Best Of
Re: Signatera test -pros cons
I just wanted to let everyone know that I just got the results of my July Signatera test—negative! I am hoping this means that the 2.8 SUV on my PET scan, done the day before the Signatera test, is post-radiation inflammation and/or bone remodeling. Seems logical to me.
Now just hoping the switch from Anastrozole to Exemestane makes me feel a bit less "blucky." 😜 Just started it a week ago, so it may take a while for the Anastrozole to clear my system.
Hope everyone had a great weekend and is enjoying this lovely day!
Hugs, Pam 💗
Re: Just diagnosed, feeling shocked, anxious, lost
@baffled26 glad to hear your update! Managing the appointments can feel like a part-time job in itself, but it definitely sounds like you're doing all the right things.
Just wanted to put a plug in for the online support groups, and the cohort groups here (October 2025 Surgery, etc). Both have been very helpful to me. ❤️ Good luck!
kks_11
Re: Ibrance (Palbociclib)
Hello Ibrancers,
It’s been a while since I have checked in. This thread seems so quiet now, unlike when I first joined in the spring of 2021. I wonder if it is because those were Covid years and we were all home and now everyone is back to being busy and out and about, or if there are fewer of us. I was going to say I hope everyone is managing, but really, I hope you all are thriving.
I started my 54th cycle of Ibrance last week and am grateful to still be taking it as my first line. I also had a PET this week..: maybe my 12th one? Things are stable but they noted hepatic steatosis. I googled it and it is fatty liver disease. Has anyone else developed this while under treatment? I’m also taking Letrozole and read that aromatase inhibitors can cause this. Wondering how serious this is… anyone have any experience with it?
Re: My Husband, My Life, My Love, My Family, My Cancer
Well, pretty grey and rainy this morning, no snow yet, that will be this weekend but I am sure it will melt as we will go above freezing, no worries here.
Organized some of my pantry items scattered about and put into a container, did not think and put them in two containers, when get home, take out all the food and separate the totes. No big deal.
Have a routine echo as well today at 1 pm, Paratransit coming at 1230. Taking an ondesetron or Zofran. 4 mg. Going back to those with scans that require contrast. Probably take about an hour before the ride is coming.
I am also wondering when this referral with my neurosurgeon is to take place, I have not received anything. I have another appointment with RO this month and I do not know who to call. Not feeling bad at this point anyway but knowing what is to go on would be better. Would also let me know if I need to request services with the social worker who calls next week.
I am surprised to have found letters that said I have to pay for ambulance ride that happened back in sept. Apparently they lapse after a year. I just have to send an email with a picture proving my disability, luckily I did not throw it out since it needs to be the statement including the day I rode in the ambulance. I will take care of that later.
Had a pitiful egg done in the minigriddle, I accidently sent half of it spilling out of the minigriddle so nice mess to clean but ate it anyway.
Re: STEAM ROOM FOR ANGER
Cancer is bad and even as you get through things there is a fear of it coming back again to get you again and people you know who had worse outcomes as well. The support of others is what helps and trying to distract with the nicer things in life and so you can get your mind off it for a bit helps.
Re: STEAM ROOM FOR ANGER
Totally agree this takes a huge toll on mental health in ways few can understand. I've been sober for many years but did just start seeing a counselor again to deal with cancer-related PTSD. Ugh!
kks_11
Re: Abemaciclib Verzenio for Stage IV
This is the investigation of the year! Started this morning with bite of banana and then premier protein drink. I am trying this for next few days. What an odd thing. But if it works ! Stay tuned. Thank you for this suggestion
Re: Suffocating in the waiting...
@mrsnewbold0525 I’m really sorry you’re going through this — you’re not alone. The waiting and uncertainty can be incredibly tough. I don’t post often, but I felt compelled to share this: please consider pushing for a breast MRI or a biopsy now, rather than waiting for an ultrasound that might be inconclusive and delay further testing.
I also have category D dense breasts, and I once read that detecting abnormalities in them is like searching for a snowflake in a snowstorm. No one ever told me that mammograms and ultrasounds aren’t reliable for dense breast tissue, and that MRIs are recommended instead. If I’d known, I would have requested annual MRIs instead of relying on standard screenings that weren’t designed for someone like me.
I truly hope your results are benign. You’re in my thoughts.
harrow
Re: Planning surgery for November 2025? Join the waiting room for support.
@ltam16 We are thinking of you today! Check in when you get a moment to let us know how surgery went and how you're feeling.
Sending gentle hugs!
—The Mods
Switching from Letrozole to Tamoxifen
Hi All,
My sister was diagnosed with ILC stage 2 in October 2023. She had double mastectomy and she been on anastrozole and letrozole since then. She is post-menopausal. Recently side effects of AIs been hard. Her oncologist recommended switching to Tamoxifen. From what I have read Tamoxifen isn`t very effective for post-menopausal women with ILC. Does anyone have been in similar situation, or they have read any recent research on it that they can share. Appreciate your help