Best Of
Re: How are people with liver mets doing?
I am posting because I am super scared and looking for any glimmer of hope…
A month ago I discovered a lump in my breast and armpit. I had a port scheduled for this Friday to start chemo. But to everyone’s surprise a ct scan showed the cancer spread to my liver. So now I am stage IV de novo. There are at least 6 lesions. A couple are around 1.5cm and the rest are sub centimeter.
I am 39 years old. I have 4 young children. This is my worst nightmare. I went from thinking I could beat this to think I have a few years with my babies at best. I need to hear positive stories.
Other than this cancer I am healthy, I have no symptoms. The cancer in my breast is HR+ and HER2- (technically low). I will be having a liver biopsy to see what the receptors are there. This is just unbelievable. I’m so scared. So far the oncologist said the plan is tamoxifen, Lupron and Kisquali. No surgery, no iv chemo, no radiation? NOTHING? She told me my diagnosis an average of 66 months of survival. this is not enough. I have a baby. She needs her mom. I want to see my kids grow up. Is this true?? Are there any other liver Mets that have made it 10 years? I’m so sad and depressed I can’t get out of bed. I know I need to live my life now, but all I think about is everything I’m going to miss, and how my kids will be without me.
Re: De Novo Stage IV
Dear SondraF, uhh, so sorry you are facing these challenges again. Yep yep, Cleopatra… many protocols on HER2 side that HR people do not know and vice versa. I also pretty much know more about HER2 treatments because of my wife's diagnosis. One thing is very interesting - mutating to Her2+ is not very common and opens a lot of new treatments, so this is why your MO is so excited. And so we are. I'll say a little prayer for you tonight, so that your bad cells have reached their limits and will all die of HER2 therapies that are very very effective. Lot's of hugs and please keep us posted,
Saulius
Re: Big Lump on Butt from Faslodex Shot
My Faslodex injection in February 2024 must of settled around my sciatica nerve. Could not bend down and pain unbearable. It’s been 3 months with hardly any relief. Been rubbing and even went y to Chiropractor to try scraping. Pain cream also used. I’m getting desperate for some relief from this pain. Also have numbing and tingling from lesion on sacrum that has hit nerve. Any suggestions accepted.
Re: How Breast Cancer Has Changed How I See Myself
I guess it was all the waiting and not knowing that motivated that post. But I had the best news any of us can imagine…. I'm cancer free and I do not have to take hormone blockers. I was diagnosed with DCIS the end of March and had a double mastectomy April 15. It was a whirlwind but I trusted my surgeon and her very delightful team. Two weeks later I had my drains removed and yesterday May 21 I had my follow up visit with my surgeon and the chemo doctor. My surgeon said I can resume normal activities and my scars looked like they were healing well. I have a bit of swelling still and I still wear a tight binding sports bra. She recommended massaging the scar tissue and she said she'd see me next year. Then the chemo doctor said since my margins were clear and there was no invasive cancer in either the breast tissue or my lymph nodes I didn't need to take the hormone blockers.
All this means I can resume my normal life. I don't need to read more research or obsess about breast cancer. I'm free to move forward and I'm hoping this is the outcome for all of us.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
Thank you for letting us know, @kbl. We are so sad to hear this news. Debbie was a well-loved member of our group and we will miss her dearly. Sending hugs to you and all who knew Debbie and wishing peace for her family at this difficult time.
❤️
—The Mods
Re: Starting Chemo May and June 2024 Support Thread
Got a note in my online portal about my PET scan saying that it doesn't show any metastases. I'm so relieved. I know it's not guarantee of the future, but makes me more comfortable for now. I'm sure every human on the planet will have lots of findings in a PET scan, so I have a lot of questions - but they don't seem to related to cancer.
Feeling pretty good today, but still tired. Next treatment is tomorrow. But I'm going to enjoy today - my son (my youngest) is graduating from high school tonight!
Re: My Husband, My Life, My Love, My Family, My Cancer
Thank you all for the concern. I am hoping to be discharged today. I have a feeding tube now and it seems for the next six or seven weeks I will be on in ice chip and clear liquid diet that is low acid while my esophagus heals. My main nutrition will go through the PEG tube. I'm also hoping that I can get an appointment with my oncologist soon so that I can get back on treatment. The blockage of pills was about 4 inches long so I'm not sure that any of the Xeloda that I was taking actually got absorbed. I can attest that a starvation diet does not kill cancer. They've been working on my labs all week to normalize them after I got so malnutritioned.
I am also loving the pictures. The rodeo was fun. I actually rode English most of the time but Prescott was a very "cowboy" town when I lived there so I gave it a shot. I think my horse was happy to go back to trail rides. That was something like 22 years ago. It all feels like another lifetime ago.
I will check back but I'm typing this on my phone which I am not very good at. In pockets for everybody that needs them and again thank you for messages of support. This group is amazing for that. @intolight congratulations on NED. That is amazing news!
Re: De Novo Stage IV
@sondraf I am back in the dark ages and still on Xeloda and Herceptin. And that is even though my Her2+++ has changed to Her2- somatic. Good luck with everything!
I talked to my triage nurse yesterday and asked if I can get my Herceptin infusion over an hour in hopes that I don't have as many SE's. Will have it this Friday.
Re: My Husband, My Life, My Love, My Family, My Cancer
Irish - Poor, poor kitty. I hope you find her, or that she comes to you.
Re: I’m losing hope….
I am her2- so I won’t qualify. I’m so depressed I can’t get out of bed or take care of my kids. I can’t believe this is happening to me