Best Of
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@Rosebessie I went first. Thank you for thinking of me. I’m not doing well. My stomach is blown up, so my doc has prescribed a diuretic, which I will start in the morning.
I’m going to order the hospital bed on Monday after my grandson leaves. I’m hoping to at least have relief while he’s here.
I’m so glad the reflexology is going so well for you.
Hugs!
kbl
Tamoxifen Holiday?
Hello all,
I have been on T for 19 months. Never missed a dose and have very mild side effects. All of a sudden, it's like I can't think. I'm totally lethargic, exhausted always — it's like my body is an alien, and all I want to do is sleep or watch TV.
I've been pushing through for three weeks and reached out to my oncologist. The NP suggested a one-month break and set me up with a phone visit in a month to discuss next steps.
I must admit, taking a month off terrifies me. But at the same time, a month off might help me figure out what's me and what's the drug.
I know others have taken holidays. What is the thinking on this? How bad was it to restart once you stopped?
It's such a mind game to have been on it non-stop for 19 months, and then the mental load of stopping and restarting and what if something happens in a month - UGH. It never ends.
I was just going to get an SSRI, but maybe stopping is better to see what's what before I add in another med.
Any advice would be great.
skyefall
Re: Tamoxifen Holiday?
Hi, I stopped taking tamoxifen for four weeks. After two weeks off, I started feeling much better. But since restarting it a month ago, I’ve been feeling really unwell again—my mind feels foggy and it’s hard to think clearly."
morango
Re: how about drinking?
I am shocked beyond belief. One of my favorite rockers of my teen years, Ozzy Osbourne has died at 76.
m0mmyof3
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl I can understand the fear of being off treatment for a long time, I was off Herceptin what felt like months while my brain was being addressed the first time. Had the surgery first and then had radiation after so no Herceptin at that time while brain was addressed. I was not worried about not being on Herceptin because I figured I would be dead anytime with brain mets. I can understand the worry, please know we are supporting you everyday. I am not a likely person to give this advice but whenever it feels overwhelming remember the 4 7 8 breathing to relax your body. 4 seconds inhale, 7 seconds holding breath and 8 seconds out through your mouth. The worry may still be there but should help keep your body relaxed and this can be done multiple times a day. Shorter cycles of the breathing can be done as well like 4 4 4, all have the same result.
Bellows breath which is breathing rapidly through the nose to bring in oxygen can also be helpful on a day of exhaustion to keep functioning with more energy.
Re: Birads 5 with calcification
Quick update: The port placement surgery went really well this morning. My neck is sore, but otherwise I’m feeling okay. They also did a chest X-ray, and the report showed no abnormalities. Both the MRI and X-ray came back clear for the lungs. Now I’m praying the PET scan brings good news too. I’m finally seeing some light in this tunnel. Thank you so much ladies for being here with me throughout this.
Re: Contemplative practices - Affirmations, white light visualizations, healing meditations
This is a real good one, Rhonda. I can think of some current things in my family life right now, where this wisdom could really apply.
Re: ER-, PR-, Her2+ Roll call
All I can do is think about @beekaycro24. I am holding her in my prayers. This is such a reminder of how sweet life is. We are all sisters here even though most of us have never met. It’s just a club we never wanted to join. Sending prayers for all going through treatment now, and my warriors who have already gone through it. ❤️
@grammie2 let me know if we can support Berta or the family in any way.
Re: My Husband, My Life, My Love, My Family, My Cancer
Hi everyone, I’ve missed a few days here but I’ve been reading along to keep up with what’s going on, even when I feel too blah to use the keyboard, It’s easy to read along and then try to comment on anything that sticks out in your conversations. WOW, you. Guys!! It’s caught my attention about the seriousness of taking breaks from treatment especially after being stable for a long time. This is totally my issue right now. I am so nervous about being off my Verzenio and Xgeva, after being stable for for over 2 yrs since being diagnosed with MBC Stage IV. I just finished taking Amoxicellin for an infection in my upper back tooth and my oncologist and oncology dentist said the tooth needs to be extracted, so. I’ve been off the treatment for over a month so far and will have to stay off at least until they extract the tooth. I have the fear of progression suddenly happpening while off he meds😫😳. I can’t even think about the tooth extraction until I’m finished with the 8 cervical facet injections I’m having in my neck c3 c4 c5 c6 both sides of facet joints at the surgi. center on July 29. and the 2 weeks after that the radio frequency ablation appointment. Ugh this whole summer has been worrying a nightmare. I’m so sorry to be so down and complain, I know each one of you are carrying metastatic issues and consequences, but here is the only place I can rant and be totally understood. And thank you for that all of you.. It seems being mostly stable for 15 years with cancer has spoiled me, even though bone Mets was discovered after 13. yrs of NED. so now it’s like playing Russian Roulette with Mets being off meds again.. sigh..
