Best Of

Hi!

I’ve been reading these for months (and have found them so comforting!), but haven’t posted anything yet. I was diagnosed de novo in December of 2020 at 34. No genetic component and no family history of breast cancer. Currently stable (yay!), but obviously dealing with all the physical side effects of this horrific disease and especially the mental health impacts these days…

I am in Houston, and I don’t know a single person my age who is also metastatic. It is so lonely and isolating. Everyone else I know is having babies, making career moves, buying bigger houses, and just “living their best life.” I want to celebrate them, and at the same time I am so sad about everything that’s been stolen from me. I would love to connect with others here just to know I’m not alone. And if anyone is close to the Houston area (or travels to MDA), please let me know!!

I am also curious if anyone is thinking about or has pursued surrogacy after being diagnosed metastatic. I had gotten married 7 months before diagnosis, and we were hoping for a family. I have so many feelings about this. The short version is that I don’t know if I can bring a child into this world knowing I likely won’t get to raise it. But at the same time it’s my husband’s life too, and he really wants kids. I would love to chat with anyone going through/who has gone though this.

Looking forward to connecting here!! And hoping for a 2022 filled with good health for all of us who are facing this ❤️

Hi ladies it’s me again. I just wanted to see if anyone has had this issue. Recently I went to see my gynae and she said I have endometrial thickening despite being on Lucrin/ Lupron for past couple of months. I’m being monitored for the endometrial thickening and she is saying I might have to do a d & c after I’m done with chemo for my lung met that was discovered through a routine pet scan. I still have 2 cycles left,

I’m just feeling like one after the other when does it end! It feels so unfair at 30 I have to face all these problems when all of my friends are either pregnant or giving birth. It upsets me that I might never have the chance. How do I just accept this ordeal that life has thrown at me. I feel happy for my friends that are expecting but it just hurts me to know that it might not be in my future ever. Holding onto a miracle and just taking it a day at a time.

Any advice would be appreciated.

Hi Ladies! I'm 34, dx stage IV from the get go in 2011 with Mets to bone. In 2018 I was dx w/ liver Mets and in 2019 lung mets. I've been on a handful of treatments in my years and had radiation more times then I can count. I think my hands and feet are the only places I don't have bone mets. This last year has been particularly rough as I fractured my T-12 and coccyx last fall. This place on my spine had been treated with both standard radiation as well as cyber knife before fracturing and expelling bone fragments to the surrounding area. Even Chicago surgeons don't want to touch me and said only if my symptoms start affecting QOL. I have weakness in my rt arm, a tremor in my left and pain in the general area. I had to give up my job as a dialysis tech to take an office job after that due to safety and lifting restrictions. I also broke my hip in January (thanks for failing hard and fast ibrance!). I'm just getting ready to go back to work. This despite not being as severe an injury has been the longest I've taken to recover. Each one seems less and less likely I will bounce back to being able to work and care for myself. I just started Gemzar about 2 months ago. Lots of fatigue, dry mouth, dry skin. White cells plummit on it though so we switched my schedule to two on one off otherwise I never made the 3rd treatment. Otherwise not too bad.