Best Of
Re: Ibrance (Palbociclib)
Aprilgirl, so sorry to hear that you have covid! Glad that your team got you the paxlovid, I think with our systems dealing with all the meds we're on, particularly the hit that Ibrance gives to our WBC, paxlovid is a very good idea. Hope you continue to recover ❤️
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
Sf-cakes sorry to read of your latest struggles. DH cooked bacon and eggs on the outdoor grill this morning and we ate our first meal on the new deck. I will pay for the rich food soon I'm sure, but we really enjoyed it. Sorry for those who are struggling with food issues...and no, I couldn't finish it…
The second pic is our viewfrom the deck.
Re: My Husband, My Life, My Love, My Family, My Cancer
In pockets for intolight, threetree for scans, and mkestrel for starting a new medication. None of this gets any easier. I'll be in your pocket, munching on dry toast (sorry for the crumbs).
Sondraf, so good to hear that you're slowly building up stamina, and that the evening walks help you sleep better.
Emac, thinking of you.
Mel, I'm with you - if someone could go hide the cancer in the woods (and also snag some of Irish's morning glories at the same time) that would be great.
Had something hit my system, headache and diarrhea, thought it could be covid but tests were negative. So am eating dry toast, rice, bananas... the usual boring bland stuff that makes me long for a pizza! But it's working so I'll stick with that for today at least.
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
Good Morning and Happy Sunday my Lady (and Gent?) friends here in Mels Livingroom.I’m here with my coffee. So after. The many weeks of feeling painful and low I decided, after talking a lot with God, in daily prayers, I decided to buy myself an new soft cover Lavender Bible and a Grace for Today one minute daily devotions soft cover leather little book. This little book is delightful to read a page in the morning with my coffee
I skimmed through the Fasoldex SE’s along with the other 2 drugs. I saw that I have each one, and the last 2 days flu like soar throat and headache along with the bone pain, and all the other side effects. There’s nothing I can do about this but continue these medications and push through the painful effects.
Wishing you all a blessed day of comfort and peace.🩵
Re: Bone Mets Thread
@sunnidays, for years I had problems with my left hip, it ached fiercely at times - I get diagnosed with cancer and I haven't had an ache in almost a year. My friends have said the same thing to me about opioid addiction - and then laughed when they realised most of the opioids don't work for me.
I do know that I get so stressed about the scan process that my muscles are tightly clenched for days beforehand. Then I get pain as the muscles relax. My scans are generally a disaster, process wise - either nurse destroys a vein, strips me mid scan in an open room or contrast leaks everywhere. Scan results so far have been good - but I am wondering what disaster will happen this morning when I have my next set.😱
Re: Are you currently (or have you been) in a Clinical Trial?
Hi Cure-ious,
Interesting about the BRD4, I'll ask about it on Tuesday. :)
Good to know it wasn't just me who couldn't find info about the DDC, haha. I thought my Google skills were failing. I'm planning on taking notes at my consultation, so I can pass along more information. I have a restaging scan on Tuesday as well, so I may be starting this trial - or some trial - sooner than I'd like if Halaven stopped working.
I'll keep you all posted. :)
Lauren
Re: Ibrance (Palbociclib)
I have scan-xiety from upcoming scans in 1 week. My husband is having scan-xiety also. I'm on my 40th cycle of Ibrance. Any advice?
Re: My Husband, My Life, My Love, My Family, My Cancer
Intolight - Thanks and absolutely wishing you all the best with your MRI. I like your storm analogy. I will have both. The "scan scare" plus the "pineapple express" that will be hitting us here in the PNW starting tomorrow.
Re: My Husband, My Life, My Love, My Family, My Cancer
@threetree and others who have scans on Monday, I will be thinking of you all as I go for an MRI of my liver on Monday. We shall see what the future holds. Praying everyone stays safe from the storms both from weather and just from life.
Re: My Husband, My Life, My Love, My Family, My Cancer
Im with you @micmel about a big tall ice-filled glass of water and how it quenches like almost nothing else. I crave ice water usually in the afternoons, sometimes Ill do half lemonade and half water. I also keep a litre bottle of cold filtered water in the fridge at all times. I can still do carbonation so in our crappy fridge that freezes anything towards the back, its lined with Coke. Oh man, nothing but nothing can beat an icy cold sip of Coke from the bottle (500ml not like a giant 2l). I can't drink a whole bottle in one sitting so it takes a few days to finish, but its just such an enjoyable hit to my crappy chemo-ravaged palate. Gotta be ice cold from the fridge though, warm in glass with ice not the same.
I got a bag of blood on Thursday so I have some get up and go today but I got nowhere to go and the weather is terrible so Im planning our trip home in late July and a trip to Madeira in late September. Walking in the evenings to work up stamina (I got a lot further in 10 minutes yesterday than last week) and also to improve sleep - my fancy watch tells me I actually enter deep sleep on the days I walk just 10-15 mins in the evening, so thats a good incentive too. And Im doing light arm weights and the 12 minute routine on Senior Shape Fitness to work the arms. Hip is stiff but definitely improving, so Im hoping in two weeks we can maybe go to a movie or go somewhere on public transport. So tired of taking Ubers to and from the hospital - it took an hour and 20 minutes on Thursday evening to go 8 miles due to London weekend traffic leaving the city!
We are considering a side trip from just seeing my parents, and I was wondering if any folks on here know of a good beach stop (clean,not overbuilt, kinda classy, maybe national beach front) between Washington DC and Williamsburg? My sister is moving to W'burg next week and Ive never been to that part of the country outside DC, a five day side trip would change things up a bit and hubs loves a bit of roadtrip. I dunno, might be a bit much but Im improving so quickly it could be ok, especially with 10 days to rest after at parents.
I hope everyone is doing much better and improving, thinking of you especially @emac877 - you deserve it!
sondraf