Best Of
Bone Mets/PAIN
I apologize if there's already a thread on this topic, but I'm still having a difficult time navigating this new format. I've tried the search fields, but it's not directing me to a common thread.
Anyway, I'm having a BAD pain day. Bone mets basically everywhere in my chest cavity. RIBS especially, sacrum, etc.
I'm on OxyContin ER (I think 25mg)every 12 hours, Oxycodone as needed during the day. I woke up in excruciating pain this am. I am 3 days post chemo and it felt like every bone in my chest was inflamed and bruised. Like I was in a car accident. I got it managed after OxyC and a regular oxys. but by 2 I was so tired. Tried napping, but the ribs started hurting SO bad! I took 3 oxys (btw I have a HIGH tolerance to opiods) and its at a dull roar right now.
Besides my venting, I'm wondering how you all with bone mets manage pain. I hate to ask for an increase in dosage as I'm just at the beginning stage of this fight. What if I take too much now, and pain could get worse, if God forbid, nearing end stage nothing would help? Anyone know what I'm saying here? I'm kind of rambling, but I know you guys get it.
Feedback would REALLY be appreciated. Peace and comfort to us all ❤️
Re: Ibrance (Palbociclib)
@brutersmom hi there, Thank you for responding to my question. I shall try the 5/2 on the 100mg. I never did give it a try before dropping to 75mg. I'll see how it works for me. Im praying its ok because I don't want to take a forced break. Especially since my last week's mammogram and Ultrasound showed a 0.5cm lesion where my original breast tumour was at diagnosis in 2020. Plus I've been getting some sharp pains from that location. I've no idea if the lesion was always there since the PET-SCANs of 2023. 2024 and April this year all had NOT Evidence of Active Disease. This cancer journey has many tough decisions.
Re: My Husband, My Life, My Love, My Family, My Cancer
I found the missing pants I was complaining about before, that makes me happy. It was in a pile in a box to be recycled so that is good. Taking breaks as I get stuff ready to go. I am going to toss stuff in the bin out back and maybe take two bags of garbage at a time. Then throw them down the stairs. Oh well, another about 3 hours before trash should be taken out anyway.
I am sweating my butt off here. Going to throw the bags inside down the stairs and take them out one or two at a time, still need a cane as well. Got most recycling and garbage put together. I do not want to take a rest break either. Inside is better than outside and figure that if I do it that way, it is better. Would be nice if a neighbour showed up and helped but cannot count on that for sure. After they are done, I will order some sort of food.
I did get it done, tossed all bags down and then took one or two at a time all at once, worked better for me. Damn it is hot.
Re: thread for middle age to older Christian women.
Hello everyone - I turned 47 in June- I have 5 children- 12 grandchildren and have been married for over 25 years. My youngest two are both girls 21y/o & 15 y/o who still live at home - all the grands are from my older 3 sons! I Love the Lord and try my best to walk in faith daily- I fail A lot! - I was diagnosed on (4/1/25) April 1,2025 - total mastectomy on (7/7/25) July 7, 2025 - have next appointment with Oncologist tomorrow to find out what steps are next. - Original Diagnosis) Triple Positive Invasive Ductal Carcinoma Grade 2 - found out it metastasized to lymph nodes after surgery. Also was told that some pathology was contradictory to original diagnosis- following up with that tomorrow as well. As you can tell I am new to all of this and am so grateful to have found this platform!
nikki.g
Re: thread for middle age to older Christian women.
@nikki.g Welcome to our little thread although I am sad for the reason you have to be here. Feel free to ask any questions, rant, rave, scream, whatever you need. We are (virtually) here for you covering you with our prayers.
Re: thread for middle age to older Christian women.
Hi, guys! I hope I'm not too young to join? I'm 38 but I have been in love with Jesus since I was 15 when I first gave my heart to him! I have served Him full time as a church admin to a very large church for 20 years or so and now work for the Christian school...well, I'm on "furlough" until all this BC healing is fixed up.
JO--I never knew you worked in Sunday School for 40 years! WOW that is so cool!
Right now, I am seeking the Lord for His next steps for me. I will serve Him whatever way He wants. Toying with not going back to work and just ministering to people as they come up, or continuing ministering at the school...or some other route.
I dont LIKE that I got BC. I sometimes think it's not fair that this is God's plan for me, especially when all my friends are healthy and moving on with life. I feel pretty lonely when it comes to bc except for my bc.org cyber friends! But I surely know that God works it out for good, for His glorious plan, and I gave my life to Him so many years ago, so I dont have a say...my life is His life.
thread for middle age to older Christian women.
I would like to start a forum to meet other middle age or older women who have bc and love the Lord. Try to live your life for him, walk the walk and talk the talk. Of course we all fall from grace because we are human but we are covered by the blood of Jesus. Also this forum is for people who has a large enough vocabulary that they don't need to use profanity to explain theirselves. I will start.
spar2
Re: Can we have a forum for "older" people with bc?
hello. Happy Sunday everyone I woke up two days ago freezing. Nope our weather hasn’t tipped them came the fever. I felt bad but I booked my two weekend shifts. Feeling better but still quite havky. Remembered lots of fluids yesterday but didn’t eat much. Today I’ve got the fluids going and sorting out food.
I spilled a huge cup of coffee on the catio rug what a mess. Glad no cats got dumped on but their teepees did get wet.
It’s laundry day so this rug is goi g in next. Ugh. It’s a big Ruggable. I’ve washed it before but what Spain to have to move everything. Ugh.
Intolight your view you mention sounds great. My view is my back yard. A wee oasis that I have made. Sometimes I don’t leave here for days. The water is half a block away. I may go down and stare at the ways and send warm vibes to the group.
Re: Hair loss and Kisqali
taking Letrozole and Kisqali started in February 2025
defiantly notable hair thinning, but no clumps of hair falling out. It does seem like it when you look down in the shower, it's quite the shock. Know some people that use some kind of spray to fill in bald spots that looks natural, would have never know if they didn't tell me.
2011 had hand Fulls fall out (clumps) with chemo
kelrae25
Re: Can we have a forum for "older" people with bc?
Victory!! He got too hot during his second walk yesterday, and slept off the tramadol for the rest of the day, with an occasional trip out of the living room. I discovered that the pee pad in the tub was absolutely soaked. It is out on the stoop to dry out while waiting for the laundry.
The soreness in my hands is going away, although my pink braces and diclofenac both seem to be helping. I even got some sewing done yesterday.
Sandy, looks like the restoration and move are proceeding with slightly fewer frustrations. You have passed the worst parts.
mcbaker