Best Of
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
That is sad about Caryn. Always ambivalent about missing people and feeling glad they are beyond pain.
Re: BCO In Memoriam thread, Part 2
Very sorry to hear about exbrnxgrl.
Also, can't believe August will be a year for losing my sister. I honestly just cannot and have not processed it. At all. I really miss her, and I miss trading posts with a lot of you that used to be here more frequently. Stay well.
Re: BCO In Memoriam thread, Part 2
May exbrnxgrl -Caryn rest in eternal peace. My sincere condolences to her family and friends. Her words of wisdom will truly be missed here.💔
May Derrice rest in peace also, I was not fortunate to know her. Another beautiful soul lost to this destructive disease, breaks my heart every time.
cookie54
Re: BCO In Memoriam thread, Part 2
Very sad news, indeed. My sincere condolences to her family and friends.
Full mastectomy and lymphectomy coming up advice needed!
Hi all
I'm new to the group. ER+ breast cancer stage 3 at 41 years old. I'll be having the last of my 7 rounds of chemo tomorrow and then hopefully will be able to have surgery. I'm scared of the surgery - never have been an inpatient in hospital before let alone gone under the knife. Any advice welcome on what I can do to prepare, what to expect and words of encouragement. How was it all for you?
Love to hear your experience and receive your advice.
Thank you 😀
Re: Mucinous Carcinoma of the breast
Voraciousreader,Thank you so much for sharing so much information about your situation. I'm so sorry you're having to go through something like this again after so much time and so much treatment.
By the way, voraciousreader, you say your PR is negative, but then in your signature you say it's at 100%. My PR is very low in some of my tumors, and I know that's not good at all. Do you know why it's not good? Maybe OBSOLETE knows.
I recently read that hormonal tumors tend to recur after a few years. I was surprised because I thought we had a better prognosis because they're hormonal.OBSOLETE, What do you know about this topic? I really appreciate all the information you're sharing.
I don't go here much because it makes me very sad.I'm extremely tired, and my arm and shoulder haven't returned to normal after having the sentinel nodes removed.
A big hug, good health, and lots of encouragement.
Re: How long have you been Stage IV?
@radiation_cinderella Congratulations! It sounds like your treatment is treating you well. So glad to hear you are NED. It’s a great feeling, isn’t it? And I am truly thrilled when I hear that others are having good results. It gives all of us hope.
Have a fantastic day!
Hugs, Pam 💗
Re: How long have you been Stage IV?
@livinglifenow Thanks for sharing the happy news :)) congratulations on the good results <3
I also just did my bi-annual PET/CT and I'm still doing well, NED :))) very happy! Taking my faslodex shot on Sunday and starting my 20th Kisqali cycle on Monday, then xgeva a few days afterwards.
I wish you all a lovely day xx
Re: Full mastectomy and lymphectomy coming up advice needed!
Hi @mabel2310
Welcome to the forum. We're glad you have found us.
Congratulations on getting through your chemo!!!!! Chemo was much harder for me than any of my surgeries.
It is frightening when you have never been through any surgery. I think the 'idea' of the whole thing is worse than the reality. Honestly, the worst part of either of my mastectomies was the drains. Dealing with them was just annoying. Follow the instructions they give you on movement and exercise your arms as directed. If you start reading threads on here, you will get a lot of information about what else to expect.
You WILL get through this too! Hang in there! We're all pulling for you!
Take care.
mandy23
Re: Full mastectomy and lymphectomy coming up advice needed!
Hi Mabel 2310!
There's no reason to be scared. I had a double mastectomy with reconstruction and left-side lymphadenectomy (23 lymph nodes removed) in January 2023. I was very anxious up until the anesthesia. When I woke up, I was in the ICU, and I was moved to a regular room just two hours later. I didn't experience any pain or anxiety related to the surgery itself. Most women who had surgery on the same day were able to go home the following day. I stayed longer, not due to the surgery, but because I developed adrenal insufficiency after immunotherapy. The pain can be managed with paracetamol; I took two paracetamol a day for about 4–5 days.
You will be instructed to sleep on your back for several months after the surgery. The best decision I made was to buy a pregnancy pillow (I think I received this advice on this forum). It helped keep me on my back while sleeping and was comfortable to use when I later worked on my laptop.
I didn’t push myself at all until the drains were removed. If you have any questions, feel free to ask. I’m more than happy to help!
xo
nume