Best Of
Re: Can we have a forum for "older" people with bc?
Yup. Got the cast cut off yesterday. Then went down to the OT department and had a lightweight splint made. Had a late lunch, then showed up for podiatry early, but they called me in early. I have to wait a week for new orthotics. In the meantime she put some padding down by the tarsal metatarsal joint of the little toe. I looked that up. Parallel to a certain thumb joint.
Went home, A friend and I thought there was a meeting at church but not. My Visible told me to take it easy today. Doh!! I got through it without getting super tired. Still doing space bar with forefinger.
This is my last week with bike. Won't be getting it out unless in an emergency after this week, temps below freezing every night. 😪 Doctor and I discussed left thumb. Still don't know for sure. Wearing a splint on that hand all the time, too.
Glad for the negotiations on SNAP, but I could have squeaked by on Advantage Plan groceries and pantry.
Busy writing again, massive Bible study project. So glad for the cross-referencing and footnotes of Catholic Bible. We don't use a Concordance.
Meds safe expected today. I won't be keeping it in such an obvious place. So dumb!!
Cindy, will be adding your niece to my list of prayers, as well as wren and intolight.
mcbaker
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 I agree with what others have said. We all have a very hard decision about treatment when there is no finish bell. Like @sf-cakes said. "The not knowing what the next treatment will be like, what will the side effects be, will it even work, etc, is the fear I have each time I'm waiting for scan results."
I'm on Enhertu but having slow progression. I just had a PET scan yesterday to verify that. I've already gone through most of the targeted therapy so I don't know what's next if treatment changes. I've never had the regular chemo so I'm having similar thoughts and not sure how much more treatment I can tolerate. I'm afraid of how things progress without treatment though so it's not a good feeling at all. This disease is terrible. I guess the question I have is at what point to transition to hospice. These things freak me out so about the only way to deal with it is stay focused on today, this week.
Update PET shows progression, increase on all liver lesions...
mkestrel
Re: How are people with liver mets doing?
I'm supposed to have a consultation with an oncological liver tumor surgeon later this morning, but not sure I'll make it, due to worsening digestive problems ( partial bowel blockage?). He's supposed to talk to me about the different treatments and possibilities. I've had this appointment for awhile now and really want to make it. A friend will drive me, so that's a big help.
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 You're not bad at all! You are in charge of your life and you will follow your heart when the time comes. I haven't thought that far ahead yet but have gone through the big guns in earlier stages. But as you said as each year goes by we all are a bit more worn down. We'll all be in your pocket for the 21st and whatever the future holds♥️
@tanya_djamila Beautiful pictures! Wonderful family memories for all.
@eleanora In your pocket for RO tomorrow🤞
@irishlove Glad your not freaking out and hope that these skull findings/met is not considered a progression. You go through so much daily it would be nice to catch a break on something. Hugs.'
@threetree Sorry you're not feeling great and have tingling down your legs, I hope you get some answers and start to feel better soon. Fingers crossed .
@mara51506 As always you're our energizer bunny that helps u all stay motivated for chores and cooking. I do hope you get out for your upcoming birthday that restaurant sounds enticing. Keep us posted, you deserve to celebrate you!
Hi to all here, hope we all sleep well tonight.💕
cookie54
Re: Faslodex Girls Thread
Threetree my discomfort is almost gone. Lots of heat and glute stretches and exercise has helped. My GP wants me to get the covid shot as well. I am now so hesitant. I just can't decided what to do. I have had it in the past with no issues. Same with the flu shot. I am nervous about doing it. I messaged the oncologist and their answer was follow th CDC guidlines.
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 - Candy, I would underscore what all the others have said. You are not bad, and I can totally understand your thoughts and can't say that those wouldn't/won't be mine too. I did the 4 dose dense red devils and the 12 Taxols, and one of the ways I got through it was knowing there was an end to the nasty stuff in sight. If I didn't know there'd ever be an end to a chemo treatment, I honestly don't know that I could or would want to do it. Sending a hug too.
Re: My Husband, My Life, My Love, My Family, My Cancer
Good points, ladies.
Seeq- I agree to your statement "I just hope I recognize when enough is enough before I get to that point". And sf-cakes, when you said "when I had chemo, I'd had exactly zero treatments and my body was as strong as it was ever going to get". That was me. I was a newbee at cancer. I did have my mastectomy surgery just prior to starting chemo (the red devil), but otherwise I was healthy (or so I thought). I feel much less healthy now.
I guess I just have to wait until that point of decision, but I cannot see myself valiantly struggling thru harsh chemo again. I don't know if I have it in me anymore.
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 No, of course you are not bad. It's a decision we'll all have to make. It would be nice to look into the crystal ball to see how many years - and what kind of years(!) - a treatment will give us to help us make our decision. We've seen some struggle with harder and harder treatments until the inevitable end. I know that's not what I want. I just hope I recognize when enough is enough before I get to that point.
seeq
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 — I did the "big guns" eleven years ago when diagnosed with Stage III triple positive cancer. Four dense doses of Adriamycin + Cytoxin and twelve doses of Taxol + Herceptin + Perjeta. It wasn't a walk in the park, but I worked through it. Of course, I was 47 back then and everyone responds to chemo differently. My next-door neighbor barely made it through two doses of Enhertu before she threw in the towel. She ended up passing six months later.
You guys have been through so much treatment that I totally understand why you wouldn't opt for IV chemo. There's no shame in saying "enough is enough." It's good to know your limits, and I'm never surprised when some of the ladies here opt for hospice over further treatment. Some of the hospice ladies have lived much longer than they expected and I'm sure they felt better being off treatment than on. Just a thought from a lurker.