Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Hello dear sisters:
Mara - sorry your fridge took a dump and caused you to lose so much food. Glad things are back to working!
Candy - my heart aches for you and your friend’s family. So hard to make any sense of such a rapid demise. And extended condolences to exbrnxgirl’s family. So much loss. I hate this damn disease that steals all we love.
Threetree - I’m glad your biopsy is behind you. It did not sound pleasant. Hope the results lead to a line of treatment.
So I was absent for most of last month because it was a difficult time. I turned 70 in the early part of July and had a hard time reconciling the me at 70 vs. the me pre-MBC dx at 64. I also had my scans mid-month. Bone scan came back in a couple days and had a new finding of uptake in my right femur. Of course my mind went to dark places…what did it mean. Was it progression? Took over 2 weeks to get CT results back and thankfully everything was stable. Saw oncologist at end of month and she was not concerned about bone scan, particularly since I have no pain. So I will wait until next set of scans and if there is still an issue I will push for further testing. Finally, my 6yr MBC anniversary was at the end of the month. We all know how that sort of thing can mess with our minds. I also saw the plastic surgeon mid-month for a consult regarding my implant removal. He was shocked that I had no pain and full range of motion. He offered that he could do a flap type surgery but I said unless it’s an emergency, I don’t ever want to see another OR. Will proceed to get a prosthesis.
I am here for pocket duty, day in and day out. We are all in need - I think it’s a daily thing of who needs it the most. HUGS to all🤗
Re: Stage IV MBC Fitness
@AJ - No, they didn't give me any painkillers and they implied that this was usually a pretty straightforward "go home the same day" and rest and you'll be fine tomorrow sort of thing. From what I'm reading online that is definitely not always the case. I've read about the pain in the right shoulder than can happen. Apparently there is a nerve in the liver area that refers to the right shoulder, and it can be affected by a biopsy. I'm sorry that happened to you. I'm also reading about low blood pressure problems that can come with it. Most things I read say to give yourself a good week to feel back to normal, but the medical people were talking more like 24-48 hours unless you wound up bleeding excessively or got an infection. I've had none of those problems, but I am just plain sore and very tired. I think they did say I could take Tylenol if I felt the need, but I haven't done anything like that at this point. I am a bit better today, and I think I'll be fine overall. I just wish they had given a more realistic picture of what happens instead of downplaying what might be some common realities for a lot of people.
Re: Zometa side effects
Thanks @benlin I might put off the tooth extraction for quite awhile and stick to my Zometa infusions. I am surprised and knock on wood so far my 4 infusions have been ok. I take a Tylenol about an hour before and I have fluids while I have a 30 minute infusion. While certainly not what I want to be inserted into my body I think I prefer it over the tooth extraction.
And thank you for the Clearwater connection. I am about an hour and a half away from Clearwater. Can you give me the name of the office or is that being too forward? I do not trust my Ocala dentist office that I have been going to; I've had more trouble with my teeth since I started going there than at any time in my life. Which is why I was wondering if Zometa had anything to do with it. I think my dentist is just a thief.
Thanks again.
Re: Abemaciclib Verzenio for Stage IV
Thanks @seeq I have taken an at home UTI test and it came back negative. Not that I trust that 100%. I don't have many of the UTI symptoms however. Mine is more pain in my low abdomen and lower back. I had a thickening of the bladder noticed in my last CT scan so guessing I have more going on.
I have been taking cornsilk as suggested by a nutritionalist and plenty of cranberry juice but I will try the supplements and probiotic as well. Just in case….
Thanks again.
Re: I’m on hospice - anyone else?
I haven't been on BCO for a while, but great sadness has filled my heart reading your posts. As far as the ascites, have you considered getting it drained as a comfort measure? My dad had home hospice do the same and made him so much more comfortable.
So glad your daughter, son in-law and grandson will be spending time with you. I recall they reside a few hours away. I'm sure making these special memories will last a lifetime for them.
Just want to say thank you for being that "person" for me when I needed it struggling with this hideous cancer. Hugs
Re: I’m on hospice - anyone else?
@kbl Thank you for always being a positive source for all of us here. I have always admired your grace and attitude as you approached each hurdle along the way. May you get the relief you deserve with palliative sedation and a pain free transition. Sending love and support to you and your family❤️
cookie54
Re: I’m on hospice - anyone else?
@kbl , I hope you can be comfortable and pain free. I’m glad you’re with family.
aj
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
KBL
I’m glad you’re having your favorite company soon. Take care
Tanya
Re: Starting Chemo June 2025? Let's support each other here!
@iambecoming I just asked for normal fluids so who knows what was in the IV bag, but I'm guessing sodium chloride, saline, water.. who knows. But I was there for an hour getting the fluids and it was so excellent. I definitely recommend. I didn't get any fever/hot flushes. No bone pain. Like I FULLY recommend. Was going to talk to my doctor about it on Thursday when we speak to make that a regular thing.
I had a totally normal week. Didn't lose my appetite at all this time. It was just so bizarre. Maybe my body knew what was going to happen and is now processing the chemo differently?
So proud of us!! Almost there 😅
Re: How are people with liver mets doing?
@AJ - Thanks so much! Still a little sore, but hoping that by the week-end, I'll be back t normal.