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@alliec1068 :) Oh, wow, your experience w/the WBC shot sounds so much like mine!! As you said, the bone pain was REAL. I started to feel better midday Saturday, but as the day got later, I felt myself hit the wall again…I'd been taking Claritin around 6pm each day b/c that's what time it was when I first bought some, so I could feel it wear off, I guess? Like a hangover is a good way of putting it, too — I felt so lethargic and low energy and my face was more flushed the first two days after the shot.

I've got a naturopathic oncologist on my team, met with her today and shared about the WBC shot effects and she suggested I try skipping it this next round to see how I fare, as long as my counts are well enough to do so. Her exact words were, "It jacks everything up!"

I seem to have had what she called "a strong reaction on the first round, but delayed" — I started getting a red rash in my underarms and along the pubic line (sorry to be TMI :/ ) over the weekend and my mouth began to feel very fuzzy, tongue was white coated…so I've got oral thrush, too. :( They put me on liquid Nystatin, so hopefully that all clears up pronto!

I also have what looks like a 3-inch rug burn where the IV went in. It's red, irritated, burns/is painful and feels hard under the skin where the vein is. It feels like after one burns themself on a stove or something and the burn hurts for several days. Do you have a port? They had said I wouldn't need one and we could use my arm since it's 4 rounds, but now the nurse I spoke with when I called in said I may wind up needing a port. So I was feeling pretty cranky yesterday, but was able to attend a support group this evening that helped.

I didn't really have any nausea issues, either — I didn't take the Zofran, I had it filled and was going to, but was also taking a natural product called Boiron Nux Vomica (they're tiny pellets you put under the tongue) and drinking ginger juice in the morning and before bed. I drank 2 oz. straight ginger juice the morning of my infusion, too, and think it helped. I know my body takes a longer time to process medications out of my system, so I'm trying to limit how many prescription things I'm on at once — they sure don't make that easy, though! That stinks Zofran makes you drowsy — hopefully you can tweak it a bit next time to see if that helps. I'm going to acupuncture this Friday and want to book an appointment nearer my next infusion, that's so encouraging to hear that it helped you!

I feel you on that last one feeling far away right now. Yes to staying positive and trying to embrace the good days in this, and let myself rest on the other days! There's a full moon this Thursday, so I'm bracing for some big energy with that! 🌕️