Best Of
Re: Ibrance (Palbociclib)
Sunshine99 She reviewed them and told me to start ibrance again Monday. I have had some thoughts. I tried to switch PCP because I lost faith in my current PCP after he refused to deal with my BP when I was first diagnosed. He just wanted to watch my 170/90 bp in 2023. I tried to switch PCPs last year but in my county it was almost a year wait for a new patient visit. I have blood work again in 3 weeks. The new doc is looking at changing my Ibrance schedule. I have an appointment at a clinic in the same county as the cancer clinic but not until January because I wanted a female Dr. The males can see me much sooner. My numbers are wonky but I think I will wait till the next labs in three weeks and see what happens. If it repeats the pattern I will schedule with a different Dr for PCP care. If it goes back to normal I will stay with my original plan. None were seriously high so maybe it is just from all the stress of canceling appointments and an issue that arose Thursday afternoon with my bank owned real estate business and I found myself beating my head against the wall with my own support staff being an issue. I finally went to the president of our company over every one's head to get it resolved. It is one if those situations where the president has to fix it and going through the channels would be like playing whispering down the lane. Most of those #'s can be elevated by stress. Here is hoping that is the issue.
Re: Bone Mets Thread
Hi , everyone. I got back from vacation. The flight was very long and my back was killing me, but on the top of this I had stomach flue…..Next day I got 2 Faslodex shots, and I have 2 times more in interval of two weeks. I have update from my bone and blood biopsy. I am still Er positive, Pr negative and Her2 negative/low. I don’t have the mutations that can determine on other medication, but some other, not well known. My doctor didn’t say, good or bad and I’ll be praying to be good. I know that Faslodex by itself is not so much effective …. I wish she could add Ibrance….
I am behind with reading the posts , but can do it tonight. Hugs. Elena
Re: My Husband, My Life, My Love, My Family, My Cancer
Well, I saw my oncologist today and he does think something is going on with my liver and that there is slight progression there. Everything else is stable. He wants me to get an MRI to get a different look from the CT, but he seems pretty solid that something not good is going on. He said that he didn't think I'd have to switch out this current med regimen, and that there are things they can do that won't require a med change. The treatment he talked about, I know I've heard/read about it before, but now I can't remember what it's called. It's not SBRT, but that was on his list of maybe down the road things, or something if what he's thinking of doesn't work. What he's talking about is something where an interventional radiologist would put something into the blood supply of the liver and somehow do damage to the tumor(s). Just can't remember the term for the procedure. Needless to say, I am way less than thrilled, but at least encouraged that I could keep the current meds for now (Faslodex, Verzenio, Zometa). I don't want any one doing anything to my liver. The whole idea really creeps me out. I'll have to study up and psych myself up for whatever this may be. Still reaching for straws though, and hoping this whole thing is just some kind of screw up. It takes me a long time to process and accept bad news.
Editing to say that the procedure my oncologist is suggesting is radioembolization. They send radioactive beads into the tumor's blood supply and get it that way.
Re: Starting Chemo April 2024 Support Thread
TCHP chemo round 2 is in the books! Already getting that thrush feeling, and I feel it in my joints! Got atropine up front, and have neulesta on board waiting to inject. They also gave me a big bag of fluid. I got back in a week for labs, more atropine, and more fluids.
Re: ER-, PR-, Her2+ Roll call
I still am still not normal in the GI department, but I’m WORLDS better and no longer relying on medications. And just in time. We will see what round 2 on Thursday brings.
At least I know now what to expect! I’m going to approach things differently and stick to a mostly liquid and BRAT type diet for the duration, this time, and I have things like banatrol here now to help. No forcing myself to eat solid food or things that rip me up this time. I’m super stocked on Imodium, jello, and better than bouillon! And they said they’ll give me atropine on the day of chemo.
Re: My Husband, My Life, My Love, My Family, My Cancer
Sondra-losing your hair in clumps must be very distressing. Wearing the gaiter sounds like a good temporary solution until you can get some cute wraps.
Intolight-I can relate to the lack of energy. I did a load of laundry and cleaned up the mulberries on my sidewalk, dishes next but I'm taking a break. I think I'll sit outside this afternoon without any guilt for "doing nothing."
Re: how about drinking?
Friends, we just were alerted about the passing of Goldie (Lori) and wanted to share our deepest condolences. Lori was a light here for so many years and she will be sorely missed. Sending gentle hugs to you all, and our thoughts are with you and all who loved her.
—Your Mods
Re: My Husband, My Life, My Love, My Family, My Cancer
@sondraf So sorry to read about your hair. This disease is tough enough without the added downheartedness of losing your hair.
I would love for us all to sit together in the living room listening to music and enjoying each other's company. I would bring out my keyboard or join you all with my cello if I had any strength…
It is a beautiful day here. The plants and trees are planted and life should be good, but I just don't feel good. I want so bad to be able to do stuff, but instead I find myself sitting in my chair doing nothing much. I washed the dishes and hung my summer wreath on the front door, but now I have no energy left. It is even tough to crochet today. Sorry—just needed to vent.
Re: Can we have a forum for "older" people with bc?
I'm beginning to understand how awful it must be to live near wildfires, even if one's life or home isn't in danger. It's one thing to get an occasional whiff of the smoke (as we did a little last June when the AQI was over 200 from Canadian wildfires). It's quite another when it permeates everything you own and there's no escaping it. I can at least use Febreze, shower, and do laundry. As for cool-weather clothes, I expect clothing will be returned to us in dribs & drabs. We'd been planning to donate much of it anyway, but not in its current condition.
My weight-mgmt NP sends her sympathies but wants me to work out &/or swim 20-30 min./day. As if. I never knew how much work it could be taking care of two cats in a hotel room with no help (Bob just keeps them company while I do all the work). Then there's all the administrative stuff, doing laundry myself until we're semi-settled and can go back to using a service (and give them an address), trying to work in self-care (shower, meds, biopsy wound care—and next week, excision wound care, etc.). Slightly shorter drive from here up to my derm in Lake Bluff than from home; but no exercise or lifting with that arm for 4-6 weeks. Next day is my semiannual R dx mammo/US—and we move downtown as soon as I get back from that. Will need to do all the packing Monday (except of course for the cats' food, water, litter and paraphernalia). We realize that we have more stuff to move out of the room than we brought in—and even that used up every spare inch of both our cars. So tomorrow I'm downloading TaskRabbit to find someone with strength and a roomy vehicle to help us move. Gordy works (but doesn't drive and has a bad back) and all our friends are our age or older and not in perfect health. I have two godsons—but one's in Seattle with a wife & toddler and the other is, to put it gently, messy and sedentary. He can code up a storm, but can't push a vacuum cleaner. Drives his fiancee nuts.
chisandy
Re: Can we have a forum for "older" people with bc?
Harley, it’s good to hear you’re doing ok with the chemo.
Puffin, Betrayal, Harley, Petite, Taco, MM, Chris, Sandy - HUGS to you and any others who need one. So much is going on. The trials and tribulations of a life.
I got a nice walk in yesterday morning. But the humidity was high, and it was hot walking.
Last night we went to a concert, Bonnie Raitt. Such a great voice, concert was great too.
This morning I was off to see my foot guy, he does the orthotics for my feet. The man I’d been seeing for years retired. Apparently sold the business 3 years ago to the man I saw today; but he hung out and kept working. This was just a follow-up and intro to the new guy - he’s also a PT. The good news is by me switching my health insurance my next orthotics might be covered by them. I was told Medicare will reject the claim but my secondary will pick it up. Also said I need a script firm PCP; can’t say flat feet, can’t say pain; who knows what qualifies to get it covered. But I see PCP in July and will ask for a script. I’ve been paying out of pocket yearly. I think it was $580 the last time. It would be nice to just pay a $25 copay.
Hot & sunny. It felt nice this morning but turned hot quickly. Should hit 87-88. Rain should be here tomorrow and over the next couple of days.
I leave Saturday for Florida and hopefully the end of my dental saga. Not looking forward to the heat down there. Everyone enjoy your day the best you can.
cindyny