Best Of
Re: Breaking Research News from sources other than Breastcancer.org
How did your trial work out! It's my understanding that the vaccines being touted these days are for triple negative and nothing for ER positive, but not totally sure. I asked my oncologist if he thought a viable vaccine would be out there fairly soon, i.e. at a point where it could benefit me, not to mention others, and he cautioned me not to get my hopes up too much, but then added that sometimes things can change rapidly. Just more luck of the draw I guess.
Re: Breaking Research News from sources other than Breastcancer.org
There are several vaccines in clinical trials in the US for Breast Cancer, HER2+ in particular.
I participated in a trial for DC1 Vaccine, which sounds similar, they took my WBC and combined them with DC1 with the intent of teaching my immune system to target any cancer cells
Re: Allergy due to Tamoxifen?
I have been wondering the same thing. I have been taking Tamoxifen for 1 year and experiencing seasonal allergy symptoms for the first time in my life. I have lived in the same house for 20 years, so it cannot be due to being in a new location. Then, while at the dermatologist today, he said that I must be allergic to one of the active ingredients in Neosporin - which I've been using my entire life. I have not yet met with an allergist - but I am seeing my oncologist next week and will be discussing these new found allergies.
Unofficially Diagnosed?
Hi all!
I am 42, and went for a diagnostic mammogram and ultrasound yesterday. I’ve been going since I was 30 since my mother had bc at the age of 40. I had noticed some tethering of the underside of my left breast and then felt around and found a new lump. I have firbrocystic breasts with multiple cysts and fibroadenomas in both breasts. I have had two fibroademonas removed from my right breast. Following my ultrasound the radiologist came in with her calendar and asked when I noticed the lump. When I explained to her that I had first noticed the change in breast appearance she asked to see what I was referring to. I showed her both breast with arms relaxed and then both with arms raised. The left breast has what I call a double chin with two dimples. Upon seeing what I was talking about she nodded and said yeah we’re going to biopsy two spots. One being the one I noticed as being new and one in an area that I have previously been told was a cyst. Prior to her leaving I asked if she felt that the areas she was concerned about were really something and she said “yes I do” while looking like she was delivering disappointing news.
I don’t get to go for my biopsies until the 18th and I am not freaking out, but do like to be properly prepared. This is the first time I have straight up been told that the Dr was concerned.
I feel as though she unofficially let me know that from what she is seeing, I have cancer. I know that I may not but feel like realistically the odds are that I do.
Am I wrong for thinking this way?
Re: Starting Chemo April 2024 Support Thread
@bailey.boo you look amazing!! You have a beautiful face and a super cute head!! It's so weird being bald isn't it?? I hope your taste comes back soon!
@grammie2 I'm so glad your platelet count went up!! Yay!! Hopefully your bowels will be good to you!
@halyy2024 I'm so very sorry to hear about the sickness and then your poor husband! Oh my goodness honey! You truly are Superwoman!
Just to let you all know, I also have melanoma IN my eye. Monday I will go under for a plaque placement behind and on top of my eyeball to deliver radiation over 4 days. I get to come home after but my eye will be sewn mostly shut and il wear a lead eye patch. I am so very scared and don't know how to control my anxiety. I've had a few surgeries but this one takes the cake on being scared. Please pray for minimal pain and anxiety 🙏 I should be happy that this will shrink and kill the tumor but oh boy.
My 3rd chemo is postponed until June 11 so I can heal a bit.
God bless you all and prayers coming for you guys!
Yes, my good eye is dry, bad one waters too much sometimes and is dry other times. Makes seeing kind of difficult 😕
Re: Starting Chemo April 2024 Support Thread
Ughhh! That sounds horrible. I’m so sorry you’re going through everything you are at once right now. No more bad stuff! I’ll be thinking of you and praying enough already. Hopefully round 3 will go easy for you!
Thanks for the baldy support 💕 My taste buds are still a little off but improving by the day. I definitely can’t handle anything with a lot of salt or too much tart lately. I lost about 10lbs or so but my scale needs a power cord, and I haven’t weighed myself this past week. I bet I’ve gained a couple back.
Re: Starting Chemo April 2024 Support Thread
@grammie2 thats awesome news! Wow number 3 done that’s amazing you’re almost there!
@bailey.boo glad you had an okay week and are eating well. Have your taste buds been affected by chemo? Mines changed almost immediately, things either taste bitter or like nothing at all. I’ve lost about 8 pounds already, but I also just had a baby before this so i don’t mind lol. Sorry you felt self conscious at the mall, I hate that feeling! If it’s any consolation you really do look super cute with a shaved head. Your features are so pretty you pull it off well! 🩷
My kids brought home a nasty flu from school, and we all got it. Sore throat, fevers, body aches. I had to postpone treatment a week so number 3 for me is Thursday when it should have been 2 days ago. I’m annoyed but whatever. It’s been such a rough few weeks, up all night with the kids managing their fevers and vomiting through the night while sick myself. To make matters worse my husband got into an accident on his dirt bike and broke his leg and had emergency surgery. So now he can barely walk, which means he can’t help with our 4 kids who are all little. I’m hating this season right now and hoping things get better from here!
Re: Starting Chemo April 2024 Support Thread
oh, that all sounds very positive! I’m so glad everything is going as well as can be for you and hope it stays on the up, @grammie2 💕 It gives me hope with my upcoming round.
I’ve been feeling like myself this week, working and doing all the normal things, trying to get all of my protein and produce in to get ready for round 2 this coming Thursday.
My hair was coming out in handfuls and I looked like a patchy, scraggily mess with random strands hanging on. I had to return something at the mall, and I felt so self-conscious. So I bought clippers, went home, and shaved myself bald just now. I look like Dopey Dwarf in a baseball cap, but I HATE the beanies and scarves I have, and the free hospital wig is horrendous. I have no clue what I’ll do with myself yet, but I feel much better. I hope my eyebrows and eyelashes hold out for a while!
Re: Starting Chemo April 2024 Support Thread
How is everyone? Been quite on here! I hope everyone is feeling good and things are going well!
Prayers worked! My platelets went from 98 to 233 in a week!!! All other bloodwork was good as well! So number 3 done! They started me on oral mag. so will see how I handle that. D could be an issue. But I usually start out with constipation the first 4 days, followed by 3 days of having to take immodium before eating. If it's a big issue those 3 days, I'll just skip those days.
grammie2
Re: Starting Chemo April 2024 Support Thread
@bailey.boo I am so glad you had a good time with your family!! I read on the eye thing that the watering may be coming from the eyes overcompensating for the dryness and become super watery. I'm trying to use eye lubricant to see if that helps. I have normally dry eyes anyway.
I have lots of fuzz left and one strip of hair about 1/2 inch wide and 4 inches long that is refusing to fall out LOL. It looks like a small mohawk left side on the top of my head LOL. I'm doing the wig thing for work, but generally just some kind of beanie the rest of the time. My brows and lashes are thinning too. Everything from the neck down is still hanging on for now. A little thinner maybe. Ugh.
If you are a praying person, please say a prayer for my bloodwork to be good for treatment tomorrow. Thanks!!
grammie2