Best Of
Re: Mucinous Carcinoma of the breast
Voraciousreader,Thank you so much for sharing so much information about your situation. I'm so sorry you're having to go through something like this again after so much time and so much treatment.
By the way, voraciousreader, you say your PR is negative, but then in your signature you say it's at 100%. My PR is very low in some of my tumors, and I know that's not good at all. Do you know why it's not good? Maybe OBSOLETE knows.
I recently read that hormonal tumors tend to recur after a few years. I was surprised because I thought we had a better prognosis because they're hormonal.OBSOLETE, What do you know about this topic? I really appreciate all the information you're sharing.
I don't go here much because it makes me very sad.I'm extremely tired, and my arm and shoulder haven't returned to normal after having the sentinel nodes removed.
A big hug, good health, and lots of encouragement.
Re: How long have you been Stage IV?
@radiation_cinderella Congratulations! It sounds like your treatment is treating you well. So glad to hear you are NED. It’s a great feeling, isn’t it? And I am truly thrilled when I hear that others are having good results. It gives all of us hope.
Have a fantastic day!
Hugs, Pam 💗
Re: How long have you been Stage IV?
@livinglifenow Thanks for sharing the happy news :)) congratulations on the good results <3
I also just did my bi-annual PET/CT and I'm still doing well, NED :))) very happy! Taking my faslodex shot on Sunday and starting my 20th Kisqali cycle on Monday, then xgeva a few days afterwards.
I wish you all a lovely day xx
Re: Full mastectomy and lymphectomy coming up advice needed!
Hi @mabel2310
Welcome to the forum. We're glad you have found us.
Congratulations on getting through your chemo!!!!! Chemo was much harder for me than any of my surgeries.
It is frightening when you have never been through any surgery. I think the 'idea' of the whole thing is worse than the reality. Honestly, the worst part of either of my mastectomies was the drains. Dealing with them was just annoying. Follow the instructions they give you on movement and exercise your arms as directed. If you start reading threads on here, you will get a lot of information about what else to expect.
You WILL get through this too! Hang in there! We're all pulling for you!
Take care.
mandy23
Re: Full mastectomy and lymphectomy coming up advice needed!
Hi Mabel 2310!
There's no reason to be scared. I had a double mastectomy with reconstruction and left-side lymphadenectomy (23 lymph nodes removed) in January 2023. I was very anxious up until the anesthesia. When I woke up, I was in the ICU, and I was moved to a regular room just two hours later. I didn't experience any pain or anxiety related to the surgery itself. Most women who had surgery on the same day were able to go home the following day. I stayed longer, not due to the surgery, but because I developed adrenal insufficiency after immunotherapy. The pain can be managed with paracetamol; I took two paracetamol a day for about 4–5 days.
You will be instructed to sleep on your back for several months after the surgery. The best decision I made was to buy a pregnancy pillow (I think I received this advice on this forum). It helped keep me on my back while sleeping and was comfortable to use when I later worked on my laptop.
I didn’t push myself at all until the drains were removed. If you have any questions, feel free to ask. I’m more than happy to help!
xo
nume
Re: I’m on hospice - anyone else?
@cookie54 Thank you. Everyone’s comments are giving me so much comfort.
My daughter, grandson, and son-in-law are coming today to stay close by for three days. I’m very happy.
kbl
Just diagnosed
hi my name is Kim and I was just diagnosed with invasive ductal carcinoma. I’m a grade 1 but haven’t been told my stage. My coordinator said it comes later. My tumor is 1.1 cm. I have an MRI next week then meet with the surgeon on the 13. I’m terrified and find myself not able to eat or sleep and cry. I watched my mom die from liver cancer and my brother from colon cancer. I’m trying meditation and have an appointment with counseling next week. I’m so lost.
hope3736
Re: I’m on hospice - anyone else?
@kailag I want to thank you so much for letting us know. I now how much harder it is on the family, and to take the time and let our BCO family know helps us so much with closure. May @exbrnxgrl rest in peace, and I’m so glad you were able to be with her. Hugs to you all.
Kris
kbl
Re: So...whats for dinner?
Carole, The ravioli is a good base for so many different meals. Carpet cleaning is definitely a chore I don’t look forward to.
m0mmy, The country style ribs sound yummy.
Nance, You’ll have to make an evening run to the grocery store if the workman are around for a few days. A walk in shower is a necessity as time goes by.
Wally, DH claims that microwaved scrambled eggs have a more uniform texture but don’t have the flavor from the frying pan.
Dinner tonight was apple juice and crackers while waiting for a surprise midnight MRI.
maggie15
Re: My Husband, My Life, My Love, My Family, My Cancer
My friend that I spoke of with MBC, and was put on Hospice, died today. She was diagnosed MBC in 2007 or 2008. Bone-only for several years. Went to liver in 2019 or so. Went on Hospice July 20 and gone July 30. POA told me her last scans a month ago were stable. I am still unsure what went wrong, but it doesn't matter now. May she Rest in Peace.