Best Of
Re: Elacestrant (ORSERDU)
intolight…I think I remember you when we were on Ibrance quite a few years ago….sorry you are having so many problems….bless you as the days go by for you
Re: My Husband, My Life, My Love, My Family, My Cancer
@threetree @irishlove @shanagirl In all of your pockets for the daily struggles you have been dealing with. Fingers crossed for better days ahead. Wrapping you all in a big group hug❌⭕️
cookie54
Re: Lymph Node Positive Survivors
7 out of 14 nodes, 3.5 years out, no cow dairy, try and eat more veggies and take various immune boosting supplements
Lily55
Re: My Husband, My Life, My Love, My Family, My Cancer
Shana - Thank you so much for your special note. I can really relate to your not having posted much lately either. I'm not sure just what happened with me, but ever since those shingles I had and my last set of fulvestrant shots, I'm just kind of a fatigued zombie. Can't really think and then when I start to read a paragraph about most anything, I get through a few sentences and then everything seems to fade and become a blurr in my mind and I realize I'm no longer taking in what I'm reading. Also just had some sort of bad gastrointestinal bug or bad food or something like that for the last few days, but I am getting better from that now. It's all just left me weak and brain foggy. I'm still getting most of my walking in though, thank goodness.
Shana I had read your last post about being so sick while you were in the car with your husband and I so wanted to respond, but that's when all of this seemed to hit, with seemingly no physical or mental strength. It's my "mental strength" that seems to be so lacking lately. I felt so badly for you and still do, as you are going through so much. I wish I could say more, but it would probably wind up just being an unfocused ramble at this point. I think the weather and the higher temps and humidity are contributing to all of this too - maybe for you too? We don't get what some do, but it has been warmer and muggier here than what I can easily tolerate (we've had some lovely days recently too). Just know that I am following along with what you post and have so much sympathy. Wishing you as nice a day as possible - I read that NJ is getting some flash floods? Take care and stay safe!
Re: Triple Negative Stage IV
@rlschaller @scgal08 My heart is heavy knowing that your both struggling with these skin mets. Rhonda prayers up that you get in this trial and that Eribulin will be the final drug to out once and for all! Fingers crossed that the PET is clean and stable. Rita I'm holding out hope that Trodelvy is combating these skin mets as we speak. Hoping that this last full dose and the last dose will be the key to a good response. I will always be here to listen and I will continue to pray for healing. Big hugs to you both.
I'm doing ok, we have been busy caring for my mil. However we were sent an angel on earth, a retired nurse to help us. We met her yesterday and she is a wonderful, caring, compassionate person. She will help with the insulin injections and any other nursing support we need. She literally lives a block from my mil so it is giving us some mental relief.
Wishing you both a peaceful night💕
cookie54
Re: Stage IV MBC Fitness
I had a brief trip to NYC and got lots of exercise navigating the airports, subways, etc. I'm still limping but the acupuncture and PT seem to be helping my hip. Now I have to turn around and fly back tomorrow b/c I have a consult at MSK. They couldn't get me an appointment during my planned trip, so I am sort of treating this one like a business trip.
Re: I’m on hospice - anyone else?
@kbl-thanks to you and your sister. It is a relief to get closure-to know that someone has died instead of left wondering. I pray you will continue to be at peace as you wind down this earthly life.
Peace to you, as well, Caryn.
Re: I’m on hospice - anyone else?
@kbl. I'm so glad your sister will let us know. Thanks for taking care of us.
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove sorry for your Amoxicillin mix up. My Onc Dentist has me. On it. For a week, maybe longer. He’ll do. Another 3D CT to see if It will be safe to extract the tooth. I’ve been very weak and tired on this antibiotic and hop I don’t have to do another. 7 days of it. I’ve had the big D but don’t know if it’s from suddenly being taken off the Verzenio & Xgeva, and still to my Fasoldex injection a few days ago.
@intolight oh dear girl I’m feeling for you also with your dental fears. I am so afraid of ONJ, as I know you are. I’m praying for you that your dentist will work along with your oncologist’s suggestions and medication changes.
@goldensrbest , @mara51506 thank. You for your words🩵.💕
