Best Of
Re: Can we have a forum for "older" people with bc?
Petite, my thoughts and prayers are for you and hubby.
Yesterday I volunteered at the school. I walked there and back. Tippy knew I needed to rest for the rest of the day so didn't ask for afternoon potty. I discovered that he had peed in the tub. 😘 I have a great assignment, two kids who would otherwise be in special education.
Finished the last chapter. I think.
Have also been repairing missals for church. They are limiting me to five a week, which is good because of my hands. It should have been embarrassing given how many have damaged spines. Only one will be retired, I think. There is a glitch in my OT, but I am doing my exercises faithfully. My insurance is dropping me, and it looks like I am going to have to switch to another medical service provider— and my left hand still has to be done. My hand surgeon is also a plastic surgeon, and his office is in the breast care department. I have had him for four surgeries.
i went to the podiatrist, and she ordered some new orthotics two weeks ago. They will not arrive for another four weeks. I bought some moleskin and put it under the joint for the little toe; to tip my foot a bit in the proper direction (I tend to roll my foot due to an old sprain). Not only was that joint painful, but my hip was hurting awfully. Hip is better, but I had better get walking more to keep it lubricated while I still have cartilage.
Sandy, please don't let your worrying and self-diagnoses (or Bob-diagnoses) go too far. You are not dying yet. Take it easy. Hopefully your house will arrive at the point that she won't demand as much money and worry. Grab yourself some pretty rocks and roll them around in your hands. Or a soft rubber ball. Or something like that. Even a back-massager for your favorite chair.
mcbaker
Re: skin sparing mastectomy without implant
I just made the decision to NOT have reconstruction on my one breast. So, I would like input from those of you who have opted not to have reconstruction and went with a prosthesis. What have you tried that you liked? I have read you can get a mold of your remaining breast made so the prosthetic is the same size. Anyone go this route??
Thanks!
Re: Planning surgery for November 2025? Join the waiting room for support.
Thanks @melisa_s for the detailed info! It's super helpful
Re: STEAM ROOM FOR ANGER
I know I have been more fortunate than many, My cancer was caught early and was small, Stage Ia estrogen and progesterone receptor positive, HER2 negative, node-negative, invasive ductal carcinoma of the left breast. I had a lumpectomy on Aug. 28th where there was no residual invasive disease and 4 nodes were negative. The only hiccup was a high Oncotype DX score returned at 33 but because of the small size of the tumor I decided to not have chemotherapy. The SEs and risks just didn't seem worth the slight decrease reoccurrence. Time will tell if that was the right call.
I had the last of my 20 radiation treatments today (16 whole breast/4 targeted partial breast). Please no one congratulate me or ask me how I am celebrating because if you do I will start to scream and that is why I writing this rant. My Radiation Onc, the nurses, the radiation therapist, my sister, etc all seem to want me to be jumping in the air and celebrating this "accomplishment." I don't get what there is to celebrate except the fact that I won't have to be someplace at the exact same time which is a positive but not anything to have a party about. I do not feel cured or a "survivor." I feel more like an alcoholic that even if they don't drink any longer still has to think about it every day. I just put 20 doses of poison in my body. Every day I am taking a pill, Anastrozole, which has long-term side effects that terrify me and they want me on it for 10 years. The numerous comments on forums like this one that talk about reoccurrences at 5/7/10 years, even after they did everything they were suppose to do and in doing that harmed their bodies, makes me wonder if it was all worth it. I don't consider myself a pessimist but a realist, I am not a survivor but at best a manager of the disease and the side effects for the moment.
I hope to just stay home alone for the rest if the month and avoid all in-person human contact and try to regain the ability to fake the "everything is great" mentality that it seems we are all suppose to portray so as to not scare anyone about our mental state. Sorry not to be perky and happy and ready to celebrate. I wish you all the best. Thanks for letting me vent.
Re: Can we have a forum for "older" people with bc?
petite1, hope his memory is a blessing to you and offering a hug to you on this day.
Re: Can we have a forum for "older" people with bc?
Petite, hugs and condolences. May your DH's memory be for a blessing.
Well, adjusting to being back home was going swimmingly…until it wasn't. First, we discovered the washing machine's drain pump had cracked in transit either to or from storage, so we had to have the pump replaced (2 week wait). Then, last week as I was washing a skillet in the sink (because it was ceramic), the sink began backing up and so did the garbage disposal (cheap-@$$ Glacier Bay instead of the In-Sink-er-Ator I had before the fire). And said disposal would spit back up a couple of seconds after turning it off. My longtime plumber came the next morning and power-snaked the drain line—it solved the problem short-term but he showed me the waste stack in the basement: century-old cast iron with a botched repair (done 40-50 yrs ago by the previous owner, the chairman of the English Dept. at Loyola and his teenage sons who'd watched episodes of "This Old House." Words to live by: "Never give a PhD access to hand tools"). The repair was done because that joint leaked. But the former owner didn't think to investigate the cause for the leak.
Our plumbers, who returned today, in the course of replacing the old cast iron with PVC, ran a camera down the line under the floor—and the camera stopped at 6', encountering a total clog consisting of corroded cast iron. That was the cause of the leak—water backing up from the clog and oozing from the pipe. They are coming back next week for a "Hail Mary:" remove the botched section of cast iron, power-rod the pipe till they break through the clog, insert a rubber liner and then PVC pipe. Basicslly, the plumbing equivalent of a balloon angioplasty (rubber liner) & stent (PVC pipe). It's a "Hail Mary" pass because if it doesn't work, we're looking at excavation (hopefully not all the way to the city sewer, which would require a city inspector who would find our entire plumbing system horribly code-noncompliant. A total home repipe could exceed six figures. FMV of the house is >950K, so it wouldn't be counterproductive but still a huge chunk of change we would likely never recoup at resale. Meanwhile, we had to put down a circle of kitty litter on the floor around the leak to absorb the ooze; we've been advised not to run the dishwasher, use the kitchen sink as little as humanly possible (preferably washing dishes in the bathroom sink) and take the shortest showers necessary till the problem is fixed…if it's ever fixed. Nuking frozen pizza and eating off paper plates with disposable utensils—and we will likely stay overnight in a hotel tomorrow to be able to take nice long showers and dine out (cats should be ok overnight without us, as long as we leave them kibble, water and two clean litterboxes). We'd take the cats back with us to a pet-friendly hotel till the work is done, but we'd never be able to wrangle them back into their carriers (and BangBang would probably puke again like she did the last couple of moves).
Gordy moves Sunday—he has a mover, but he may need me to take him grocery shopping once he's settled in.
"But wait—there's more" (as they say in the infomercials). Lately I find I'm eating anything I want yet lost 3 lbs. in the past 6 months. And began having L-sided upper back/rib soreness 3 weeks ago (feels like wearing a bra), as well as my lower back being "glitchy" over the past year despite proper lifting technique (squatting, not bending at the waist). Could be costochondritis (which I've had before, as long ago as 1988), or muscle strain due to having to twist & reach higher now that I'm shrinking (was 5'3" at dx, now barely 5'2"); but it's also a classic presentation for rib mets. I get semiannual abdominal MRIs to check for mets from both bc and OM—the latest one last week showed "no metatstases in abdomen;" but as I understand it it might not show bone mets (though the prior one's report specifically mentioned "degenerative disc changes without blastic or lytic lesions"). When I see my MO on Monday for a routine visit, he'll check out my current rib pain. (He said not to get an x-ray at Urgent Care tomorrow—he might not get results in time and he's not a fan of unnecessary radiation exposure). Wouldn't be surprised if he orders a PET scan, as well as adding tumor markers to the bloodwork (CMP, CBC, lipids, immune globulin titers as I briefly had a slight MGUS) I get at Kellogg's lab after the visit.
So I'm steeling myself to be reclassified Stage IV after a decade NED. (Breast, not OM which spreads to liver, not bones). Luminal A IDC (60-80% of postmenopausal bc) when it recurs, almost always recurs distantly after 20-30 years, but 10 years would be sort of a shock, as my OncotypeDX and online Predict tool put my recurrence risk at 6-8%. Quite frankly, I'd originally expected a 50% chance of my ciliary-body OM having spread to my liver & killed me by now, so I guess I've been "playing with the house's money."