Best Of
Re: Not sure what all of this means
Thank all of you. I was thinking I would see if I could record it, my app will transcribe it. Been reading about lumpectomy & radiation treatment vs. having a mastectomy.
I will look into the virtual support group. Thank you again. I'm not a social person so knowing I have people to "talk" to means a lot
july31
Re: My Husband, My Life, My Love, My Family, My Cancer
Irishlove - if only your sister could walk in your shoes for a day or too. What a gut punch to lose her support. Our oldest daughter always asks me how I’m doing. Our youngest never asks but she sees my demise on a regular basis (at least a couple times a week).
It’s ironic that we all complain about our arthritis getting worse on our meds yet there is never any clinical correlation! When I saw my oncologist last week I complained about the anastrozole affecting my joints. She negated that theory and said that drug makes for a more generalized ache all over. Not sure I believe her….
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 - Yes, those anti estrogen drugs really do promote and aggravate arthritis! I feel like my parents seemed to me when they were 10-20 years older than I am now. I think no matter what age we are, these drugs makes us feel much, much older. It's such a shame!
Re: Phesgo vs. H&P side effects
I did not suffer fatigue when I switched to Phesgo, but I did feel like those minor Herceptin side effects which had subsided, came back again. Those were the itchy skin and constant runny nose/watery eyes like I had at the beginning of Herceptin IV.
I was also getting a reaction at the injection site (I’ve described it in other posts here) if the injection was given at the top of the thigh like the literature recommends the nurses do. Redness and and even stiffness of the muscle….this did not happen when I was injected on the side of the leg.
Glad to hear you are feeling better now with IVs.
olma61
Re: Nervous about switch from Letrozole to Exemestane
I’m so glad to find this thread! I have been on letrozole for over 2 years now and the joint pain, fatigue, bladder leaks, and trigger finger are getting worse. I took a drug vacation for my 3 week actual vacation and was feeling much improved. I even stopped worrying about having extra bladder pads in my purse.
Now back in the US and back on letrozole for just short of 3 weeks, all the side effects are back. So what are the side effects of exemestane for the former letrozole ladies? How long did it take before you knew what side effects you were getting?
Re: Nervous about switch from Letrozole to Exemestane
Today is my first day on Aromasin/Exemestane I switched from Anastrozole. I started Anastrozole in Feb 2025. Lots of side effects, hair loss, fatigue, join pain, just to name a few. I took a 2 week holiday and felt better. Restarted Anastrozole and the side effects came back. Switched to Aromasin today. Cautiously optomistic se's will not be as bad on Aromasin.
Re: I’m on hospice - anyone else?
@kbl Very nice photo. Thank you. I'm delighted that you spent this weekend together. Beautiful moments for your grandson.
Re: I’m on hospice - anyone else?
@kbl What a beautiful family picture. Grandkids are such a special blessing. Thank you for being so honest with us.
Re: I’m on hospice - anyone else?
@kbl Beautiful picture. Glad your grandson is able to grasp what is happening and spend precious moments with you.
Back to BC.org after a Recurrence and now Stage IV
Hello ladies and gentlemen.
I'll keep it brief for now however, i'm hoping I can navigate this site as well as I did first go round. The website has changed A LOT and I don't know what I'm doing quite yet.
I'm going to see if they archived my old stuff. It was a LOT. I was here in 2009 or 10 as Stage IIIc. Was NED until Spring of 2023 (YES—12 plus years) when I felt a rib pop. Lots of tests and a diagnosis. Mets to the bones. And that's where they stayed until this winter when they jumped the BBB and into my brain. That's where I am now. Currently on Xeloda which long story short, my Oncologist didn't think there was a benefit to taking (WRONG), and my last CT this week in fact, showed stable Mets and healing fractures. Lots of disease still all throughout bones.
That's it for now, but I'm wondering if there's anyone still with us from back in those days. I've lost some friends from that group, but there's one still here and thriving!
Hang in there folks. Hope to get to know you.