Best Of
Re: Single-Breasted Photo Shoot
Awesome! Wish there was more of that when I started my journey. Really wonderful.
Do you know anyone who has done an explant (mastectomy → implants → explant → "flat" (maybe a little concave) I am doing an explant but considering not doing DIEP or other reconstruction. The PS says I will probably be a bit concave … like as much as 1/2". I am trying to find someone who has gone through that.
yssa48
Re: Scared about this diagnosis
I have not popped in for a while then come in and find your post. If you have a diagnosis and a surgery coming there is a plan by my medical doctor.
What is your fear?
Starting there and sharing your fears or fears takes their power. Put them on this virtual table and let us know. My breast cancer journey was in early July 2021. I had a plan after my diagnosis to get chemo to shrink my tumor. Then IO got a genetic test result that said a Brca2 mutation. My 1st chemo moved one day later and increased from 1 every 3 weeks for 4 times to 12, one per week then the original 4. More happened but i ended up having the surgery in early Feb 2022.
One thing i found interesting was the day of surgery. At City of Hope in Duarte California my surgeon arrived in my room about 30 minutes after i had undressed into my gown and had my vitals done. He needed to draw on my body what he was going to do. Which side was coming off and the whole path.
Are you having a lumpectomy? Whatever you are having done you might put in the subject line above? This is breast cancer.org. There are a whole bunch of us who had surgery and can share.
My surgery was in 2 parts, my other surgeon removed my ovaries and fallopian tubes, then the breast surgeon and the plastic surgeon who drew on my body came in the suite for the breast work. Less anesthesia to do them both.
aurfraaly- please share so we might bring some comfort.
katg
Re: My Husband, My Life, My Love, My Family, My Cancer
Well good news, brain MRI was negative today and opthamologist didn't see much . He wasn't able to dilate my eyes today so I will go back the end of August. Happy to have gotten mental relief now that MR was good!
@mara51506 Same hot and humid weather here too seems to be on a repeat cycle. Hope you find the missing pants, that stuff drives me nuts lol. I finally found my exercise bands this morning for some reason I hung them in my coat closet. Now they're back in a drawer I usually put them in.
@intolight Enjoy your bbq tomorrow, no worries about the dust just enjoy your company!
@threetree @chicagoan Just keep swimming….. nothing wrong with setting you own pace.
HI to all in the room hope the day is treating you well.
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
Mara Sometimes you just want to give yourself a break and treat yourself to something you're craving. Glad you enjoyed a yummy burger. Yes life sure does get busy sometimes, dinner with DB would be nice. maybe you can alternate that with some shopping.
Rhonda Your flowers are beautiful! What a pretty mood booster having fresh flowers around, enjoy.
Love to all here, may it be a peaceful night.
cookie54
Re: how about drinking?
Had planned on going to church this morning but alarm system on the neighbor's truck across the street started going off about 2 a.m. waking both me and hubby, not once but twice!
m0mmyof3
Re: My Husband, My Life, My Love, My Family, My Cancer
Irish I am really sorry to hear you are dealing with diverticulitis again. In your pocket for some quick relief of this bout.
Cookie, that sounds scary, glad it resolved on its own but yeah seeing opthalmologist will help. Hope everything is fine and that it was a one off, in you pocket anyway. Glad CT was negative.
Shanagirl, have a good appointment in PT.
Slept pretty well overnight which I know is nothing new but there it is.
Unsure what I want to do yet today if anything. Got a mobile game that is pretty easy and quick to earn a few bucks that I can put into my rent and bills budget. I also take interest now and set that aside for budgeting.
As far as food, think I need to include a couple of eggs, got canned vienna sausage, and any beans leftover, microwave first, once cooled, chop in the chopper and add to a frypan on high heat with garlic and canola on the bottom, stir couple of times. Turn off the burner and cover with a lid. Optional ingredients can include queso and other stuff I choose, should taste good. Option 2 may use up meatballs and be made the same way with eggs and beans. I will see. I am also thinking of frying up some frozen veggies like the neverending peppers. I will post after deciding what to have.
I also have some stale english muffins, been debating a heat up in the breville oven to make up some crunchy stuff ala croutons. They just do not hold together properly so I may put some spray, butter and garlic and just break them up and bake at 375.
Laundry under way, got big washer and repaired washer on the go, have some clothes to wash so they will go in the smallest ones, easier on the clothes. The 20 dollar ones are still going strong and do work to act as an extra sink if sinks are full for soaking small stuff, no agitation. I still want a dishwasher BUT cannot justify it in any way shape or form and would probably be another thing I waste money on and not use it. Need to do less of that.
Enough of me, I hope all have a good rest of the day and in pockets for all who need me.
Re: how about drinking?
NM - I too love the Mom stories. My Mother had a debilitating, catastrophic stroke when I was 48. For the next 12 years, she lived as a total vegetable.
minustwo
Bone Mets/PAIN
I apologize if there's already a thread on this topic, but I'm still having a difficult time navigating this new format. I've tried the search fields, but it's not directing me to a common thread.
Anyway, I'm having a BAD pain day. Bone mets basically everywhere in my chest cavity. RIBS especially, sacrum, etc.
I'm on OxyContin ER (I think 25mg)every 12 hours, Oxycodone as needed during the day. I woke up in excruciating pain this am. I am 3 days post chemo and it felt like every bone in my chest was inflamed and bruised. Like I was in a car accident. I got it managed after OxyC and a regular oxys. but by 2 I was so tired. Tried napping, but the ribs started hurting SO bad! I took 3 oxys (btw I have a HIGH tolerance to opiods) and its at a dull roar right now.
Besides my venting, I'm wondering how you all with bone mets manage pain. I hate to ask for an increase in dosage as I'm just at the beginning stage of this fight. What if I take too much now, and pain could get worse, if God forbid, nearing end stage nothing would help? Anyone know what I'm saying here? I'm kind of rambling, but I know you guys get it.
Feedback would REALLY be appreciated. Peace and comfort to us all ❤️
Re: Ibrance (Palbociclib)
@brutersmom hi there, Thank you for responding to my question. I shall try the 5/2 on the 100mg. I never did give it a try before dropping to 75mg. I'll see how it works for me. Im praying its ok because I don't want to take a forced break. Especially since my last week's mammogram and Ultrasound showed a 0.5cm lesion where my original breast tumour was at diagnosis in 2020. Plus I've been getting some sharp pains from that location. I've no idea if the lesion was always there since the PET-SCANs of 2023. 2024 and April this year all had NOT Evidence of Active Disease. This cancer journey has many tough decisions.
Re: My Husband, My Life, My Love, My Family, My Cancer
I found the missing pants I was complaining about before, that makes me happy. It was in a pile in a box to be recycled so that is good. Taking breaks as I get stuff ready to go. I am going to toss stuff in the bin out back and maybe take two bags of garbage at a time. Then throw them down the stairs. Oh well, another about 3 hours before trash should be taken out anyway.
I am sweating my butt off here. Going to throw the bags inside down the stairs and take them out one or two at a time, still need a cane as well. Got most recycling and garbage put together. I do not want to take a rest break either. Inside is better than outside and figure that if I do it that way, it is better. Would be nice if a neighbour showed up and helped but cannot count on that for sure. After they are done, I will order some sort of food.
I did get it done, tossed all bags down and then took one or two at a time all at once, worked better for me. Damn it is hot.