Best Of
Re: Can we have a forum for "older" people with bc?
Sandy -happy to hear you were able to reschedule your medical appointments with minimal delay. But the fire at the hotel is just awful. You have been through so much. Good luck with a relatively smooth move and hopefully the kitties adjust to your next home. Crosby’s Kitchen sounds amazing - I may need to look into that spot.
Cindy - you are much braver than I. Gators scare the heck out of me. There is no way I’d be out walking around late at night. Although it sounds like you startled the armadillo. Glad to hear the dental work fits correctly as this has been quite a saga. Stay safe with the rain and flooding.
Petite - I went off Anastrozole (Arimidex) just about a year ago and didn’t experience any side effects other than I felt my mood was a little better. My current oncologist is on a mission to get me back on AI or Tamoxifin but I am definitely resisting. I don’t believe it offers much benefit for me with Stage 1, Grade 1 and low risk Mammaprint. The 5 year mark is end 2025. So it doesn’t seem worth it to me to go back on it when I complete chemo as I would only be on it for about 16 months and last time it took me almost 6 months to adjust to the side effects. My mental health is much better without it and that is a huge benefit for me.
Betrayal - sorry to hear you had a set back with the pain. I hope the OTC meds and icing can get you through this phase quickly. You certainly deserve a smooth recovery after all you’ve been through. Side note - I am taking Claritin for the Neulasta pain and while I still feel some discomfort, it is tolerable.
MM - thanks for the empathy. I’m grateful that my doctors are optimistic but it is frustrating that I have little to no interest in doing anything. I just want to sleep for the first two weeks of the three week cycle. Each cycle wears me out a little more but I know it won’t last forever and then I can work on getting my strength back. Yesterday was a rough day with stomach issues, pain and total exhaustion. Today is a little better.
Carole - happy belated birthday to your DH. I’m amazed at all you get done at the resort.
Cool weather is starting out our week but temps in the mid 80’s are expected by weeks end. I need to probably go back to the GYN Onc to deal with a granulation (healing tissues) from the hysterectomy. I just need to make sure I can stay awake for the appointment. DH will drive me since it’s a 45 min. - 1hour drive depending on traffic.
Have a good week!
harley07
Re: Just diagnosed with ILC mets
We're so sorry to hear this, @laguna24, we're thinking of you!
Re: Calling all TNs
@dawn68 I'm sorry you are dealing with recurrence especially after breathing a small sigh of relief after the 5 yr mark. I totally understand as I had a recurrence at the 4.5 year mark and I thought I was nearing a little breathing room only to be drug back in.
For my initial recurrence in 2020 I received Gemzar, Carboplatin and Keytruda cycled in every 3rd week also. In 2020 the standard of care for keytruda was not a year, I believe it was around 17 infusions for me. However I had my last recurrence again in 2022 and sought out another opinion by a specific TNBC MO in NY who has done lots of research in TNBC. She said that their regiment would have been for me to continue on Keytruda for a year as your MO is recommending. I am currently on Keytruda again with Xeloda and I have been holding steady for almost two years now on this treatment.I feel confident that it is helping to hold me stable with no SE's so far.Keytruda is quite an amazing therapy as it has now been approved to be used in 17 different types of cancer.
I think at this point you can't focus on the 5 year mark being there is nothing you can do about that now. I don't know if there is an exact truth to this but I was told it was a "good" sign that it took that long for my cancer to return. My MO feels it's a sign that it is a slow grower and so far it really has been. This recurrence for me is a grade 2 as my two previous were a grade 3, so a little less aggressive.
Well I am wishing you all the best as you begin treatment and fingers crossed that your cancer will be destroyed for good! Sending you positive thoughts and strength, hugs.
cookie54
Re: Calling all TNs
Hi everyone, new to this thread. I'm TN and now MBC, with cervical spine Mets. My recurrence was quick, only after 6 months from surgery and I was still on Keytruda. I was only off Xeloda for one month before it came back… UGH! Same breast and with spreading to the skin. I have been on Enhertu for the last 6 months which was working, but my recent MRI shows progression in the breast so now I'm being moved to Trodelvy - which I have high hopes for based on what I have read. Has anyone else or is anyone else on Trodelvy? Curious about your experience. Thanks all.
Re: Just diagnosed with ILC mets
ok. After multiple tests I have mets to my bones, liver, stomach and possibly peritoneum. More than I thought at the beginning of this journey. Interestingly enough my bone scan as well as my FDG PET states no bone mets, but my Chest/ Abdomen/Pelvis CT shows mets all over my skeleton. I know with LBC it’s a problem. Starting Letrozole today with Ribociclib in a week or so (upon processing through my insurance and specialty pharmacy).
I wish you all long life and Thank you for your support
laguna24
Re: Starting Chemo April 2024 Support Thread
Aww, it's so good to hear things are on the up for you, @halyy2024! We're glad you found this supportive community as well. 🤗
Re: My Husband, My Life, My Love, My Family, My Cancer
Hi ya'll. In pockets for all your needs and may the scans improve greatly. I am barely eating due to GI issues, so today was even more difficult with pet scan tomorrow. Poured a Boost, took a sip, remembered it was a no-no, dumped it out. Poured cranberry-grape and remembered can't have that either. My brain, she are no good. Water sure is tiring. Gee whiz the kids then baked a cake. Not fair. LOL
I stick to my DYson. Niece has 3 dogs and one had an accident on the floor. Well….she came home to the Roomba having spread it everywhere. It took days of carpet cleaning, floor cleaning and wall cleaning plus disinfectanting. You do have to watch out for major water or liquid spills also. What a joy to have one if you can. Please do a voodoo or war dance or something for us to receive rain. My plants and the outside critters are suffering. A crow jumped into the birdbath and gulped the water down. Gotta try to sleep but anxious about the scan and if they can find a vein. Night all and God bless you………….
Re: My Husband, My Life, My Love, My Family, My Cancer
@threetree as another member of the 'your sodium is too low' club, I hear you. I've been a salt fiend for as long as I can remember (and yet the British NEVER salt food, drives me insane) and yet my sodium has been bumping along in abnormal territory for oh, 6 or 8 months now. I dont know what it will take to pull it up,but I do drink electrolyte drinks to get all the salts (Ive got bigger problems with potassium) and that seems to get my sodium up into marginally acceptable level. Ill try more olives, maybe a bit more salty Greek stuff like halloumi would help. We need salt for heart function, but I didn't realise so much was tough on the liver.
Sometimes I wonder if optimal for some of us is low for others and when we try to fix it, we are maybe 'normal' but it doesn't work for our body. I hope you find a different reason,though, seems awfully coincidental.
sondraf
Re: My Husband, My Life, My Love, My Family, My Cancer
I hope the salt thing can be figured out and I hope your liver is just persnickety. It’s been a lovely weekend weather wise , but I was just completely tired. I don’t know what the deal is but I was flat out no energy at all. I am so sick sick of being tired and tired of being sick. I don’t even remember how to feel good anymore. It’s depressing. Sometimes I can’t believe this has even happened to me. To us. All of us. Here. I hope you did something fun this weekend. With Theos new look comes a now attitude. Prancing around with his toys. Quite adorable. A small light in my days.
micmel
Re: My Husband, My Life, My Love, My Family, My Cancer
Mel Theo looks so darn handsome with his grooming😍
Shanagirl Glad to hear good news for you! Hmm I will have to look up the collage between my thyroid meds and treatment , ugh. I am currently using biotin not sure if it has changed much.
Mara Sounds like your having fun with the new vac. Hope the kitties adjust to make it a little easier for you.
intlight Love the pic, you both have beautiful smiles. May you spend many more happy years together.
threetree Yikes I hope you feel better this week..always something!
irish Thanks for the positive boost. I did have a nice weekend and the weather was gorgeous! I'm right behind ya with the PET. MO decided on PET instead of bone scan and I plan to call tomorrow for an appointment. In your pocket tomorrow❤️
tanya Stay cool, hope you get some much needed rain this week.
Have a restful night ladies.
cookie54