Best Of
Re: Faslodex Girls Thread
@brutersmom yes those fasoldex horse needles always leave a tender lump under my skin and the also get like an itchy hive that I always want to scratch. The one remedy for the itch is good old fashion Bactine spray. Works immediately☺️
No more flu shots for me, haven’t had one since 2017. they always made me so sick with some kind of flu anyway. I also refused to get the Covid Vax. I’ll trust my own immunity therapies I take daily. On is Beet root cut up in pieces or sliced with fresh ginger root, 2 cinnamon sticks cloves a sprig of fresh rosemary and lemon juice and orang slices and also 2 tablespoons of honey. put it all in a small pot pour a fe cups of spring water and bring to a boil for 5 minutes until the tea is dark red. I pour it all into a large jar. Drink a cup of the warm tea or put so ice cubes in and drink ice cold. After the jar of tea cools I cap it & put in the refrigerator. I dink small cups of it throughout the day and especially first thing in the morning on an empty stomach. It actually tastes like a Holiday tea. It’s great for your blood and immune system. Enjoy!🥰
Re: Faslodex Girls Thread
Last month my fulvestrant shot caused sever bad pain. It is gone now except for 2 tender spots where the shots were given. I get them agai. Tuesday and I am felling nervous. It is Saturday. I hope this month goes better then last month.
Re: Stage III Cancer Survivors ...Five + Years and Out.
Hello:
I wanted you all to know that I hit my 8 year cancerversary. Still doing well, Thank God!. I will remain on tamoxifen for 10 years. I have little side effects. My onc said he will figure out something when the 10 years are up. I hope this brings some peace to your day. You will be posting here soon too! Love Nancy.
Re: Stage III Cancer Survivors .... 10+ Years and Out
jenni_ca, YATCOMW, notagaintoo, Huge congratulations and thank you for coming here to share your wonderful news. Hope to be joining you in another year or so! Hugs, G.
Gitane
Re: Phesgo - Clinical trial
Hi Ladies,
I am so grateful to have found this group! I too am in the ADEPT trial. I was diagnosed with Stage 1a triple positive breast cancer on 8/13/2025. I had a lumpectomy on 9/22:2025. I received my first injection on 11/3/2025. I will start radiation on Monday, 12/1, and the hormone therapy will begin after radiation.
So far my only side effect has been loose stool/diarrhea. I started eating oatmeal, brown rice, and applesauce to firm the water in my gut. I also started drinking coconut water. All of this has helped tremendously. I take Imodium if I need it.
This journey hasn’t been so bad so far, but it is still quite stressful. My faith has carried me.
Any side effects with PHESGO/radiation combined?
Re: My Husband, My Life, My Love, My Family, My Cancer
@eleanora - Thank you so very much. Seems like I've had a lot of problems with electrolyte imbalances and now a "possible" uti (test was negative, but I have some vague symptoms). No one has really been able to put their finger on this. I've been talking to my oncologist, been to the ER, been to urgent care, and also am working with my PCP, but no real definitive answers at this point. I'm seeing the oncologist again this coming Tuesday. Just lots of low energy, brain fog, aches and pains all over. Getting some of the electrolyte imbalances corrected seems to be helping some, but now I'm taking an antibiotic (macrobid/nitrofur….sp?) for a possible uti and that too seems to be making me feel a little bit better after a day or two, but it also seems to have mounting side effects that aren't pleasant. I don't know this particular antibiotic but seem to remember it being given to me many, many years ago, and I stopped taking it midway, due to side effects. We shall see. I didn't have a chance to discuss this with the PCP, as he just phoned it in to the pharmacy and I got a message later. Since I hadn't had it in so long, I decided to give it another run. Fingers crossed that this will do the job! I'm also getting a break now from the Zometa infusions, and I recently read that those can cause electrolyte imbalances and uti's as side effects, so gotta wonder … Hope things have been going reasonably well for everyone here and that this week-end is a pleasant respite for all. I miss my routine activity here.
Re: how about drinking?
Well, it's good to read that a little drinking might not kill me…after my diagnosis…had the surgeon, oncologist, and several other doctors tell me no drinking as it makes your body produce estrogen…I had surgery a year ago and 10 radiation treatments…tried 3 estrogen blockers…which made me very sick…not taking anything now…am drinking 2 glasses of wine a day and I feel good…I am tired and want to keep my blinders on and trust God…
pegkel
Re: Who's starting Radiation in November 2025? Let's gather here to share!
Hi
Ok, this is a venting rant for me. I began the first of 9 rounds on Fri Nov 21. When I went in on Mon to continue, I could not hold my breath to reach my baseline. So, no treatment on Mon. I met with the RO on Tuesday, and she said we will replan you using your current measurements to continue without holding your breath. So I said “great”!! They were so kind, even giving me a parking pass and some gift cards to the coffee shop.
So, back home I came, again without treatment.
So great!! Wed, I’m all set to restart with free breath. My goodness!! Once again, they could not do it. She said my alignment changed as my sternum was more aligned!! The only thing that changed was that I had gone for a massage (which I asked about and was told by my team that I could go)
RO said a massage normally doesn’t change anything but when she massaged my collar bone.. it somehow changed my alignment.
I came home and cried my eyes out to a friend on the phone. And drank wine. I just was so upset that I keep going to the hospital and nothing gets accomplished
I’m not one day closer to being done
So, I had to go in again on Thursday for another CT Sim, and this time I did it take as deep a breath to create my baseline.
But I still have the option to do treatment either way. That the planning has been done for holding breath or free breathing
Hoping now to restart the week of Dec 1, as I was told they rush the process when it’s a second CT Sim
My mind hurts and I just need a mental break from being so positive
Re: Bone Mets Thread
Thank you for your response,
And indeed, all I can do now is wait for the biopsy results to know what type of cancer this new lesion is and what treatment options are available.
The doctor is also suggesting a gene mutation test and will offer treatment options if I have that mutation.
I’m hoping he can put me on other treatments in pill form instead of Enhertu, which is given intravenously.
Re: Bone Mets Thread
Hi
Wishing everyone a Happy Thanksgiving, and I hope you all enjoy a peaceful and restful holiday.
This is a brief update on my situation since my last post.
I started CDK4/6 inhibitor treatment in August 2024 and completed 15 cycles. My CA 15-3 markers kept rising for months, only dropping for a short period before increasing again to 227 by October. Despite this, several PET/CT scans continued to show good response in the previously affected bone areas (tibia and L4).
Because of the mismatch between the rising markers and the scans, I had multiple MRIs (lumbar, thoracic, abdomen, chest, and pelvis) between May and October. None of them showed clear new lesions.
In October, I also had pneumonia and paused Kisqali, but the chest CT was normal.
Recently, I repeated a PET/CT instead of doing more MRIs. This scan showed three active lymph nodes (supraclavicular and mediastinal) and renewed activity in the tibia (SUV ~4).
My doctor now wants to perform a biopsy from either the tibia or one of the lymph nodes to check for mutations. If no mutation is found, he is considering switching me to Enhertu as a second-line treatment.
My question is: Why should Enhertu be the next step? I thought Enhertu is usually used in later lines, and if it fails, the next option may be chemotherapy.
Has anyone experienced something similar? I would appreciate your input, as this uncertainty has been very difficult since May.
Thank you