Best Of

@shanagirl Thanks for your update. Always a relief when we hear from someone who hasn't posted in a while.

@mkestrel and others. I appreciate you posting what your doctor is thinking. It helps all of us to try and figure out what the best next course of action is. Your nature photos are always so healing.

@mara51506 Good for you for trying the outdoor walk with your walker. At least you made it home safely and now you know it isn't the best mobility device for you.

I kind of overdid it with two fairly long walks on Thursday and Friday (2 miles 2 weeks after my hip replacement). I was wiped out on Saturday so now I am not pushing myself so much. I did take public transit and walk last night to make it to a concert. Today I just focused on PT exercises. I'm pretty amazed at how quick the recovery is from the anterior hip replacement. I'm no longer even using a cane in the house. It hasn't been a picnic but the agonizing pain I had walking before the surgery seems to be gone. Now my leg just hurts at night after I've been sleeping. Relieved that I got clearance to resume Ibrance today. I don't know what the change in treatment will be but for now I'm still on Ibrance/Letrozole. My MO set up a telehealth appt for the end of Nov so I guess she isn't too concerned. In the meantime I'll be consulting with a radiologist.

@shanagirl hug to you, sorry you had to cancel your trip. I hope you improve enough to go soon.

Doc wants a PET scan to see if the new liver lesion lights up before deciding to change treatment. Also since the other two were smaller and nothing new on bone scan, might not change. Maybe consider ablation procedure or radiation target option too depending on location etc. yippee yahoo sigh

Well, the force was with me on a terrible walk. I did use the walker, it was as bad as I remember, kept hitting right foot on the wheel then at time, it got away from me until I put breaks on. I did make it there and picked up the prescription, I did down a whole large bottle of water and did take rest breaks BUT once I got close to home, I was feeling the faint feeling. Got to my steps, folded the walker but was super tired at that point, neighbour helped me get walker to my place but I had to hold onto the railing to feel balanced. I think if my place had elevators, that part would have been easier to get the walker in but have to carry it up and when already feeling a bit faint, does not work.

I am no longer going to worry about walking with a walker, I don't like not seeing my feet, cane will suffice and get steps in the house. As said walker kept wandering off ahead, I found it difficult to keep my feet in that space, seat was nice but I almost lost balance getting up. If I had to, would take the bus places, bus stops are not that far away and feel more sure on my feet.

Also, even though it is only around 50 F, my face is bright red too so that may be an issue. As far as outdoor walking, that is no longer an option, indoor on treadmill will be fine, walk on the spot etc, shoot, sit my butt down and march my legs or lift legs in bed and march. One thing I will say is that all the PT on ankles and hips and such did come in handy to keep me up when a stumble could have happened. I also got 9000 steps round trip so guess that is good too.

Not getting rid of walker but tucked it out back instead.

Now getting something to eat, nice not to have fallen but will continue with my cane instead. Keep this experience to myself vs SIL, she has enough to deal with herself, wish she would tell me but have to wait til I see her. Not sure if epilepsy is getting worse or what. Again sit on my hands until we see each other. Once I have an appointment at the other hospital with my neurosurgeon, she comes for that and I will ask.

In the end, it is good to sort of add up the good and bad, good was no fall, almost stumbled but could catch myself. Did manage the walker most of the time except when it felt like it was moving ahead. Handled that well. Sitting along the way was good too.

The one thing I cannot do anything about is my thermoregulation even in cooler weather. My face was bright red, lets me know that it is not necessary to walk an hour outdoors but keep the legs strong in the house, walk around with a cane. Make sure walking to a bus stop if need be

I did not getMcdonalds after all, had my new snack of choice, putting Honeynut Cheerios into a peanut butter container, I must say that taste combo is really good and filling though may have to make an egg a little later.

Hi All you ladies friends, I’m skimming thru and catching up. Those needing pockets i’m here for you. It’s been awhile since i felt up to posting,and even reading up on you all. It was a very difficult summer anthem appointments, procedures, scans and treatment traveling back and forth an hour. And 1/2 back and forth in the heat and summer traffick.Ihad 2 procedures in the same month, they were not fun and I needed a strong anesthesia for the bothe of then. My dr, I guess jokingly told me not to worry he has a heavy hand with the sedatives so. Was totally out of for the bronchoscopey and the radio Frequency ablation in my cervical spine. During lol of that I had “unresolved pneumonia,and PFT tests..they were also checking out my hip and right femur because of the pain I’ve beee having and mobility issues.. I felt so exhausted and down theses past weeks i just wanted to isolate and stay away from reading here. Today I had the follow-up with the radiologist who did the MRI. It confirmed there is a new met very small that was not there 6 month ago so I have to decide with my drs how we will treat the painit’s causing in my hip. I hate cancer. I just got a calllback from the pulmonologist because my cough is back with i a vengeance so he’s going to put me on not her course of steroids and cough syrup Promethaine.. . I feel so disappointed that we had to postpone our trip to Florida to se my 2 Great grand baby boys, and my grandadaughter and her husband….we were supposed to fly down this month but DH says he will not let me take the trip until I feeling better and able to walk again.🙄.I guess I should be grateful that the progression was only one met. I’m going to ask my onc if i should go back to the original dose of Verzenio, could this be from decreasing my dosage?. i also have an appointment next week with the chief of orthopedic oncology who is very optimistic i will be walking the dogs on the beach again,. i’m so sorry for dumping all my negative stuff again. sending you all love and hope all is well. (((((((💓💗))))))) and sending lots of hugs