Best Of
Re: Can we have a forum for "older" people with bc?
Cindy, hope you can finally shed that dresssing! I remember after meniscus surgery I had this massive pressure dressing: gauze under layers of cotton batting under an ACE bandage wrapped so tightly it hurt like hell and I could only toddle slowly on crutches. Had a wedding up in Sheboygan 2 days post-op—it was my R knee so Bob had to drive, and he was having capsular clouding a year after his cataract surgery so the drive around sunset was brutal. (Almost took the wheel for him till we made it to our hotel). I was in such pain on the way home I ditched the layers of cotton batting and loosened the ACE wrap.
Betrayal, I almost never entered a Walmart before we moved up here to the burbs. But there were things that Target didn’t have and we couldn’t wait for Amazon to ship. (Certain scrub sets we wear as PJs that were way cheaper than what the scrubs shops carried, kitchen stuff, etc., and the FairLife protein shakes I prefer that are often out of stock at the supermarkets). But shopping there’s a nightmare. We are smack dab between the one in Lincolnwood and the one further west on the Niles/Skokie border. Both are cavernous & crowded, half the time there are only self-checkouts, then the “greeters” turn into exit cops that check receipts more closely than at Costco. The worst part is parking—even when I had a temp HC placard those spaces were usually full and half the lots’ spaces are reserved for online pickups. Natch, it’s the half closest to the store. Returns at Customer Service are even worse, with long lines and customers with arguments. Of course, there’s the ideological component of the Walton empire (why I use Costco and not Sam’s Club). My recording engineer’s wife down in Sparta (the rara avis known as politically liberal Evangelical) calls it “the Devil store,” and I can’t disagree. But in rural areas it’s the only game in town (after having run all the independent stores out of business). So that’s why I’ll use the Container Store for much of the organizational stuff I’ll need that I won’t be hauling back from here to home.
The more I want to start packing up, the more panicked I get, because I don’t know when I can ferry stuff back yet. Contractor is calling the storage warehouse to arrange dates for pack-in—I insist on one date for furniture & major appliances/fitness machines so I can direct where to place them and clear space in the middle of the rooms; and then a couple of days later for the mountains of boxes to go into those spaces. I will need to hire the cleaning crew’s company to both remove evidence of our time here and clean up from the restoration crew in Edgewater. I may either use them for help unboxing or go with TaskRabbit. We will stay here as long as possible until we have our new bed (adjustable split-king) and mattresses in the other bedrooms/front room daybed, and at least the rudimentary window treatments (blinds, plain shades) installed (the decorative stuff can wait). Will put new litterboxes (maybe a Litter Robot like the one at the rescue) into place, with all cabinets & closets closed to minimize hidey-holes. Only then will we leave here with the kitties and the last of our small suitcases. And of course so much to do re address changes for various accounts, set up internet & cable in advance (including new router & mesh network), transfer DirecTV back there (not sure whether we’ll reestablish the satellite hookup or stick with the streaming version we use here. I know it’s a duplicative expense when everyone seems to be “cutting the cord;” but I like to get news & programming via network & cable, not just streaming or heaven forbid, social media). And each streamer is getting so expensive that cord-cutting is almost as pricy as hard-wired but with fewer choices. We never did ditch the utilities (here in Lincolnwood they’re included) except for our landlines. Our electric, gas & water bills have been minimal, but after this week the electric will likely spike from running the window units 24/7. And internet won’t come cheap, either. Then there’s the $$$$ I’ll need to spend on exterior paint touchups and restoring water pressure to the 1st floor tub & shower (all of which problems predated the fire), new kitchen dinette set (the existing one’s in bad shape) and new deck furniture (chairs, umbrella).
No wonder I’ve been nearly paralyzed into inaction—there’s only so much I can do without knowing when I can actually start to do it. This, in a way, is nearly as stressful as setting up temporary digs (hotels, then here) after the fire. Maybe more stressful, as I know how much more we’ll have to do, since we moved in so gradually and made it feel like home rather than an AirBnB. First steps will be inventory of what we bought (and whether to take it or leave it behind) and what belongs to the place. Then there’s the fridge-and-freezer food shuttling, which we can’t do till we know the fridge is up & running, clean, and at proper temp.
Re: Can we have a forum for "older" people with bc?
We survived a scary storm during the night. There were gusts of strong wind. Not a lot of rain and, thankfully, no hail. Other areas in MN and ND weren't so fortunate. One of our campground community, Tamra, learned this morning that a tornado hit her parents' town and an aunt and uncle were killed. Another uncle's house was destroyed.
A couple of trees were blown down here in the campground. DH and I had to skip the farmers' market so that dh can help the owner with cutting up and removing the trees. One narrowly missed falling on a camper. I was tired this morning from having my sleep disturbed last night and was just as glad to miss the market. The forecast is for more storms tonight, thanks to the heat dome high temperatures during the day.
Sandy, good luck on moving into your house.
Happy Sunday to all.
Re: Can we have a forum for "older" people with bc?
I am wearing one of my sari outfits today. Don't know if I will wear it all day. Prediction is for the feels like to be above 100 deg. Tippy has been walking on my keyboard, and it is a bit wonky. Add that to my fingers, and I am a bit frustrated. I put some elastic gloves on under my thumb braces and getting more comfort. Fitbit even let me out of jail! Will ride my bike over to AF and do a bit of exercise.
Cindy, glad to see that you were able to get out and se that concert without exces fus and bother. Se the wonky keyboard? Maybe he trigered a disability program, because it is almost al double leters?
I have an appointment in the city on Monday for a lung scan (ex-smoker's program, I think it is part of a study I am participating in. Tuesday I finally will be seeing the ortho! Finaly. But then waiting for insurance approval.
Sandy, happy to see that you are finally able to move back home.
Re: how about drinking?
NM, sounds like the company you hired for cleaning and decluttering did a great job. Two dumpsters! Wow!
We survived a scary storm last night that brought down two trees in the campground. Thankfully, not on our camper or on anyone else's camper. The bad news is that more storms are in the forecast for tonight.
Re: Long term survivor examples.
My name is Amanda and I am 31 yrs old and was diagnosed with triple negative IDC in Nov. I just signed up for this website today and I am really glad that I did. This is the first site that I have been to that offers positive thinking and hope for TNBC. I have been so sad and scared about dying since I got the diagnosis but reading all of these posts and stories have helped me so much.. thank you all ![]()
Re: TNBC Survivorship plan
Thank you for reaching out. I have been seeing a psychiatrist for help coping with the news. She specializes in cancer patients and has been very helpful. I don't feel sick and knowing the cancer is growing in me is hard to believe. I have family support and very grateful. I'm the type of person who wants to know the hard facts from my oncologist unfortunately he can't say how long I have.
I would love to hear from anyone with stage IV TNBC who has been on Trodelvy.