Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Happy Birthday Goldens.
So, I thought I would call the triage nurse since I almost passed out and was dizzy for about five minutes which has been getting worse lately. I was hoping she had some helpful words. But she said basically (my wording) because of all the crap I am taking this is going to happen and I am probably going to get worse. I am supposed to monitor myself, make sure I eat and drink water, and let my PCP know when I see him in two weeks—two days before I see my MO. So no help at all. She was telling me all the stuff I know since I have been going through this for the past eight years, but I was a little hopeful. My bad. I am not sure what I was hoping for, but should have known better. My blood sugar is good. My BP goes from high to normal within just a few minutes, and my bloodwork is "stable" in her words. So like the rest of you I just need to accept all this and let it ride. I am a "fixer" so this goes against my normal grain, but perhaps I am just having a bad week and just need to find a hole to crawl into. I just hate to keep scaring my family…
Re: The tests seem neverending
im newly diagnosed stage one. My MRI last week showed larger area than US and Mamo showed. I'm learning quickly that there are twists and turns with these journeys as more info is gathered. I guess I'm trying to be greatful that we now have tech avail to really see what's going on in order to formulate the best plan. Better to be safe. If you've not had a biopsy before it's not bad. I had 4 spots checked same time. I wish you an easy time and yes distraction is key during these difficult days. My thoughts are with you.
Re: Can we have a forum for "older" people with bc?
I had my infusion today with no problems, now hope no side effects - watch for blood in urine, stool, nosebleeds. My counselor met with me during the infusion so the time went by quickly
Re: So...whats for dinner?
What's more fun………..The main route to Phoenix has a fire burning nearby the highway. Tomorrow, a Type 1 incident management team (Type 1 teams are reserved for the most complicated incidents) will take over the management of the fire fighting efforts, so this fire is expected to be "uh-oh".
The secondary route has road closures due to blasting operations related to replacing a bridge, so traffic is being rerouted around the site via a road…..that is currently closed due to fires.
The third route just reopened after the fire moved far enough away from the roadway.
The 4th route is an extra 6 hours drive time…but there's a fire along that route as well.
I got some "on my own" tickets to fly to Phoenix from Show Low and I'll spend the night at a friend's house. The plane holds four passengers, the pilot and the co-pilot. The last time I "flew", about 15 minutes after the plane was to take off, the gate crew showed up and told us the flight was canceled. They got a bus from Phoenix to take us to the Phoenix airport. wait 4 hours for the bus, then ride for 4 hours…but there are the potential road closures.
Hopefully I won't have yet another 'war story'. :-)
eric95us
Re: how about drinking?
Good Morning, Loungettes! Happy Twofer Tuesday! I am definitely doubling up on the water intake today. It's currently 84 degrees, with a heat index to 96 due to the heat index of 66% and dew point of 72 degrees. Just plain yuck. Even the puppers are just laying around snoozing and doing nothing. Still, it's better than what my brother and his wife are dealing with today, currently 88, heat index of 100 with 69% humidity and a 76 degree dew point. They've got a heat advisory on for their area.
Carole--it's possible to have normal bone density and bone or joint deterioration simultaneously. Deterioration is the wearing and damage done by use/overuse/arthritis/injury, can and does occur with normal bone density. Low density bone deteriorates more quickly than normal density bone under stress. Good idea to start the back pain exercises as early as possible. Mom has had back issues as long as I can remember, and when she could get down on the floor and do them she managed much better.
Karen--arrgh, hate it when losing something that way! I've got bunions, too, and I hear you about them hurting when wearing shoes. I wear sandals and crocks or crock-type shoes except for dressy times, and that helps. I hope you can avoid surgery, or if not, recover very quickly. I'm glad to hear 68 is still young, I've been feeling a bit old since I retired, and I'm only 65!
Morning, Carole!
Toes in the Sand
Ingredients
- 3 oz Aged Rum (we used Cruzan Aged Dark Rum)
- 1/2 c Guava Nectar
- 1/2 c Pineapple Juice
- 1/4 c Club Soda
- Coconut Water (for ice cubes)
- Freshly Ground Nutmeg (optional)
- Pineapple Chunks (for garnish)
Instructions
- Pour coconut water into a mini ice tray and freeze until the cubes are hardened.
- Fill a mason jar with the coconut ice cubes.
- Shake all ingredients together in a cocktail shaker, then pour into the mason jar over the coconut ice cubes.
- Sprinkle with freshly ground nutmeg, them garnish with a pineapple cube and a pineapple frond.
From <>
Re: Thickening on breast/upper chest, nothing seen on mammo or u/s
my new pcp did order the mri, bless her, today
My thickened areas ansand nipple changes with arm movement worried her I think.
Just need ins to auth the mri 🙏🙏
knit_wit
Re: My Husband, My Life, My Love, My Family, My Cancer
@tanya_djamila i had a pj day today too after long hospital day yesterday and walk to the tube station. I felt sort of guilty...then fell back asleep each time :) You really do need to push yourself to do things, though, but once you get going you keep going.
Happy birthday @goldensrbest! I hope you had a fab meal with family and everyone let you know how loved and appreciated you are:)
@sf-cakes I went with the Optibac brand as it had specific strain i needed to boost post c diff. However, after seeing what you ladies are taking, I think ill check out those Culturelle products with a broader spectrum. I think a happy gut can take uou far and that whole link is only started to be considered vv cancer. What's one more pill, at least one im choosing to take, in the evenings anyway?
Today was ok, as noted it was a post infusion recovery day. Scan results were confusing as they showed worsening but there was a month between last scan in April and when I started Taxol that we suspect a lot of this stuff happened during that period. We'll scan again when I get back from the US but I have another cycle of three Taxol here to see if it continues to improve stuff or not. But my pain is under good control and ten ton leg is softening and lessening so we are getting somewhere more positive at least.
Got loads to do and I don't want to do any of it, so I guess I'll start with something small while the football match is on in thr background. Have a nice day everyone!
sondraf
Re: Reconstruction?
Thanks for everyone for the responses. I meet with the surgeon to make a plan tomorrow morning, and I am still undecided. This is not easy! I wish my health and life wasn't literally on the table! Then, it might be easier to make a decision. I had no idea that there were so many choices. Again, I am still leaning towards no reconstruction, at least for now. It just feels like me. I will let you know what my surgeon has to say. Thank you for all your support!
Re: Ibrance (Palbociclib)
Hi all , thanks for the support on my move :) it feels good but it is overwhelming, ha! I decided to call it "right sizing ";)
@sunshine99 let us know how you are doing and what the plan is going forward . Sending prayers and good energy that this tx will kick the cancer to the curb ! @brutersmom Atomic ranch might be a west coast term :) I'm so happy you have a new care team and they are on it ! That is what we need .
Here is a photo of my view , over a rooftop of a waterfront home :) I'm not waterfront but close enough .
Hope all of you are doing as well as can be expected. @Rosebessie - was that you with the adorable Zumba photo ! I lost a big post a few days ago so am afraid to scroll back :)
Re: My Husband, My Life, My Love, My Family, My Cancer
Happy birthday Goldens.
Thanks Mara for pocket duty today. I get my faslodex injections.
Yesterday I stayed in pajamas fatigue and pain from mouth lesions and other issues. It doesn’t take much to start the pity party over here. I willed myself to get up and bake cookies with my grandkids. They love to crack the eggs and none ended on the floor. Afterward cvs finally had magic mouthwash after more than a week of back and forth about missing ingredients.
Grateful as soon as I had mouthwash.
Afterward going to check on my friends cat as she’s out of town. I may pick up something for dinner. I’ll see how I feel.
Take care all
Tanya
