It was a beautiful one."
and
"Thank you. She is surrounded by family and is in good spirits. But she is in alot of pain and is ready to go"
Jeannette gave me permission to update everyone, and said that Lori would like me to update the group. I will pass along any info/updates as I get them.
Now I'm going to the blow up chapel to pray and cry.
Re: I just had THE call
Thanks so much for the info. I had my MRI done. My care nurse was very helpful in that she called me and told me to drink lots of water the day before the MRI. Then the lovely lady that did my MRI was really nice. She said she had breast cancer too and she also opted for mastectomy which was 10 yrs. ago.
She also reminded me to drink lots of water because she didn't want the dye to be sitting in my kidneys. That kind of scared me so of course I did drink lots of water. I felt fine. So I believe the drinking lots of water advice was very helpful.
I also got a handbook about breast cancer yesterday. It's a really thick book so I have a LOT info to absorb. My care nurse sent it to me. I did not ask for it. I guess it's part of their care process.
About genetic testing I also will most likely will just do the actionable genes panel associated with the cancers in my family which as far as I know are ovarian and fallopian.
I believe my sister tested positive for BRCA I just don't know what exactly. I will just do my own testing since I already scheduled it anyway.
Guys this is my MAIN concern on my journey. PLEASE I need your answers. Did I made a good decision to do a biopsy? My original plan is non invasive method but my route went:
Diagnostic mammo and ultrasound
THEN
biopsy with marker
THEN
MRI
Is that a normal route. I agreed with biopsy because I watched on youtube that biopsy is when the doctors will know how to treat the cancer.
It's just bugging me because the radiologist told me that only a biopsy can really tell if the lump is cancerous. And since I had birads 5 result it did say biopsy is almost always the next step.
But then when I saw my onco she said the MRI will REALLY tell them the stage of cancer.
So I am like…..?
Sorry guys that just bothers me for some reason. ESPECIALLY the biopsy. Did I do the right steps in my cancer journey?
Thanks guys. I hope I beat this.
Re: Unfortunately it appears I am back.
@malleemiss251 @katg @kbl I don’t have the mental energy to respond individually but wanted to thank you all for the encouragement and love. Yes I was told that they don’t diagnose lepto without a spinal tap, but not to give up yet. They first want to repeat the MRI, and do brain too. My MO tells me she will be shocked if either show anything, as it’s generally a more late stage diagnosis in highly ER+ BC. My RO seems skeptical too. They are hopeful it’s artifact.
I appreciated their encouragement but honestly it doesn’t make me feel much more hopeful as I’ve been nothing but an “over-achiever” in this whole journey, surprising everybody with the size of my initial tumor, the nodal spread, now the wide spread nature of the bone involvement coming out of almost nowhere. I am having constant headaches and head pressure too. I’m trying not to give up, I can’t believe I’m here in this place. I never would have dreamed it.
Edited.
Re: BCO In Memoriam thread, Part 2
So sad to be hearing this, but thank you for letting us know, @kbl. 😔