Best Of
Re: Are you currently (or have you been) in a Clinical Trial?
Thank you @eleanora and @irishlove
I appreciate the warm thoughts and prayers.
One other thing Dr. G said was that he wanted to inject chemo directly into the tumor, but he didn't know if "they" did that. I want to know who "they" are and if he found out if they could do it or not, because that's exactly what I'm looking for. I don't think I have time for Talzenna/Keytruda to work and this would be more direct.
Looking forward to the appointment tomorrow. I don't have an infusion appointment set up yet for the Keytruda which makes me a bit nervous thinking he may have changed his mind, but that could just be some healthy paranoia.
Thanks so much for the support, everyone…you don't know how much I appreciate it.
❤️CBL
Re: My Husband, My Life, My Love, My Family, My Cancer
OK, talked with SW today, she understands me not knowing what services I may need so instead she will phone in a couple of weeks. My RO appointment was pushed to Dec 11, they are trying to have a followup after neurosurgeon appt, I did get the extension of the office of the neurosurgeon so I will call Monday since they are closed until then. SW thinks I sound pretty relaxed about the brain thing and I said, I do not know what will be involved with that so no point worrying and upsetting myself. Helps when I have a general idea on what benign drain or removal may look like or a metastatic cyst which would involve surgery to remove and radiation again. Been there done those.
Re: My Husband, My Life, My Love, My Family, My Cancer
Thank you all for the birthday wishes, @irishlove I am sorry you had UTI but glad you are almost done antibiotics.
It is very sunny today, we are going well above freezing and will stay above freezing for the next couple of weeks. I don't mind. It is recycle day, more paper bags to dispose of. I put away blue bags and I have put them somewhere that is not immediately visible to me. I will find them though. I also need to check bin out back I use to see if I put recycling out back. My walker is still tucked in out back, it is a covered back section so it has not been through the elements. I did see the coolest thing ever, it converts from a regular walker to a motorized wheelchair. Pretty sure it is thousands of dollars though and unnessary for my particular needs.
I am also tackling laundry, what else is new, I love it and have some clothes to dry out on a rack and some regular cleaning cloths. Got my ambo bill settled I think, if on disability we are not supposed to pay, I will see. Took pictures of the receipt and my monthly statement. No printer at this end either so had to take pictures and email the images. If they don't accept the email I sent, I will look at paying the 45.00.
Not sure what to have. Got chicken dogs which I am unsure I really like so thinking could cook the heck out of them first in microwave and then ground them up with some cheese and beans, I will decide a bit later, not hungry yet. If it turns into something fantastic, will post it.
Social worker is calling today re services I may need, I don't actually know what is needed. Nursing care is not needed. I think I will let her know I have not been referred to neurosurgeon as of yet so have nothing to request yet. Once I am referred, if service needed will get another referral to SW. I have appointment with my RO on the 27th but have yet to call and ask if they know if or when neurosurgeon appointment is.
I do hope all have a good day and in pockets for all who need me.
Re: CA 27.29 elevated
thank you. I think I’m calming down now. I just panicked. I really appreciate you replying xx
CA 27.29 elevated
I finished chemo for Stage 2 ER+ Her2- about 7 months ago, then 20 rounds of radiation, and been on anastrozole and Verzenio since then. CA 27.29 was 21 about a month after chemo but was tested this week (6 months later) and has risen to just out of normal range at 41. I know these tests are not reliable on their own but this seems like a big jump. I have a call in to discuss with my MO ASAP, but until then, just looking for ways to keep myself calm and not think the worst. Any advice or similar experiences would be appreciated. Thank you!
Re: insurance Diep
Hi @lauren83, I'm sorry that your health insurance doesn't follow WHCRA rules. As the mods said, some types of health insurance are exempt. To add to your warning, many people have health insurance cards that make it look like they are covered by a large national insurer but are not. I had insurance from a self insuring state employee program that was just administered by Blue Cross / Blue Shield. I discovered that you need to research the details of your plan since those just administered but not funded by a major insurance company sometimes have different rules and are not subject to oversight by state insurance regulatory departments.. All the best.
maggie15
Re: Who's starting Radiation in November 2025? Let's gather here to share!
Hello to all you brave women
I am Stage 0 high grade DCIS HR+
inhave had a lumpectomy left side
Clear margins and am to start 9 rounds of radiation. I am still waiting for the team to put my plan together but I am hoping to start the week of Nov 17.
5 rounds for the whole breast and an additional 4 rounds to one specific spot where the margin has a 1mm clearance.
I started applying Lubriderm lotion after having the markers done.. as I was told to by my RO.
I was also told that fatigue is the most common side effect. But also rash and dry skin are common as well.
Has anyone experienced nausea?
I am fortunate that I am and have been off work since my surgery (Sept 17)
I was told by my RO that peak effects are usually 2 weeks after the last session.
I think the biggest takeaway is REST!! And to give all our bodies the time it needs to recover.
I will send an update on how it is going for me!
Right now.. I don’t feel nervous, but I am very anxious. I just want a start date and get the process going.. but I guess it already has.
Meditation has helped me get through the anxiousness!!
Re: Who's starting Radiation in November 2025? Let's gather here to share!
Hi All,
Just began radiation treatments last week , Have 32 more rounds to go - 7 weeks total .
I am a 65 year old 2nd time survivor after 12 years of remission and single mastectomy,BCcame back in same side
Lumpectomy and now radiation……….
I did not have radiation 12 years ago so I don’t know what to expect so far I have a little redness and I understand that fatigue is common fatigue anyway since I clean houses every day to I hope I have the energy to do this for the next Seven weeks
Re: My Husband, My Life, My Love, My Family, My Cancer
HAPPY BIRTHDAY SWEET MARA! I'm late for an important date, your birthday. Gee I hope you had a wonderful, peaceful and lots of good food in your belly kind of birthday. Good to hear SIL may be doing a bit better and DB remembered your birthday.
In pockets for everyone who has scans and MO visits coming up. And for life in general.
Well 4 days of antibiotics down, 3 to go for UTI. This has held me up from restarting Ibrance, which was due to bacterial pneumonia. I was suppose to restart Oct. 13. I saw, MO on Monday and he wasn't concerned about the delay. Did learn that Xgeva efficacy is very close whether dosing once a month or once every three months (which is what I have been doing). I believe I had read less risk of osteocronosis by not dosing monthly. Hmm..
The birds were very active in the yard today. That cold snap most have triggered them to feed heavily. And the squirrels. Bobette (the squirrel with the short tail) even hit the bird bath for a drink. We haven't had rain in many weeks. I covered most of the tropical plants and those I didn't cover, came out just fine. Only damage was to coleus (spelling?) , which I cut back until I found green in the stems. Sitting in my favorite chair watching the antics of the birds, squirrels and the crows delights me so. I am blessed my sweet DH brings up large bags of sunflower seeds, mixed seeds, peanuts and dry cat food. I put that out for a stray cat or two and the raccoons and opossums.
Hope all are as well and finding delight in the snow (if your enjoy it) and the Northern Lights. It was visible from Flagler Beach, which is not far from us. Imagine that, northern lights in FLA.
Re: STEAM ROOM FOR ANGER
Health benefit meeting tomorrow. I am about to get royally screwed with staying insured. Anxiety already high as the memo I read said current insurer (Atena) is not going to renew with our company and broker is going to present us with age-based plans. I'm 64 will be eligible for Medicare Sept. 2026. If the premium they present to me is beyond my reach I'm seriously considering going without insurance for 10 months!!!!!!! Wish me luck, I'm due for Prolia in Jan and there's likely a chance that won't happen and I will be going off cold turkey. I will reach out to my docs in the event I do not opt into a plan to see if I can somehow stay on the few prescriptions that have kept me healthy. Just passed a mammo and a lung scan so I'm good til next October with those. I hate this!!!