Best Of
Re: How are people with liver mets doing?
Letting you all know that tomorrow (Friday may 31) at 12noon, ET we're hosting a special meetup on Questions around Palliative Care with Dr. Joe Straton, a specialist. If you would like to join, register here:
https://breastcancer-org.zoom.us/meeting/register/tZAvc-CoqjwrHNL4jnVXMjOjAer-KDlYte1M
Re: Starting Chemo May and June 2024 Support Thread
I’m now day 8 post infusion 2 and on the upswing. I had to get fluids again (day 6) so I’ve just scheduled getting fluids next time about 24 hours after the infusion. I made it my job to drink fluids this time and it still didn’t fix the dizziness. The dizziness is definitely my worst symptom. Seriously though – where does the water go? How does the chemo just suck it up? If the last two experiences continue, I need to plan that I just can’t drive from days 3 to 6 or so.
@sarahjunefox Hope your sinus infection is gone now! I chose to cut my hair because losing it bit by bit was making me upset so many times a day. I personally felt I just needed to get it off and deal all at once. I don’t think it was a perfect solution, but I’ve stopped thinking about it all day long as I find hair all over me and I don’t jump when I catch a glance of myself somewhere. I hope you have fun in Disneyland!
@lyniepooh I too am frustrated with the damned if you do and damned if you don’t digestive issues. I feel like I should be able to find the happy medium, but not so far!
@ebfitzy My insurance didn’t approve the Neulasta shot so far. I have to get sick first apparently for them to approve it. My WBC has fluctuated wildly because of some extra steroids I needed for a rash but so far the doc says I’m okay. I just wanted to mention this because even though I haven’t had that shot, one of my SE has been bone aching especially in my hips and feet and it must be from one of the chemo drugs. Tylenol has helped.
@maitri I’m so sorry you are having to go through this a second time. I think that will be all of our worries for the rest of our lives. At least it feels that way right now.
@justsnapd8 I have to say the nausea is really been almost the least of my SE. Sooo happy it’s no longer “here is a bucket”!
@bailey.boo Hugs on the dealing with your hair. It stinks.
@dw0330 Sorry you are here, but nice to “meet” you.
jlhmom75
Re: My Husband, My Life, My Love, My Family, My Cancer
Irishlove that pain sounds horrible. I wish you a healing that leaves no ailment behind.
Nice to see you Shana girl.
Waving hello to all
Tanya
Re: My Husband, My Life, My Love, My Family, My Cancer
Irish - I want to second everything Tanya said above (thank you, Tanya). I just feel so badly for you and wish there was more that could be done, and asap! Fingers crossed that you will be much better as the day goes on and won't have to go to the hospital.🤞
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove how maddening and painful Digestive issues are. I honestly don know anything about diverticulitis. My Aunt had it and couldn’t eat seeds.
@micmel My appetite and eating habits have changed as I’ve gotten older. Although I mostly eat seafood and homemade Keizer…I usually at coconut ice pops. Every day and salads but salads often make me nauseous if the lettuce is not ultra fresh and crisp.
@tanya_djamila Hi Girl. 👋 waving Hello to you too.🌺
@mara51506 Glad to hear you enjoyed a movie 🍿
Hi all and. Wishing a peaceful painless evening. 🩵
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
@malleemiss251 That's a long time to wait for scan results so I hope you will not be too anxious with waiting. Keep us posted.
@radiation_cinderella So sorry to hear about these difficulties with the stress on your heart! You are way too young for heart problems so I can see why you didn't get it checked right away. It's a funny situation we're in, where we don't know what's significant and what's just the usual wear and tear. I hope the docs get it figured out.
Re: CT and Lung Nodules
Marge, Thank you for the good wishes. The third time was the charm. I had to wait for the courier to make it through the traffic but at least I knew the tracer was about to arrive. The tech took one look at my tiny veins and decided to use pediatric IV equipment rather than poke me repeatedly or wait for an IV nurse to come. That and the slower injection time required worked really well. I even got a wrap bandage with smiling bees on it which came with the kit. The next time someone complains about how hard it is to find a vein I now have good suggestion other than to use my feet (which is no longer allowed.) Now I get to wait for the results.
Bookworm, I hope your biopsy today went well.
maggie15
Re: how about drinking?
I just saw Jeannette’s post on Facebook.
I am heartbroken that Lori is gone. I’m glad she’s no longer in pain.
Re: how about drinking?
Hello ladies. It's been a very long time since I've posted here. My name is Donna and I was "Casinogirl" when I was on here many years so. I am friends with Lori (Goldie) and am so sorry to hear this news. I knew she had just moved to Michigan and was not doing so great but did not know this latest news. I sent her a message a couple of days ago but didn't receive a response and now I know why. I am not in contact with her daughter but appreciate any updates shared here. I've had the pleasure of meeting her in person several times and she is one of a kind. My heart is broken.
