Best Of
Re: Calling all TNs
@dawn68 I'm sorry you are dealing with recurrence especially after breathing a small sigh of relief after the 5 yr mark. I totally understand as I had a recurrence at the 4.5 year mark and I thought I was nearing a little breathing room only to be drug back in.
For my initial recurrence in 2020 I received Gemzar, Carboplatin and Keytruda cycled in every 3rd week also. In 2020 the standard of care for keytruda was not a year, I believe it was around 17 infusions for me. However I had my last recurrence again in 2022 and sought out another opinion by a specific TNBC MO in NY who has done lots of research in TNBC. She said that their regiment would have been for me to continue on Keytruda for a year as your MO is recommending. I am currently on Keytruda again with Xeloda and I have been holding steady for almost two years now on this treatment.I feel confident that it is helping to hold me stable with no SE's so far.Keytruda is quite an amazing therapy as it has now been approved to be used in 17 different types of cancer.
I think at this point you can't focus on the 5 year mark being there is nothing you can do about that now. I don't know if there is an exact truth to this but I was told it was a "good" sign that it took that long for my cancer to return. My MO feels it's a sign that it is a slow grower and so far it really has been. This recurrence for me is a grade 2 as my two previous were a grade 3, so a little less aggressive.
Well I am wishing you all the best as you begin treatment and fingers crossed that your cancer will be destroyed for good! Sending you positive thoughts and strength, hugs.
cookie54
Re: Calling all TNs
Hi everyone, new to this thread. I'm TN and now MBC, with cervical spine Mets. My recurrence was quick, only after 6 months from surgery and I was still on Keytruda. I was only off Xeloda for one month before it came back… UGH! Same breast and with spreading to the skin. I have been on Enhertu for the last 6 months which was working, but my recent MRI shows progression in the breast so now I'm being moved to Trodelvy - which I have high hopes for based on what I have read. Has anyone else or is anyone else on Trodelvy? Curious about your experience. Thanks all.
Re: Just diagnosed with ILC mets
ok. After multiple tests I have mets to my bones, liver, stomach and possibly peritoneum. More than I thought at the beginning of this journey. Interestingly enough my bone scan as well as my FDG PET states no bone mets, but my Chest/ Abdomen/Pelvis CT shows mets all over my skeleton. I know with LBC it’s a problem. Starting Letrozole today with Ribociclib in a week or so (upon processing through my insurance and specialty pharmacy).
I wish you all long life and Thank you for your support
laguna24
Re: Starting Chemo April 2024 Support Thread
Aww, it's so good to hear things are on the up for you, @halyy2024! We're glad you found this supportive community as well. 🤗
Re: My Husband, My Life, My Love, My Family, My Cancer
Hi ya'll. In pockets for all your needs and may the scans improve greatly. I am barely eating due to GI issues, so today was even more difficult with pet scan tomorrow. Poured a Boost, took a sip, remembered it was a no-no, dumped it out. Poured cranberry-grape and remembered can't have that either. My brain, she are no good. Water sure is tiring. Gee whiz the kids then baked a cake. Not fair. LOL
I stick to my DYson. Niece has 3 dogs and one had an accident on the floor. Well….she came home to the Roomba having spread it everywhere. It took days of carpet cleaning, floor cleaning and wall cleaning plus disinfectanting. You do have to watch out for major water or liquid spills also. What a joy to have one if you can. Please do a voodoo or war dance or something for us to receive rain. My plants and the outside critters are suffering. A crow jumped into the birdbath and gulped the water down. Gotta try to sleep but anxious about the scan and if they can find a vein. Night all and God bless you………….
Re: My Husband, My Life, My Love, My Family, My Cancer
@threetree as another member of the 'your sodium is too low' club, I hear you. I've been a salt fiend for as long as I can remember (and yet the British NEVER salt food, drives me insane) and yet my sodium has been bumping along in abnormal territory for oh, 6 or 8 months now. I dont know what it will take to pull it up,but I do drink electrolyte drinks to get all the salts (Ive got bigger problems with potassium) and that seems to get my sodium up into marginally acceptable level. Ill try more olives, maybe a bit more salty Greek stuff like halloumi would help. We need salt for heart function, but I didn't realise so much was tough on the liver.
Sometimes I wonder if optimal for some of us is low for others and when we try to fix it, we are maybe 'normal' but it doesn't work for our body. I hope you find a different reason,though, seems awfully coincidental.
sondraf
Re: My Husband, My Life, My Love, My Family, My Cancer
I hope the salt thing can be figured out and I hope your liver is just persnickety. It’s been a lovely weekend weather wise , but I was just completely tired. I don’t know what the deal is but I was flat out no energy at all. I am so sick sick of being tired and tired of being sick. I don’t even remember how to feel good anymore. It’s depressing. Sometimes I can’t believe this has even happened to me. To us. All of us. Here. I hope you did something fun this weekend. With Theos new look comes a now attitude. Prancing around with his toys. Quite adorable. A small light in my days.
micmel
Re: My Husband, My Life, My Love, My Family, My Cancer
Mel Theo looks so darn handsome with his grooming😍
Shanagirl Glad to hear good news for you! Hmm I will have to look up the collage between my thyroid meds and treatment , ugh. I am currently using biotin not sure if it has changed much.
Mara Sounds like your having fun with the new vac. Hope the kitties adjust to make it a little easier for you.
intlight Love the pic, you both have beautiful smiles. May you spend many more happy years together.
threetree Yikes I hope you feel better this week..always something!
irish Thanks for the positive boost. I did have a nice weekend and the weather was gorgeous! I'm right behind ya with the PET. MO decided on PET instead of bone scan and I plan to call tomorrow for an appointment. In your pocket tomorrow❤️
tanya Stay cool, hope you get some much needed rain this week.
Have a restful night ladies.
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
Tanya, I like the robot vac quite a bit, I did use it to clean out underneath the sofa and when I was done with it, nice to be able to send it to charge for a bit. I do put the charger and vacuum away when not needed. I also took care of vacuuming the kitchen and bathroom at the same time the living room got the robot vac done and mopping with my mop and using my sock mops to dry it up. I usually clean with enzyme cleaner, vinegar and some water in a spray bottle, makes the place smell better.
Re: My Husband, My Life, My Love, My Family, My Cancer
Irishlove in your pocket for your pet scan tomorrow.
Intolight happy anniversary.
Mara I’ve had that robot vacuum in my thoughts for quite awhile. I would love to set something up and it cleans without me doing anything. Sounds like a dream!!!
It’s hot hot hot and we haven’t had any rain in over 3 weeks I think. I do the cat bowls and plants early morning or evening.
enjoy your day
Tanya
