Best Of
Re: Starting Chemo July 2025? Gather here for support!
Hey Y'all! MotherFun here to join in the fun. Had my 1st AC 24Jul2025 and will be having my 2nd AC tomorrow, 07Aug2025. I slept all day after the 1st AC and all day the next day after hydration. I felt like Sleeping Beauty! My husband set an alarm and alternated my antiemetics for me. I hydrated really well the 2 days prior to chemo and sucked on a queasy drop from when I got in the car to go to get chemo until I got home. I also wore pressure point bands. I brought out all the Ju-Ju to ward off the nausea!! I tend to get motion sick and sick after anesthesia, so I wasn't playing. I perked up days 3 & 4, then the slow downhill of bone pain and fatigue set in. My mouth was doing weird things like it felt sandy or gritty. No visible sores or ulcers. By Wednesday I was having difficulty eating so it was popsicles and pudding. Friday I started using magic mouthwash and talk about a game changer!! Like clockwork today, day 14, a chunk of hair beautifully came out with my wide tooth comb. I was shocked at first, then remembered - DUH, I have cancer, took chemo and this IS supposed to happen. My scalp and skin has been sensitive and painful for days as a constant reminder of what was about to happen. Talk about a dose of reality. How do you forget that is going to happen??! I have long curly hair past my shoulders. Oh well, on the bright side it will make getting ready for work so much easier! I hope everyone has a super fun week and weekend! I’ll be practicing my Sleeping Beauty gig. 🩷
Re: Triple Negative Stage IV
@gaurykris hi there ! So nice to see your post. Doing fine, moving along on the treatment . So far so good. How are you ? Grief is not an easy companion, though holding the love for your mom in your heart is a good constant space of care. I lost my mom a year and a half ago, and I talk to her each morning over coffee. She loved a morning cup. It’s the little memories that I love the most. Sending hugs to you ❤️
@cookie54 status quo is awesome. So glad all is well. I’ve a taken a bit of a digital holiday and just starting to catch up here a bit. So many posts amongst all my threads to read lol !
Happy Wednesday to all.
Re: How long have you been Stage IV?
@EddieJ Juliana, so glad to hear from you! You sound like things are going very well right now! 🤗
I just had another rehearsal last night. We are really working out all the kinks. Opening night is two weeks from Friday. Lots left to do, but everything seems to fall into place just in time!
DH and I just returned from a short camping trip with friends. We had a great time!
I’m looking forward to fall as well. Let’s all pray for beautiful weather and wonderful scans!
Hugs, Pam 💗
Re: Can we have a forum for "older" people with bc?
betrayal, the sewing was immediately post-cortisone. i regretted working on a jigsaw puzzle yesterday. Transportation failure again last Monday. They called me yesterday and I have yet another appt scheduled on the fourth. Remember this guy is also my plastic surgeon and gave me a cortisone injection during my implant exchange back last spring.
Making hummus right now.
mcbaker
Re: My Husband, My Life, My Love, My Family, My Cancer
I went to bed early so I had a good sleep. Even though I usually wake up when I need to go out in the morning, slept pretty deeply. Was having a dream when the alarm went off and don't remember what was happening but that is quite alright.
Got a little laundry going and will put away stuff to bring today to the hospital since I am having Herceptin. I always bring a charger, as if will be gone long enough to need one. Also will bring extra wireless ear buds. Get those packed up now. 830 should have laundry in the dryer which means Tigger will have to go at least until it is done.
Going to have an egg sandwich or rice and eggs with cheese which might be better to have instead, more filling, hoping to have breakfast made and eaten by 930 am. I always get an anxious when having appointments, mostly due to going out so I do the 4 7 8 breathing to release it because once at the hospital, I feel fine. I will post if totally different. I do have pizza left so could chop it up in the magic bullet with eggs and bake them too.
Anyway I slice it, appointment is at 1100am but have already booked the Paratransit so it comes around 1030. Pretty rainy today so will not be walking outside, if ready early from the Herceptin, may walk around a bit and leave the 200pm pickup just as it is, I will see how I am feeling.
In pockets for all who need me and wishing all of us a good day.
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
@raysal I went through this thing with low neutrophils and they lowered my dose to 400 well over a year ago, and I'm doing fine. My neutrophils still dip down, and I worry about an even lower dose being prescribed, but I have a superstition that I do better if I have my blood work in the afternoon. My onc says there's no scientific evidence for this, but it works for me.
Re: Starting Chemo July 2025? Gather here for support!
UGH! Well, I am trying the name brand Claritin to see if it makes any difference. I had been taking generic. I have a heating pad on my lap and that helps. I did speak to my treatment team yesterday. If my WBC is high they will dose reduce the shot this cycle so we will see. I appreciate everyone posting suggestions and their experiences, it is so helpful!
Re: Were you diagnosed young (under 45) with breast cancer? We'd love to hear from you!
I started hormone block therapy yesterday - surgery is pending until my results for genetics test come back. Once the report is sent to my oncologist we will discuss the surgery options for me. I am just grateful some treatment started for me.
marlize