Best Of
Re: How long have you been Stage IV?
@moongazer Sending big hugs of comfort and wishes for health and strength as you ride these terrible waves.
Hi all along with . @livinglifenow and @ssales13 My new dog Teddi’s first snow (she’s a rescue from TX)! She has brought so much love, cuddles and activity since she came into our lives late Sept. - so thankful for her. Been feeling rather well and hoping that is a good omen before my next scans in early Jan. Heading to Bahamas for a family vacation next week - DD and her husband and DS and his GF are coming with us. First Bahamas visit and first time for all kids - So excited!!
Sending big holiday cheer (Chanukah and Christmas) to all and big wishes that we all have only good health news in 2026♥️ juliana xox
eddiej
Re: Stage IV MBC Fitness
Hi, ladies! I recognize a lot of you here. Oh, exercise! It sounds like many of us had been avid exercisers in the past. I am currently trying to get in 7K steps/day. The weather has gotten crazy nice here this week, so lots of walking outdoors. Sometimes I do take my dog with me—on a leash! 🐕🦺
I also try to do light weights for upper body, and squats and hip lifts, etc. for legs. Trying real hard to avoid Zometa. My MO says as long as no bone mets show up on scans and my DEXA scan stays out of osteoporosis range, we can wait. Interestingly, my last DEXA scan showed an improvement in my hip of 0.3%. Those squats must be helping.
Heading out for another walk. Wishing everyone a lovely day.
Hugs, Pam 💗
Re: How long have you been Stage IV?
Graduated to Stage IV-2025
Hormone positive-HER2 negative
Once again-finding breast cancer, because of 2nd recent lung cancer surgery/diagnostics-Station 4R-1 node removed-capsule was broken
Possible malignancy-IMC-1 node R
from Stage 1B- 2022
Right breast US: There is a 12 mm x 9 mm x 16 mm hypoechoic mass in the 2:00 position of the right breast 12 cm from the nipple which appears to correlate with the finding on PET scan.Ultrasound of the right axilla demonstrates no morphologically abnormal lymph nodes. Upper inner quadrant-deep-along muscle.
This was removed. Declined radiation. 2 attempts hormone therapy failed. Beyond negative side effects.
PET scan was for lung cancer.
Twice it was testing for lung cancer that resulted in discovery of breast cancer
Cat scans never showed the mass in my upper inner quadrant.
Mammos every year for almost 30 years.
Recovering from recent rt lung surgery(severe to mild spine/ back pain)-paused aromasin-maybe I'll resume-radiation is most likely not feasible.
Genetic testing results upcoming
Consult: radiation upcoming
2 year DEXA upcoming
Borderline for osteoporosis
This is not a good time.
Re: My Husband, My Life, My Love, My Family, My Cancer
Grrr. Add me to the ailing list. My throat is so sore and swollen that I choked on a potassium pill last night. It hurt enough to make sleep difficult and fitfull. In addition I have had urge incontinence since returning from Laos. I bought more robust pads for night and ended up with a couple of blisters where it rubbed. Worse yet, I can’t see them so DD has been coming over to treat and rebandage. Poor thing she is so busy already and we don’t live close
wren44
Re: How long have you been Stage IV?
@ssales13 Stacey, snow is beautiful but also a challenge. Glad you are ready for work tomorrow. We had wind this morning but it is all calm now. Sunny, too! I’ve got to enjoy it while I can.
Hugs, Pam 💗
Re: My Husband, My Life, My Love, My Family, My Cancer
@goldensrbest I will be praying for you and your DH tomorrow for negative readings on his colonoscopy tomorrow. May God cover you both with His love.
@irishlove Hoping you continue to feel better and can enjoy the holidays. Sounds like we both struggle with loved ones at home who do not cook. My DH can cook some things, but fortunately they are not healthy for me. This morning he cooked sausage without the gravy. I have a PET scan tomorrow and cannot have any carbs today but I fear for my stomach. I told him I wanted eggs this morning and he thought cooking the sausage with it was brilliant as I can have meat today. Ughh! Thankfully the eggs are separate.
Re: Surgery scheduled for December 2025? Join the surgery waiting room for support!
I’m having a lumpectomy on 12/19. I have a 1cm tumor, IDC, DCIS, probably stage 1. I’ve been so worked up with all of the testing and waiting for results that I haven’t really thought about the surgery much. I’ m just ready to get it over with.
cosun10
Starting my 24th year of MBC de novo!
Yay! Today is the start of my 24th year after my dx of Stage 4 MBC de novo. Still hanging in here! Here's my history.....Dx’d in December, 2002. ER+, Pr-, Her2+++ Metaplastic BC. Had A/C & Taxotere. Left side was DCIS and Her2+++, but right side was tubular and Her2-.In 2004 my liver was filled with tumors. I had a liver resection, and then a clinical trial of then “New” Gemzar & Herceptin, which cleared out the mets in 9 months. Stayed on only Herceptin for 7 years, but had a chest node recurrence in 2012. Gemzar, Aromacin didn’t work. 3 years of Kadcyla along with Faslodex. When Kadcyla quit working, I had a Foundation One test which showed that my mets had turned to Her2- Somatic. Clinical trial of Poziotinib that got rid of the nodes in 8 days. But Poziotinib was so nasty and toxic that the trial has been ended.Now NED and have been on Xeloda and Herceptin for 8 years.
denny123
Re: My Husband, My Life, My Love, My Family, My Cancer
In need of positive vibes and prayers. DH has a colonoscopy tomorrow after having an abnormal cologuard test. Just cant shake the idea that something is wrong. Thank you.
goldensrbest