Best Of

Hello all, just checking in as I am now 1 year into my stage 4 diagnosis and Kisqali treatment. Going for my 3 month scans in 2 weeks and feeling some scanxiety. I have no new symptoms with the exception of appetite loss. Any one having the same? I wonder if it’s just nerves. I am feeling stressed and can’t seem to control the stressful thoughts like I have been doing. Maybe once I get through these scans.

Big Hugs

Lafish

Hi Soldanella,

Thank your for your input. My rash looks like dark red pimple looking things and if I touch or scratch them they have a flaky center. They look like guttate psoriasis more than a rash. They are scattered all over my body. I keep doing research and it seems that the Faslodex can cause this to happen too. I am off Truqap for the next week to see if it makes a difference. Have Faslodex shots on Halloween and my Zometa infusion. Getting cold here too so I will not be wearing anything that shows this mess on my skin. No scans till November to see if the Truqap is working. God Bless you and sending healing vibes your way.

I have been getting fulvesterant shots for over a year and have had no problems. I exercise and walk the first 24 hours afterward. I work out with weights 4's a week. 2 focus in lower back, glutes and legs

This last shot has been a challenge. The pharmacist says they are the same ones I always get and ingredients have not changed. The shots look like they were in the right location. I had a reaction to the bandaid, first time in about 2 years so know where they gave it. I am allergic to adhesive. The bandaid was a diffent shade of tan this month. My scans were just done 2 weeks ago and were negative.

I two very painful spots slightly below the bandaid marks. My whole lower back aches, hips, and my legs. I have been in touch with my drs office. I am using Tylenol, heat, butt stretches, and will do some walking. I am also gently massaging the area around the painfull spots. I need to message the office back Monday. Until then what else can I do or try to improve my pain?

@eddiej, @ssales13, @tougholdcrow, @eleanora, @chicagoan, @emiliamarty and anyone else on this thread!

Well, I have returned from my PET scan, had Olive Garden take-out (I was famished), and have the results of the test. No evidence of metastatic disease!! Yay! The only thing of note was "Multifocal ground-glass pulmonary opacities with mild hypermetabolic activity, most consistent with an acute infectious or inflammatory process." Just FYI: I did have "something" several weeks ago where I felt absolutely horrible. Lots of sinus issues and coughing. According to some online searching I've done, this is the most likely culprit and can take some time to disappear from scans. Not too concerned as I am feeling better now, but as I mentioned earlier, I take a long time to fully recover even from mild sleep loss or eating at the wrong time. I must get back to a normal routine.

Wishing and praying for fantastic results for the rest of the October Scan and Imaging Girls!

Hugs, Pam 💗

Hi all!

@rlschaller Thank goodness that you are on a chemo regimen now, as your skin mets take advantage of any break in the action. Looking after all the moving parts is like a full-time job, and you also have a job! How are you managing your much-loved teaching these days?

Like with your situation my skin mets are the focus of the moment, even though I have bone mets too, which are somewhat in the background at the moment. Of course they are being monitored, but the skin mets are so striking that they get much of the attention.

Oh for a clinical trial! We wait in hope.

@cookie54 Hope that you can take a deep breath and feel rested these days.

Hugs to all!