Best Of
Re: How long have you been Stage IV?
@ssales13 Wow! That is excellent news, Stacy. So happy for you. Wishing many more great scans!
Hugs, Pam 💗
Re: How long have you been Stage IV?
@livinglifenow , @eddiej , @AJ , @tougholdcrow Hey ladies I went to my doctors appointment yesterday and she said my PET scan was ok and didn’t show any progression from the last one.. So she said I’m stable and that at the moment they would shelf the idea of surgery for right now and now I go every 8 weeks to see her or nurse practitioner and get my Xgeva shot and PET scan every 4 months. I’m thrilled and relieved. I hope everyone is doing ok. I’m always praying for everyone on here.❤️
ssales13
Re: How long have you been Stage IV?
@tougholdcrow , @eddiej Thank you ladies! @eddiej I’m in MD so not too far from you and yes it seems we do have the same sort of protocol! It’s nice to know. Have a great evening ❤️
ssales13
Re: How long have you been Stage IV?
@ssales13 Great news!! So happy to hear this and pray it continues for years to come ♥️
I get my scans every 3 months and my Xgevaa shot was switched to every 3 months too after this recent positive scan. Sort of same protocol… we are not alone 🤗
it’s 5:16 in NY and dark outside… winter has arrived… all good! I love winter ❄️ .
Hope everyone is doing well! Stay cool! xox juliana
eddiej
Re: My Husband, My Life, My Love, My Family, My Cancer
Had my post scans follow-up with MO today. Still stable although I have mild pneumonitis (symptom free except when I first wake up) and a small lesion in kidney. Since I only have one kidney, my internist has referred me to urology. MO wants to keep me on Ibrance and anastrozole and monitor. She did order an MRI of lower lumbar area since I have increased pain. She suspects nerve impingement since bone scan is stable. She hopes the MRI will help my pain management doc with treatment recommendations. I was kind of surprised that she didn’t have me hold my Ibrance for an additional week as my WBC was 2 and my ANC was .96. No wonder I’m pooped.
Here for pocket duty for all in need.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mkestrel I'm sorry to hear your PET showed liver progression, it just stinks! Wrapping you in a big comfort hug❌⭕️
cookie54
Re: Suffocating in the waiting...
Thank you, it has been encouraging reading some of the posts knowing I am not alone.
Re: Suffocating in the waiting...
Hi @mrsnewbold0525
We're so sorry you’re going through this — the waiting and uncertainty are truly the hardest part. We understand that here! A BI-RADS 4 means they just need a closer look; many turn out benign, especially with dense breasts. You’re absolutely doing the right thing by following up and advocating for yourself. Although it's more than understandable to worry, we encourage you to try to reduce the emotional stress however you can until you get the facts.
Try to hang on until your ultrasound — you’re not alone in this. We’re here for you, and we hope you get clear answers and peace of mind soon. Sending love and strength to you and your husband. 💕
Re: Abemaciclib Verzenio for Stage IV
11-05-2025 Hi @seeq @dutchgirl11 @marcials1 @kathrynw1thasea @kotchaj @marcials1
@tbos805 .
Just want to thank you all for speaking of your experiences with drug Verzenio.
Right now, I'm on anastrozole only (recently dx'd malignant pleural effusion). But have finished heart and blood work-ups and am due to visit the onc office next week to determine if they want me on this medication or not.
I'm really, really, scared about the drugs because throughout my life I've been so allergic, and chemically reactive to stuff. Then add onto that, being in my early 70s what's that going to cause?
Thanks again, and looking forward to conversing with you all.
