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Re: Bone Mets Thread
This is an update on my health condition.
After spending four days in the hospital and five days at home recovering from pneumonia, I am now feeling better and slowly recovering.
Before I developed pneumonia (and a week before that I suffered from a fever),
my doctor was uncertain about my condition because my markers kept rising, even though the PET scan and MRI of the lumbar and thoracic regions showed no disease progression.
Now, my doctor has requested that I undergo a full-body MRI to assess the status of the disease throughout my body.
The problem is that my doctor is convinced that the current treatment is no longer effective and wants to start me on Enhertu. What confuses me is that during my last meeting, my doctor told me that he intends to change my treatment plan based solely on the continued rise of my markers—even before seeing the results of the MRI that I will have next week.
I even started to suspect that the doctor is pushing me to change the treatment so that it can be administered in his private hospital, which would benefit them financially, because he always repeats that Kisqali is not effective after approximately a year or 18 months.
Is this true?
I’ve heard that many people continue on Kisqali for years. I don’t understand why he is pushing me to start Enhertu while I am under extreme stress about changing my treatment.
Re: Bone Mets Thread
Thank you so much! I really appreciate your kind words. I hope your scans go smoothly and bring only good news. Please let me know how they turn out.
Re: Bone Mets Thread
This is an update on my condition:
I was discharged from the hospital yesterday, and I’m continuing the treatment at home for another five days.
I have stopped taking Kisqali during this entire period of illness — starting from when I first had a fever and caught the flu, then later developed pneumonia — which adds up to around ten days in total.
Did you ever have to stop treatment for this long?
I’m not exactly sure what my doctor’s decision will be regarding this Kisqali cycle, which I never actually started because of what happened.
During my last visit, he told me that the current treatment seems no longer effective (Due to the continued elevation of the markers), and that he wants to discuss second-line treatment options with me.
Re: Bone Mets Thread
I really appreciate your responses to my questions, and I truly benefit from hearing about the experiences of anyone who’s gone through the same situation.
I’m really sorry that you went through all of that. I hope you recover soon.
Here’s an update on my condition:
I’m still in the hospital, and my lungs are responding to the treatment, but I’m still very exhausted and keep coughing, so the doctor has to use the nebulizer.
The respiratory specialist said that I’ll be spending another night in the hospital.
Re: Bone Mets Thread
Sorry you're still in the hospital. Yes, I stopped Kisqali during the one week dosepack.
On a related topic, I have been dealing with diverticulitis since June, 2025. The emergency room doctor prescribed augmentin, which seemed to help initially, but then it reoccurred a few weeks later and the gastro doc prescribed augmentin again. Both times I stopped Kisqali. Diverticulitis started again on 10/12, more augmentin prescribed. I contacted my MO and she said that I could continue on Kisqali. Hoping something works, as the pain is pretty severe.
Re: Bone Mets Thread
thank you @eleanora for your info
I’m still in the hospital receiving antibiotic treatment, and my doctor has stopped all cancer treatments except for the faslodex injection, which I had received before my pneumonia was diagnosed.
Did you pause treatments like Kisqali and Xgeva while managing the pneumonia? And how long will I remain without treatment?
Although the doctor told me that he will discuss a new treatment plan because he believes the current plan may have failed due to the continued rise in my markers.
Re: How long have you been Stage IV?
@lafish I was on Kiskali and I also had a decrease in appetite. That said, the stress before each control scan is still present, but it's true that my markers have been good since the beginning of the year, so I'm a little more relaxed before my quarterly check-ups. During my first follow-up scans after the stage 4 diagnosis, I took steps to arrange my funeral and made contact for suicide assistance! (lol). That's how anxious I was. Two and a half years later, I no longer have these kinds of thoughts before check-ups, but still, it's never easy to wait for the results.
I hope you receive good news in two weeks. Best regards.
Re: My Husband, My Life, My Love, My Family, My Cancer
@eleanora I am sorry to read about your progression, will be in your pocket to see what this development leads to related to your treatment and any changes.
Thank you everyone, I have appreciated the support and well wishes re the news from my RO.
I want to say, now that the shock has worn off, I can be realistic and not so worried about the road ahead.
Again, have to see the brain surgeon first, find out what he wants to do about it and go from there, brain surgery is fine with me and not having whole brain radiation either way is good. I will get through whatever happens. I think the realism sunk in sooner because of the length of time brain has been officially involved though MO believes there were cells too small to detect in the brain from 2015. Oh well almost 11 years I have dealt with cancer and different treatments, overall I have not had many set backs and been lucky. I put that thought in my head and it works fairly well. Cognitive decline is not a worry either, I remember everything needed 98 per cent of the time. Recalling actor names not so much. My gait is good even with my cane and lack of proper walking done.
As far as what I want to do around my house, I need to figure out organization, and actually get rid of unneeded stuff that is not used, hate to say it, robot vac would be part of the list, it is trapped under the couch and can stay there. I have huge rubbermaid totes, l like those because I can put something in and top with a lid, I do wish to get the front of the closet cleared out, see what if anything could be stored in there. Keep food storage together in one or two. Keeping the walker back in my bedroom where it started out, was not a bother in there. Not getting rid of it because I know that as soon as I do that, I will decide I want to use it. Now that it is so cool outside, may also take a walk with it up to the drug store to pick up anti nausea meds for future scans and take rests, I used to walk on an empty stomach besides water then eat later. It really is not that far to the drugstore, best time of the day is definitely morning. I will see. If I do it, will be first thing in the morning before noon and take a slow pace and sit, probably every 5 or ten minutes or walk to a street, pop a squat for a minute or so and keep going. I will see since it can be delivered too. I talk a good game but would be the safest walk I could take. Come winter, it would not happen but may start out doing that. I will see.
The only stuff staying are old phones and tablets, old phones can be turned into music streamers, I use one at the hospital, remotes for TV and tablets are good for some programs or watching movies. I also enjoy playing with my older laptops as well with different operating systems to see if there are options to get other uses from like remotes for tv, streaming movies.
As far as food, couple of ideas are floating around. One sees me adding frozen peppers, different seasonings, small dot of plant butter AND garlic butter (it is milder), take a cheese powder, fry up the peppers first, partly to get rid of water, locate a can of chicken or microwave a mini pot pie first, stick into the mini griddle once peppers are done, mash it down, add tiny dollop of either salad dressing or one of my mayos. After this stip is done, remove pot pie and peppers and do a quick egg in there, I really enjoy the eggs done that way. Option 2 sees me microwave a frozen stir fry, has noodles and veggies, easy enough to crack an egg on top and heat in the microwave with butter and garlic butter and the ramen beef seasoning.
EDIT: had some chicken fried rice in the freezer, opened it up first. I took an egg, whisked it, added some small amounts garlic spread and the plant butter. After mixing them in a small bowl, poured over top the rice, heating for 6 mins in the microwave. I did add a packet of the ramen seasoning which is fine. It smells REALLY good. I did also add shredded cheese as well and it was quite yummy and very enjoyable. My last meal of the day believe it or not, I got some honey nut cheerios so added handfuls of those into peanut butter containers, dang that was good and quite filling too which was great.
I was lazy today, watching youtube most of the day and a movie with Steve Martin and Turner called The Man With Two Brains. I really do enjoy that movie, crazy but funny to me.
I hope everyone else had a good day, I am in pockets for all who need support, in my own to maintain my more practical mind of dealing with worries as well. 10 years of having this beast, by next year, will be 11 and 10 on the official dx of brain mets allows me to map out possibilities in what needs doing re the cyst with blood flow that will require drainage or removal. It is not even close to the end of me, just might be a PIA stay in the hospital. I must admit that post surgery the first time around in 2016, I actually enjoyed my stay. I can only hope that if there is a stay with a roommate or more, will get one like this.
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Re: NEW Oncotype Dx Roll Call Thread
Hi RomWriter - I just wanted to tell you that I too thought I would just have radiation and be done with it. I had four different drs. tell me that. Turns out because I had one node positive and my tumor turned out to be twice as big as they said it was I ended up having to do chemo. It was quite a shock, but you know at this point (I'm 5 years out) it gives me piece of mind that I did it and have done everything possible to beat this beast. The chemo wasn't as bad as I thought it was going to be. Yes I hated losing my hair, but it's back now and all is good. Hang in there
Nancy
Re: Faslodex Girls Thread
The bandaid issue was a surprise. I have to wait a little longer because I like to bleed. Sometimes the have to use a new bandaid. I may ask the tonstart using gauze and surgical tape. I am thinking the bandaid reaction may have had to do with getting the flue shot last week. It seems to trigger an immune response and sent my allergies off the deep end last weekend. But I was over that so I thought by the time I got the shots.

