Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Just saw your comments about your visual disturbance this summer. I was very sick with diverticulitis and colitis from June until a week or so ago and missed much of what was posted. So glad you have improved. I have had double vision since the end of last year and none of the doctors I consulted could find a problem. Brain MRI from February 2025 was clear. Head CT was clear. Eye exams were clear. Just received the report of my MRI from 2 days ago which notes the following: "There is a 5 mm focus of mild diffusion restriction within the anterior right centrum semiovale with associated FLAIR signal hyperintensity, new since the prior examination. There is no associated abnormal enhancement. " It goes on to say that it is most likely a "subacute infarct". Not sure whether I've had a stroke or the cancer is in my brain. As usual, my MO is nowhere to be found.
Anyone have any idea what this might mean?
eleanora
Re: My Husband, My Life, My Love, My Family, My Cancer
Still sloppy snow here but it will melt as well. Slept OK, lots of little dreams which I enjoy.
I am doing up a meat pie to fill my belly, turkey pot pie. Have some peanut M&Ms, maybe 4 to 6. Nothing else from the jar to avoid being up all night. I will add some caesar dressing and some salt. Very basic. I am still working on the sink, taking breaks here and there, laundry is also being done as well. I am finding I am exhausted most of the time and that makes housekeeping sporadic at best.
I do not have much else to say right now, hope all are having a good day, in pockets for those who need me.
Re: Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Hi livinglifenow…im sorry aboutr your recurrence…Im wishing you all the best….
as stage 1 myself, I was contemplating getting a mastectomy, vs lumpectomy…so i wouldnt have to get radiation…i notice you had radiation with your mastectomy…may I ask why ?
Re: How long have you been Stage IV?
Hey, @eddiej and @tougholdcrow !
Hope all is well with you and everyone else on this thread. I can’t believe 🦃 day is just around the corner.
So far I’ve been responding very well to treatment. I think both of my oncologists were expecting progression on my last PET scan, but everything was great and my Signatera test was negative, as well. I don’t know that I’m “exceptional,” but would love to be so someday!
@jensgotthis Congrats! So happy for you!
Everyone have a great week!
Hugs, Pam 💗
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
I really wish we would’ve met under different circumstances as well. Yeah the cryfests and panic attacks have been the new norm now..
Due to my tumor’s high proliferation, everything happened in an instant. They told me I was fast to act but the cancer was faster.
I will try to join the young patients support group. I live in Germany so hope I’ll make it work with the time difference. Thank you all for suggesting this.
Sending you positive thoughts,
Elena
elena_p
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl thanks for kind thoughts and I hope you get to go see the babies asap
@mara51506 thanks for your supportive ear.. I'm nervous about side effects but everyone responds differently so we'll see what happens. Enjoy whatever interesting meal you invent today
@rischaller thanks for kind thoughts. So far I've been pretty tolerant of the treatments but I'm not looking forward to new side effects 😩
@irishlove thanks for prayers and I will post pic of the mountains as soon as I can go..
mkestrel
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove Wow, that's a long wait time for your DS. I'll pray that they can move it up. I will pray for him, and for your Ibrance that it will work well with low SEs. I took it for four years and it did well for me.
The cold is sneaking in with snow on Thursday. I am praying it is minimal as we have important medical appointments.
Sending love and hugs.
Re: Planning surgery for November 2025? Join the waiting room for support.
I'm home after SMX yesterday. Almost no pain, except when I move wrong and irritate the drain, which is super painful for about 15 seconds, then calms down again.
What I didn't expect was a ton of nausea and some tossing of cookies. Not sure if that's just my sensitive body, but 24 hours later, I'm still slightly queasy. It's manageable, though. I stayed overnight as per the plan, and I'm glad. They took good care of me.
I was a weepy mess for weeks before the surgery, but calm afterwards. Go figure. It's done now. Moving forward.
I'm very grateful to have such a good surgeon so close to home.
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
Hi @elena_p ! I am 40 and got my stage IV diagnosis earlier this year. Agree with lots of cryfests! I know the mods mentioned the support groups - there is one specifically for younger folks with stage IV and it is really great - I highly recommend it.
cskinner
Re: Planning surgery for November 2025? Join the waiting room for support.
Surgery tomorrow Nov 18, Invasive lobular 8 out of 9 Nottingham scale. Large lumpectomy right side. Left is benign for now. Dreading surgery and looking at the right half breast after surgery. I’m team girl even grew up in a pink room.