Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
CT showed a new lesion in the liver but the other two were smaller .. I guess I'll find out Monday if I have to change treatment or what. Kind of discouraged 😕 i know reality of it all but i was hoping to stay stable longer. The ctDNA nosedived after starting Enhertu from 95 to 0.5. now inching up again. Is slow progression really treatment failure though? None of them are cures. I'm tired of changing treatment. I'm also worried about running out of treatment options. I know that happens eventually and it not a good feeling. $&#& cancer ruining everything
In other news, I am attempting to make Tabasco sauce out of some of my peppers. Apparently you let them ferment in salt water for a week and then blend with vinegar. Anyway, a fun project. I need to start more distracting projects and somehow stop thinking about cancer 24/7. I hate it taking over my life.
mkestrel
Re: Radiation recovery
Good morning April,
I am in your pocket this morning too. I was the one who asked if your mother named you April because you were born in April. I hope that after you have the ct scan, tatooing and simulation you will think that it is a cake walk too. As for me staying at THAT hospital overnight for my lung biopsy I refuse to do it. I emailed my doctor last night and told him to find out if an imaging place near me can do it without an overnight stay, or if UCLA Westwood would do it without an overnight stay, of if he could find a pulmonologist from St, John's hospital to do it. I would be willing to stay at St. Johns overnight. He will have to semd an order and scan to the new place, so it looks like I will be in limbo till this gets set up somewhere else. Good luck today Hugs, Kate
Re: Radiation recovery
Hi everyone,I've been off the thread for a few days so I'm trying to catch up.We had 12.5 inches of snow on Sunday.It's mostly melted already though.Kate glad to hear your hanging in there.
BUNKIE I'll be thinking of you next week.
April congrats on the shortened Rads.
My nipple is becoming inverted due to Rads .I asked to see the Doctor today because it's getting a little white film in the crevices of my nipple .The skin seems to be a little raw too.The nurse of course had to intercede first though and told me to use a nipple shield and coat it with this cream.I never got to see the Doc .Kind of made me mad I didn't ask to see the darned nurse.
josie123
Re: Just diagnosed with invasive Lobular Cancer
My surgery date is 11/7/25. Bilateral is a go. I'm feeling quite up and down and trying to fill my days as if they were my last….
Do you think its best to stay overnight in hospital after bilateral mastectomy or just outpatient will be ok. All my home Nurse options are fizzling out. But my husband and 23 yo niece will be on hand. Scared of the sjjjj hitting the fan….
Re: Bone Mets Thread
@radiation_cinderella
Thank you for responding to my questions. I truly appreciate any reply from someone who has been through the same experience.
Thank God, I’m now at home continuing my treatment and keeping up with the antibiotics, but I won’t hide it from you — I’m very worried and keep wondering whether my lungs will return to how they were and if I will truly recover.
Bilateral versus Unilateral Mastectomy!! Please help me decide
Please help! I am unable to decide between bilateral and unilateral Mastectomy. I am flip flopping between the decision everyday. It is an extremely hard decision and one that is completely irreversible. While i want peace of mind, i am also unsure if i want a numb chest for the rest of my life and not be able to feel hugs:(
Diagnosis- Right Breast -DCIS stage 0 with possible invasion. Grade 1 and 2. ER PR positive.
Re: My Husband, My Life, My Love, My Family, My Cancer
seeQ~ happy birthday to your daughter.
thank you ladies for wishes.
Mara. Feel better darlin.
micmel
Re: My Husband, My Life, My Love, My Family, My Cancer
Addition to previous post, was stricken with loose stool after breakfast so got myself sorted enough to cancel both Paratransit and herceptin for the day. Not sure the problem that caused it but whatever. No pain or fever which is good. Took a while as when you phone in sick, triage nurse has to take notes and ask lots of questions.
Got the appointments cancelled for today, moved up to next Wednesday instead, they wanted tomorrow or friday but explained how Paratransit has to be booked 3 days in advance. The MRI results are still happening tomorrow come hell or high water. I do not honestly feel sick either so that is a bonus. Water and immodium as needed.
UPDATE I decided to get some extra stackable containers, rubber with a tight closing LID as an extra garbage container that can hold stuff til next garbage, got 3 containers and more pantry storage and one extra recycle storage, all inside the house as well, need to see about storing the walker in the closet OR outside the back door, not really caring to keep or walk that way, used to my canes. I also ordered some mini pizzas and a couple of michelina's chicken with rice.
Got the containers because I feel like I am not supposed to store stuff out back, workers need access to the container outback when they come to work on stuff. I will remove my own stuff once I have the garbage day where I can put them out and keep storage inside but in strong sealed storage. Can also organize pantry items together or put stuff in one of them. 2 of them were cheaper because the originals I wanted for two that were smaller so that is good. I will also create a neater storage area for recycling too, make it look better and remove stuff from under the sofa and store that stuff together, we will see. Only 33 dollars in total for the pizza and large containers so that is great price for sturdy rubbermaid strength but a different brand name. Amazon pricing on storage totes is horrendous.
Did wind up having one of the mini pizzas when stuff arrived, get 8 per pack, fits well in frypan and added extra cheese, heated for 12 mins on high, rest somehow fit in the freezer which is good. The pizza was really good. Did take digestive enzyme and immodium just in case.
Re: Can we have a forum for "older" people with bc?
good news bad news. Doc does not expect to find anything however my cervix was naughty and she couldn’t get the biopsy done. Ugh. Bad news means to the OR I go. Likely in a few months time for a ten min procedure. Oh well. This too will pass.
Re: Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Also realized I forgot to update bloodwork results. Everything looked good; a couple liver levels were slightly elevated since April, but all within normal range. Triglycerides were still high so they added another cholesterol pill to my list… I'm now taking 7 meds over 9 pills, not including the supplements.
klrtts3p