Best Of
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
Hi @elena_p - welcome! Wish we could have met under different circumstances. I was diagnosed with stage 4 from out of the blue in Jan of this year. No breast cancer in my family on either side. I am on this treatment as my first line and have been having successful results. I am also blessed with an amazing husband and very supportive family and friends. Since I do not look sick or act sick, I have been able to live my life as though I have a chronic ailment, as Tough mentioned above. I am not as physically active as I used to be but I still play pickle ball, spin class every once in a while, multi-mile walks with our new dog and resistance training to keep up muscle strength.
You will come to learn how do deal with your new normal in your own way. This forum here is such a wonderful place to connect with others who are dealing with their new normals or who have been here for years ( these women give me so much hope that it is possible to manage my panic attacks). You learn so much, feel fully supported and welcome whether you post and interact everyday or just once in a while.
Definitely check out the other topics! You will start to recognize names, learn important helpful relevant info, know stories and come to feel like you have a new community and new friends.
Stay in touch! Have a great Tuesday! juliana xo
Re: My Husband, My Life, My Love, My Family, My Cancer
@eleanora sorry to read its time for a drug change, those are always hard to adjust to. I tend to switch drugs every couple of months lol. So can relate. I was on Trodelvy for a couple of months and had no bad SE. Every body is different of course, happy to answer any questions if that is helpful. ❤️❤️ hugs for the transition . The only certainty is the anticipated … sending joy for your mountains visioning or visiting.
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
thank you, @tougholdcrow and @moderators. It’s been a roller coaster of emotions, from absolute shock to despair to grief and then a glimpse of hope. Now that I think about it there haven’t been many ups 😅. My amazing husband and our 8 yo son keep me going for sure.
I started the letrozol today, the kisqali and zoladex later this week and the bone shot next week after my dentist checkup. Let’s see how this goes, I’m trying to stay positive but it’s not always easy. I guess as time goes by I’ll be more accepting of the situation, will obsess less over it and focus on living my life despite adversity.
I slowly read this thread (52 pages and many years covered, wow!) and hope you are all doing well.
Elena
Re: Stabbing pain from biopsy
Hey @leigha, I jsut stumbled upon this comment as I am experiencing the VERY same thing post-core biopsy. Stabbing pain when I go without a bra, lean over. I, too, had a small area that didn't take to the anesthetic and I jumped like hell (with my breast captured in a mammogram thingy). I am wondering what the outcome was for you… how long did it take for the pain to go away, what helped, etc.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mkestrel Those mountains are calling your name. I know you'll be walking those paths in no time at all. Prayers for good results from your new treatment.
@mara51506 Oh I'd hibernate if it was that cold when I lived in the mountains of Boone, NC. The wind seems to just go right thru a person. I wish I could just think up a good meal without too much fuss, but mine usually involves eggs.
shanagirl, intothelight, cookie, eleanora, rlschaller, Saying hi and wishing all less pain and more playtime.
In pockets for all your scans and needs.
Mara, the chair isn't motorized. I don't think DH trusts me. lol. Haven't tried it yet.
Some notes: I restarted Ibrance after 40 some days off. I prayed over the med as I took it, envisioning healing power. Took a peek at DH's blood test. His numbers are the same, so no chemo yet or with luck, no chemo at all. Pfizer sent their packet for patient assistance. It's lenghty (again) more negatives then positives in obtaining the assistance. So I called the "Angels" to make sure I wasn't dreaming about a voucher for Ibrance. I wasn't and the RN I spoke with had a good belly laugh. So happy to throw Pfizer papers away! DS is in the hospital, again, for pancreatitis, again. Spoke to his wife and she's on his patient portal to keep an eye on things. They transported him from Atrium Hospital (a huge hospital) because they did not have a room for him. He's at Mercy now. He doesn't see the specialist till Dec. 13th. Wish they'd move that date up…
Irishlove
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight Oh I hope the snow is just a dusting. It's nerve wracking enough dealing with medical appts. and then worrying about getting to them. We just have to worry about falling iguanas when it's around the freezing mark. I don't like it if the DH accidentally hits them. True story. Although here in Palm Coast they are more than likely to be cameleons. lol
Thanks for the supporting words on Ibrance. I've been on it 2 1/2 yrs. with some side effects. I was off the length of time due to bacterial pneumonia. That is one wicked illness. DS is unable to talk to his Mama due to pain meds. He is on morphine and still in some pain. I think he needs a Registered Dietician to help him with a menu. But we won't know much for almost 4 weeks. I'll see him for Christmas. Hard to wait around worrying.
Irishlove
Re: My Husband, My Life, My Love, My Family, My Cancer
I was going to make chopped potatoes, eggs, beans and cheese. Decided to follow the KISS method of food, keep it simple stupid. Just opened the black beans, took 2/3 of a cup, dumped into my chopper with chips and cheese shreds had some chips in the beans and cheese chop, just to dry out and offer other flavour. Heated in a sprayed and buttered pan. Heated for a minute on high and then shut off to allow flavours to come together. I did also mix a bit of the cheesy seasoning from old elpaso and some of the mild taco and added some queso and sour cream as binders.
I quite enjoyed the beans only meal, 2/3 cup was enough for the beans, shredded cheese and the few chips that went into the chop were good. Heating in the fry pan was the easiest. I put a small squirt of the sour cream and lime and a teeny squirt of queso and jalepeno.
It was DELICIOUS and simple to make and will definitely do that kind of meal again. Although I did take digestive enzyme and immodium, the fiber did exactly as it should do. The beans do sit well with me just after supper and just as well now. Happy.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mkestrel I am so sorry to hear about your bad scans and drug change to Trodelvy. EDIT, deleted unasked for advice re possible SE, should you have questions in the future. I am in your pocket lending moral support and a supportive ear. I am hoping there is a chance for you to get outdoors or even to the mountains.
Re: My Husband, My Life, My Love, My Family, My Cancer
@eleanora I hate when the scan radiologist just report “scattered Mets” on a stable scan. I want to know exactly where EACH met is scattered…, and I do have rib pain and some pain on a spine vertabrae. I have Mets on T 10& 11 I also have posterior Mets on ribs 5& 9 and I wonder if this is all kin do connected regarding some pain I get often. So I had my Rad today only 10 minute session. Out quickly thank goodness☺️
Re: My Husband, My Life, My Love, My Family, My Cancer
I am happy to hear about the good scans and @eleanora I am glad they finally treated those pesky mets and you are no longer in pain there.
Not too much going on here, we had a fair amount of snow, not the 40 cm some areas were calling for. It is a sloppy mess out there now as the snow will be melting as we are not done with the above freezing temperatures. Oh well, I do not need to be out until Wednesday anyway. I will judge the outside and decide if ice melter is needed later.
Got all new cloths washed and dried, got them in the cardboard box they came in next to the older ones, now should be able to avoid running out of cloths. Doing some clothes today and deciding where best to hang them, bedroom OR living room. I will see. I think I actually like the hanger dryer with heat from the top vs the rack I have to assemble with heat from the bottom. I like using those to avoid wear and tear on the clothes.
I have most pantry stuff together in the same box, it is HEAVY. I do not care because it is easier to find stuff in one place, got some bags to put in the recycle container from the Walmart stuff together.
Meal will involve eggs in some fashion, thinking two eggs microwaved get 1/4 cup black beans and add cheese, chop it and heat it up in the fry pan, high heat initially then turn off and let stuff just sit. The ramen is not as interesting to me right now, may do something about breaking up the packages and going 50/50 rice, got a lot of rice from that pack of free food that I can go through as well. I must also remember when it comes to protein, canned meat is a good option, just have to rinse off meat from a can to remove the extra sodium for a few minutes, also removes the canned taste and dry a bit as well. I am also just going to order frozen hamburgers and cook them up first, add some rice to fill out the cooked beef and give a nice stretch. Even the beefless ground is more expensive and the club size beef chubs or chicken chubs are rarely there. Oh well. I have a lot of cheesy seasoning powder from old el paso along with the mild taco sauce and that will definitely give good flavour to any bean, egg and rice type meal. I also have some organizing of containers, need to separate lids and containers into two bags, no pantry space to store them in. I accumulate quite a few when done with sour cream or the garlic spread. I reuse as an airtight container for other food items.
Anyway, if anything fantastic comes up either out of the pantry items found a couple months ago in the hallway or making something in the instant pot, will post here about it.
I hope everyone has a good day and in pockets for all. In own pocket to make stuff that is really good to eat.
EDIT to add that I found a lady on you tube The Posh Paper Lady who gives good ideas of reusing stuff or making other stuff, I am looking at it to make existing Amazon boxes look pretty. I did that with one box although in my case, took a larger box, wrapped white tape around the Amazon box and inserted one of my pink fabric boxes in there. It does look nice. May look into that later.
EDIT 2 Realized that I can take one half an english muffin, toast with garlic and shredded cheese on top and later on have the other half, melt butter while toasting, let cool and spread some of the peanut butter and cheerio mix on top. Planning to take the first meal, queso pasta bowl, split it in half and keep the other half in fridge and make a half english muffin with the garlic spread and some shredded cheese and eat that as a side. Just need to fill my tummy. I also have some STAGG chili, can use that for something but eat a lesser amount of it.
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