Best Of
Re: Can't get in to surgeon for 6 months.
I am a Kaiser patient (I went 13 years at stage IV before any progression!) but did get second opinions at Stanford. They concurred with Kaiser’s recommendations, which was comforting. UCSF would be a great choice as well (though Stanford is so fancy!) . I will also add that since I had recon at the same time as the bmx, coordinating the surgeons did add to the wait time, but due to the nature of bc, relatively slow growing, there wasn’t much concern about it effecting my health negatively. Take care
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl I feel for you. What a horrible experience. Sounds like you have a great guy though, who sticks with you no matter what.
@goldensrbest Hope that you are recovering well. Will be interesting to see what the plastic surgeon recommends.
@eleanora Hope they figure out solutions to your diverticulitis and tooth issues. Both sound quite painful. Glad the medicine is working.
@mara51506 Best wishes as you work on getting your bath tub fixed. What a hassle.
It's very hot here. I worked a double shift yesterday and my legs were really hurting. I was allowed to get 2 more weeks on the anti-inflammatory drug that helps with my arthritis, but that's all. I am going to try not to take it. I'll see a new internist in August-hopefully she will put me back on celebrex or something. In the meantime, my cancer center offers 6 free massage treatments and 6 accupuncture treatments. I am going to try those-maybe they will work. The PT is strengthening my outer hip but not helping with the pain. Maybe it's muscular and not arthritis pain-hard to say. I took a cold bath when I got home-the cold water did seem to help the inflammation.
Re: My Husband, My Life, My Love, My Family, My Cancer
So sorry to hear about the interruption of your plans. Glad you have the new date to look forward to.
onward and upward with what looks like a good recovery plan. You strength and determination inspire me.
Please keep describing the wonderful time with your grandchildren. Your post lightened my mood considerably. I always describe my grandchildren as "human sunshine". Sounds like you are doing an awesome job creating good memories for them.
Had two hurdles to jump last week. Having a minor twinge in a front lower tooth that had a crown but had not been root canaled. Saw my regular dentist and x-rays, exam and hot/cold testing revealed no sign of decay or infection. Because I have been on Xgeva for 3 years, I have a referral to an endodontist for a second opinion.
Also had greater intestinal pain and GI issues than usual (these occur on and off with Kisqali), and finally wound up in the emergency room on Friday where blood work and a CTscan diagnosed diverticulitis. I have augmentin and a pain reliever until 6/20, with a follow-up with the gastroenterologist on 6/30. Medication definitely working - was even able to tolerate a cup of coffee this morning 😊 A little concerned that MO has told me not to start Kisqali again (I'm in my "off" week) until I finish the augmentin and have clearance from the gastro MD. She's concerned about lowering my immune system. Unfortunately, I can still have the damn faslodex shots 😫
Kind thoughts and virtual hugs to all
Eleanora
eleanora
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Oh no , so sorry your plans were ruined. Sounds like you really had a belly battle going on. I hope you’re able to reschedule soon and get to enjoy a nice dinner with your family. Hugs 🤗
@goldensrbest Sounds like a good plan. Gives your body time to heal in the meantime. Hope you’re getting your energy back.
@mara51506 In your pocket for Herceptin today. Ugh yes the humidity is creeping in here and temps are rising. Take it easy and hope your trip is smooth today.
@intolight I hear your joy through your pist and it warms my heart. Please keep on boasting, this is what we live for, enjoy!
@irishlove Hope your feeling well.
Thinking of Mel/ Gabby and waving hi to everyone.
cookie54
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
KBL I love the rainbow. Susan is in my heart. I’m going to light a candle for her today to remind myself to think about her.
Tanya
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@rlschaller - Made it through yesterday. My cavities ended up being 1 upper left and 2 upper right teeth. My dentist was able to do all 3 in about 40 minutes and yes, it was painless. Only downer was that it took the Novocaine almost 4 hours to wear off, not 2 as my dentist had said!!
So glad to hear that your radiation burns have healed well and that your skin Mets are stable for now.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
Kris - Beautiful rainbow pic! My heart hurts for Susan, May she find peace. Lots of hard news these past few months. Fay - I Hope your dentist appt went painlessly 3 cavities , oy veh !
Illimae - great news about your MRI. Rose- hope you are feeling well.
My radiation burns have healed well and those Mets are gone. I had my second Doxil infusion, skin Mets stable for now. Sending everyone hugs and love, Rhonda
Re: Can we have a forum for "older" people with bc?
BTW, today I discovered that what caused my October accident resulting in a sprained ankle, hairline malleolus fracture and reactivation of a 2010 5th metatarsal stress fracture was…a shoe malfunction (yet again). Fourth out of five injuries (clog falling off my foot ascending my stairs caused a wrist tear in 2018, then gum sole of my shoe sticking to a terrazzo hospital lobby floor led to a scaphoid fracture two months later, and in 2023 another gum sole sticking to a marble tile dept. store floor when I tried to pivot caused an elbow fracture). The Oct. 2024 near-fall happened so fast I'd always assumed I'd tripped on a cat toy or a wrinkle in the large area rug in my rental house. But today, I was wearing the same shoes as on that day last October: a pair of python-print OOFOS rubber slides, size 8/39. Exactly the same thing happened today: got up from the sofa, L leg & foot a bit numb from sitting. Took a few steps forward, and the toe edge of the too-long forefoot sole caught the carpet and bent under, causing me to lose my balance (and wrench a toe or two in the process) before grabbing the stair rail finial and avoiding a fall. That pair of OOFOS is going to be donated, in favor of the less-chic size 7/38 red ones I have. A too-small shoe can cause discomfort, even pain; but who knew a too-big shoe would be dangerous?
chisandy
Re: Can we have a forum for "older" people with bc?
Carole - your DH is a rockstar. Can’t imagine biking 5 miles so soon after a TKR.
Cindy - enjoy your upcoming concert, but please be easy on yourself.
The CT results were all normal (yay!). On Sunday night, I considered cancelling the CT and probably should have as I didn’t think there was an enlarged lymph node and I think it’s a waste of healthcare resources to chase a unicorn.
Did any of you have a Biozorb implanted with your lumpectomy? I did and my BS didn’t offer a choice and also didn’t really explain it. It took 2 years to dissolve and felt like a golf ball under the skin. The titanium clips are still in me. The FDA recalled Biozorb last year due to reports of the clips migrating out of the breast and causing damage. The CT did indicate the clips are in the axilla and I thought the Biozorb was placed in the upper outer quadrant of my breast not in the axilla. The FDA says no need to explant unless they cause a problem. I could call my BS but I expect I would get the same dismissive response I got for everything else.
Today was in the 90’s and sunny. Spent time floating in the pool. I wear a rash guard to protect my skin from the sun as I sunburn very easily.
I hope Sandy’s house is progressing on schedule for an end of the month completion.
Take care!
harley07