Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
intolight So glad to hear your MO sought out other radiologist opinions. With this scenario it is the best thing to do and I'm relieved for you!
threetree Sounds like your MO will be able to sort this out for you also. Fingers crossed and prayers up that you will get good news and relief also.
Mel Wow can't believe Theo is a year! So happy you're enjoying his unconditional love. Hope you slept well your bed sounds like a cozy haven, just lovely.
Humidity creeping in today , will have to get Buster out for his morning walk soon. I will probably bake some cookies today, SIL is turning 60 soon and her DH is having a party on the 22nd.I promised to make a large cookie tray so I will bake a little each week and store/freeze them.
CT tomorrow…yikes hoping to maintain stable status. Like Candy stated I always wonder if this will be "the time". I have been on this treatment for 2 years in July and Keytruda will be ending soon. Makes me nervous to know I will just be on oral chemo after July..we'll see. Just trying to stay present and take it one day, one scan at a time.
Thinking of emac and sunshine this morning hope your doing ok. Praying for all here daily.❤️
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
here we are bedtime again. Wish me luck. I’m never sleeping too good lately. I’m so fatigued dying the day I need to nap. Maybe cut it down. Sigh. I don’t know anymore. Life with cancer sucks. Plain and simple! Goodnight
micmel
Re: My Husband, My Life, My Love, My Family, My Cancer
Theo is the definition of cute, @micmel - he just says "hug me" - so gorgeous - happy belated birthday greetings to both of you.😍
Re: Sacituzumab Govitecan (Trodelvy)
My name is Sharon. I was diagnosed with triple negative breast cancer in my left breast, negative nodes in 2011. In 2019, I was diagnosed with metastatic triple negative breast cancer in my brain, lungs, and thoracic spine. I have been on Trodelvy since May 2020. I have had 11 doses. After the 8th dose, I had a cat scan of my lungs. Both lesions shrunk considerably for the first time. My white count has been normal to low normal and diarrhea has been occasional and treated with immodium with relief. The lesions in my brain were treated with the cyber knife with good results. Any questions? Feel free to ask. I live in New Jersey.
Re: Just diagnosed with ILC mets
Thank you, @bighubs
I am feeling much better after my visit with my new onc. She wants to establish a clear baseline and ordered some additional testing including CTs and FES PET scan that is specifically designed to show dissemination of the lobular lesions throughout the whole body. Also full genetic report and additional report on the biopsy tissue from my liver from Guardant360. She also told me about ongoing trials, but I am not a candidate for them as my genetic landscape is intact at the moment. Glad to hear that there are 10+ years survivors. It gives me a lot of hope. Appreciate your support and wish your wife the best.
laguna24
Re: Just diagnosed with ILC mets
Thank you, @bighubs
Sitting right now in my doctor’s office waiting for her decision. For me long term is more than the median survival. From the literature it’s few months or in some cases two years. I have a mother who is almost 100 years. Need to take care of her.
laguna24
Re: My Husband, My Life, My Love, My Family, My Cancer
I just looked at the Cuddle Puddle blanket on Amazon. It looks very nice!
Re: My Husband, My Life, My Love, My Family, My Cancer
Candy - You so get it about those reports! I also remember reading a DJMammo post here some time ago, where DJ explained that radiologists actually write the report for the next radiologist who will be dealing with the same patient - not even for the PCP or MO, etc., much less the patient. We and our regular doctors are not the audience the report is directed toward at all, so no wonder they read strangely to most of us. Also, I too have even wondered sometimes if I even have cancer! In my situation, I think it is wishful thinking, but I get it, and why someone would wonder, after to you read all this stuff.
Cookie - Thanks, and I am hoping the oncologist will have something helpful and uplifting to say tomorrow. Intolight's did, am I really glad for her. Also, Buster is soooooooooooooooo cute! Thanks for sharing the wonderful photos. Especially like the "on the water" one. He looks like he's wearing a corsage and ready for a date.
(I love it when Candy and Cookie post close together - makes me think of "cookies and candy" and who wouldn't have their mood raised by that alone?)
Mel - I am so glad that you have Theo. He seems to bring you so much joy and comfort. Hard to believe he is a whole year old now. May you have many, many more together!
Re: Just diagnosed with ILC mets
dear kbl,
Praying for you and all of us. Thank you for your support. Will try to join Monday zoom to see how it can help me
laguna24
Re: Just diagnosed with ILC mets
@laguna24, I'm not sure what you consider a long term survivor, but plenty of folks similarly situated seem to be doing relatively well at about the 5 year mark. @kbl is similarly situated with mets to her stomach, bones, and bone marrow and has been on treatment since 2019. My wife is similar to @kbl but was only diagnosed de novo just over a year ago so isn't what you'd consider a long term survivor. ILC seems to be much slower growing than IDC and is almost overwhelmingly ER/PR positive which makes it respond well to systemic hormone therapy; particularly when a cdk4/6 inhibitor is included. That's probably not the reassurance you were looking for, but for what it's worth I'll add that the shock you are feeling, and all of the associated emotions that come along with it, are perfectly normal and expected. Fortunately, I think anyone who has been there before will tell you, it passes eventually. Once you get a treatment plan in place, start taking the meds, and start seeing results you'll feel much better. No one can say how long you'll remain progression free, but survival times are increasing everyday and even since my wife was diagnosed several new meds have been FDA approved for MBC (Oserdu, Truqap, TxD, and capivasertib). Many more are on the horizon. As many others have put it, while it may not be "curable" it is becoming increasingly very treatable as a chronic lifelong condition. Plenty of reasons to be hopeful!
bighubs