Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
There were gobblers in my garden wild turkeys... I might have to put up a fence! I put up some hummingbird feeders and they have found it.
I have radiation all next week and then start new med everolimus. I'm nervous about the med side effects. Already started exemestane. I think radiation might be making me tired but it's hard to tell with everything else.
Shanagirl, Irish and everyone else I hope you feel better today.
mkestrel
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl and @threetree We are alike this morning. I am enjoing my morning coffee, reading through these notes, and struggling through my morning SEs of Faslodex. This time my shot site swelled up and was very painful on one side, but not bad on the other. The nurse pushed the meds way too fast! When she was done with the first side and I realized this, I tried to tactfully tell her I do better if she slowed the shot way down, but she only slowed it marginally. She told me beforehand she warmed it up, but that is not enough. Why won't they listen! Next time I am telling the nurse what happened and being very vocal beforehand. I had to change appointment times and got a different nurse than usual… I should have known but it shouldn't matter! Arghh!
Today is supposed to hit the mid-eighties…warm for Colorado, but happens every year. Had a lovely visit with BIL's family yesterday and even went out to lunch. It is nice to have good days even in the midst of the pain.
Thinking of everyone here and the challenges next week brings.
Re: My Husband, My Life, My Love, My Family, My Cancer
Oh thats really lovely view there @intolight. What a beautiful place to sit and read or watch the world go by. And Ill take some of that bacon if you don't mind :)
@shanagirl do you think a visit with pallative care services at your hospital would be helpful to manage all the side effects? Seeing everyone else's success I think I may ask for referral tomorrow myself as I am struggling to manage GI, fatigue, and aches and pains, especially as the good anti nausea pill gives me D just like everything else. Ive got pain management but Im not sure the difference, so perhaps a new perspective would be good. Its just tough to be miserable every 12 hours waiting for this or that pill combination to kick in, surely there must be a better way!
I woke up craving a lamb samosa (I know I know…) so sent hubs to the Tube station newsagent to pick one +a veg up and the new Tatler issue. It sounds weird but the shop owner's mom makes them and biriyanis and other Indian options fresh and packages them up in the chiller section so they are gen-u-wine Indian food and so good. That + an entire Coke (it was sunny and warm today finally) = bad bad BAD idea. I think it made me more achy the rest of the day but it was tasty going down! Im now having fruit and yogurt for dinner and packing carrot stix and hummous, maybe half a pb&j for the hospital tomorrow. I can't eat another damn hospital sandwich.
Infusion 4/6 tomorrow and another Phesgo. Im going to have to ask for a better anti-D than Immodium, does one even exist?
Big cheers /fluffy pom pom action waving around from a seated position for everyone nervously heading in for scans this week. You can do it!
sondraf
Re: FAST Foward radiation treatment schedule option
@pearlyeve I hope you're doing well and you have likely finished your treatments by now. My last one is this Monday, it's gone really well - so far 😀 I'm off work right now and am grateful for the daily routine the hospital visits bring and am indulging in lots of rest.
I too am a bit worried about the swelling that comes and goes in my hand and lower arm, I'm trying to figure out what brings it on. Cording seems to be lessening but is now stubbornly in my hand.
Yes, I totally love birds and have spent many hours in my backyard (in the city) enjoying the spring migration. Take good care, would love to hear how you're doing.
birdlife
Re: Ibrance (Palbociclib)
Aprilgirl, so sorry to hear that you have covid! Glad that your team got you the paxlovid, I think with our systems dealing with all the meds we're on, particularly the hit that Ibrance gives to our WBC, paxlovid is a very good idea. Hope you continue to recover ❤️
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
Sf-cakes sorry to read of your latest struggles. DH cooked bacon and eggs on the outdoor grill this morning and we ate our first meal on the new deck. I will pay for the rich food soon I'm sure, but we really enjoyed it. Sorry for those who are struggling with food issues...and no, I couldn't finish it…
The second pic is our viewfrom the deck.
Re: My Husband, My Life, My Love, My Family, My Cancer
In pockets for intolight, threetree for scans, and mkestrel for starting a new medication. None of this gets any easier. I'll be in your pocket, munching on dry toast (sorry for the crumbs).
Sondraf, so good to hear that you're slowly building up stamina, and that the evening walks help you sleep better.
Emac, thinking of you.
Mel, I'm with you - if someone could go hide the cancer in the woods (and also snag some of Irish's morning glories at the same time) that would be great.
Had something hit my system, headache and diarrhea, thought it could be covid but tests were negative. So am eating dry toast, rice, bananas... the usual boring bland stuff that makes me long for a pizza! But it's working so I'll stick with that for today at least.
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
Good Morning and Happy Sunday my Lady (and Gent?) friends here in Mels Livingroom.I’m here with my coffee. So after. The many weeks of feeling painful and low I decided, after talking a lot with God, in daily prayers, I decided to buy myself an new soft cover Lavender Bible and a Grace for Today one minute daily devotions soft cover leather little book. This little book is delightful to read a page in the morning with my coffee
I skimmed through the Fasoldex SE’s along with the other 2 drugs. I saw that I have each one, and the last 2 days flu like soar throat and headache along with the bone pain, and all the other side effects. There’s nothing I can do about this but continue these medications and push through the painful effects.
Wishing you all a blessed day of comfort and peace.🩵
Re: Bone Mets Thread
@sunnidays, for years I had problems with my left hip, it ached fiercely at times - I get diagnosed with cancer and I haven't had an ache in almost a year. My friends have said the same thing to me about opioid addiction - and then laughed when they realised most of the opioids don't work for me.
I do know that I get so stressed about the scan process that my muscles are tightly clenched for days beforehand. Then I get pain as the muscles relax. My scans are generally a disaster, process wise - either nurse destroys a vein, strips me mid scan in an open room or contrast leaks everywhere. Scan results so far have been good - but I am wondering what disaster will happen this morning when I have my next set.😱
Re: Are you currently (or have you been) in a Clinical Trial?
Hi Cure-ious,
Interesting about the BRD4, I'll ask about it on Tuesday. :)
Good to know it wasn't just me who couldn't find info about the DDC, haha. I thought my Google skills were failing. I'm planning on taking notes at my consultation, so I can pass along more information. I have a restaging scan on Tuesday as well, so I may be starting this trial - or some trial - sooner than I'd like if Halaven stopped working.
I'll keep you all posted. :)
Lauren