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Hello CK55,

I am very new to this blog and was recently diagnosed with ILC, last week. I had a mammogram, ultrasound and biopsy. At first the surgeon said it was a good prognosis as I have a low grade 1, ER+\PR+, slow growing at 5%, HER2- and said she recommended a lumpectomy with a few nodes dissection. The surgey would be out patient and a quicker recovery. Also said hormone therapy but if nodes were negative probably no radiation. But after the MRI with contrast she called me yesterday and informed me that the tumor is 9cm in size and spread out to my right breast. She said the MRI showed some nodules on left as well. Now is recommending a right breast mastectomy and ultrasound with possible biopsy to my left breast. I was in shock and couldn't think of anything I needed to ask before she hung up the phone. Now I am left bewildered and confused. I didn't think I would be getting a mastectomy and the more I read the more I feel I need to talk to someone who has been in my shoes. Can you give an idea of what you went through as hat I options you choose? I am 46 yrs old still having regular menses. I am also curious of the reconstruction you chose. Any advise from you would appreciated. Thank you

Thanks for saying that. I especially liked the bit about the rainbow farts. I too don't want any more diagnostic stuff. I AM DONE with the whole shittin mess. This shocks people. EVERYONE insists I get mammograms. I very patiently explain that I had  6 of them that all showed I was fine, no cancer , go on home. People can not believe that mammograms can be that USELESS.  Instead it is easier for them to blame me for my getting C. They all find it easier to assume I never did breast self exam and that I never went in for my mammograms like I was supposed to. That makes me so angry. I never preach at other people, but so many, many people feel entitiled to lecturing me, in disapproving tone, about my attitude. They want to make sure I really understand that I can die a horrible C death. Yeah, well I get it. I just want to be left alone to enjoy what I can of my life.

thank you ladies for your encouragement it lifted me up. Ilc is very tricky, it doesn't always show on mammograms unless it is a large mass , however it may show on MRIs specially on lymph nodes.  Thie thing about Ilc is that it loves lymphs and usually it is always with vascular invasion and it goes undetected  . It is a slow growing disease usually but heavy on invasion. But a lot of people after the first treatment live a long time. The lymph nodes number are the down side. So good luck to you all, and live your life normally and enjoy it after treatment because it really goes back to normal with minimal side effects. Wish you all a long long life. And thank you again for your support. Even with stage four i am still very optimistic as there are a lot of treatments available. The important thing is to know your body and report to the doctor anything unusual. Big hugs to all of you.