Best Of
Re: IBC lounge: roll call, support and just a good place to hang out
@katelynn50 I am very happy to hear you went through treatment and came out the other side as well. 34 years post treatment is a feat as well.
I am still here, 10 years post initial dx of IBC. Apparently it does well with chemo. Went through the rads, initial chemo and mastectomy. 9 years ago, 10 cm tumour found in my brain, craniotomy and whole brain radiation followed. That really sucked. 7 years ago, bit of mets grew back, 5 rounds of rads, only aimed at the mets. Since those findings, been bopping along fairly well. Almost a year ago, a blood pool was found in my head but we are watching it and doing nothing as it has not grown so I am unconcerned. Stage IV means never getting a break but I only take Herceptin and it seems to have taken care of it, no other mets than the brain have ever showed up so that is good.
Re: IBC lounge: roll call, support and just a good place to hang out
Dear Katelynn50,
Wow, congratulations. May I ask - what's behind autologous stem cell transplant - was it one of the BC treatments? Hugs and congrats again,
Saulius
bsandra
Re: Stage IV bone meets- challenge with biopsy
@vijiya71 There are blood tests (liquid biopsy, ctDNA) that can also be used. Ask your oncologist about this.
Re: How long have you been Stage IV?
@eleanora My CEA blipped up once or twice and went right back down. Possibly it's a lab thing. I can understand your pain about your granddaughter. Mine is 10 and I hope to see her graduate high school.
Re: Bone Mets Thread
Thanks for the info norah2024. Besides the lung inflammation at higher dose of Verzenio I have tolerated the treatment pretty well. I am encouraged from all of you and the other threads with different options if one protocol does not work another one will. I am encouraged also by reading different stories and from acquaintances that have had years of stability even if occasionally a protocol stops working. This encourages me so much
jen1
Re: My Husband, My Life, My Love, My Family, My Cancer
@snow-drop Sorry you're struggling with abd pain. I hope you get an answer tomorrow and relief soon. Thanks for taking the time to post, Happy Heavenly Birthday Alexa, fly high sweet gal๐
@tanya_djamila What a beautiful family picture! Longwood Gardens is a beautiful place , I haven't been there in years. Glad you all got to enjoy it together.
Well covid roaming around again, I know of several people who have it and now my son. Hoping DH and I can avoid it, fingers crossed. DH and I decided to opt out of my mil birthday brunch today. We didn't want to spread any potential virus to our family. Hope everyone had a good day today. Sending good vibes for all appointments this week.๐
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
Shana, I definitely understand the desire to skip appointments that I have and I have done so. The problem is being generic when the nurse is asking about symptoms. I usually stick to the big D in order to avoid them thinking I am having trouble. I am glad you are able to get out as well.
Cookie, you are right, that vacuum sucks up more water than I can believe. I do have draino but since I can vacuum and put water elsewhere, I can put up with the slow drain, it always clears by morning. Can use it the hose to vacuum up the cat area as well. I am happy with the purchase, looking for space to keep it.
Snow drop, I am so sorry that you are suffering abdoment pain, I am also glad you are seeing someone on Monday. In your pocket sending support. I also miss Sondra as well.
Well, yesterday when trying for McDonalds, did accidentally order Burger King, cannot say it was the best, just kind of meh, planning to use up the burger in different ways, combine beef with beefless ground, scrape buns to use as garlic bread too. Mix beef and cheese with the chipotle beans. Need to open another can of something to eat as well to combine. Oh well, will work through it. Also work on eating up and not duplicating food purchases that are not necessary.
First meal contained a bit of a Burger king cheese burger, beefless ground, green beans, cheese and the chipotle beans. I did heat up pan, sprayed with canola spray and melted some butter once heated. Dumped all ingredients, no need for chopping. Just stirred all ingrdients in and then turned off heat, covered with lid. Once cooled, put in a big bowl, add some queso, TB chipotle, steak seasoning, sour cream and onion powder, salt and lastly a good squeeze of the Great Value sour cream and lime creamy stuff. Stirred everything in. Cheese was great because it does not go down easy without being cheesy ha ha. It really was delicious and nice not to feel the need to chop.
I have been sitting around some and that is fine, did realize that the water slowly drained out of the tub on its own. That is nice to see. Still debating where to keep the shop vac. My honest opinion is just to prop it between the washers and edge of tub. If there is no need to use it, make room on top shelf of my linen closet if it will fit. I will see no rush about that.
I do hope all have a good day, in pockets for everyone who needs me.
Re: My Husband, My Life, My Love, My Family, My Cancer
Hello all
Heading home from visit with family in PA.
my three sisters and mom enjoyed longwood gardens. Nieces nephews and and my two daughters joined.
