Best Of
Re: how about drinking?
May Lori's memory be for a blessing, as her life certainly was. She will get to shoot the breeze with Cami (camillegal) whom she visited and who left us a few years ago. Raising a glass to her tonight. (Perrier-Jouet Brut Rosé Blason). She'd have urged us all to do the same.
chisandy
Re: MBC and working
@exbrnxgrl thank you for those words. I need to save them somewhere and read them repeatedly, especially when I’m feeling not very hopeful. And you’re right - no one knows how it’s going to play out for any of us….cancer diagnosis or not.
harrow
Re: MBC and working
I’m going to say one thing on “Why bother, I have mbc…” issue. The thing is, neither you nor your mo knows how your mbc will unfold over time. When I was dx’ed, over 12 years ago, could I or anyone have imagined that I’d still be chugging along 12+ years later? No, of course not but I’m sure glad I didn’t put my life on hold. While I am not typical, neither am I unique.
Re: Wife given AC/T + HP for --+ (her2 3+)
laughinggull. Appreciate the info, TY :) It seems both regimens are good choices.
Re: How are people with liver mets doing?
Letting you all know that tomorrow (Friday may 31) at 12noon, ET we're hosting a special meetup on Questions around Palliative Care with Dr. Joe Straton, a specialist. If you would like to join, register here:
https://breastcancer-org.zoom.us/meeting/register/tZAvc-CoqjwrHNL4jnVXMjOjAer-KDlYte1M
Re: Starting Chemo May and June 2024 Support Thread
I’m now day 8 post infusion 2 and on the upswing. I had to get fluids again (day 6) so I’ve just scheduled getting fluids next time about 24 hours after the infusion. I made it my job to drink fluids this time and it still didn’t fix the dizziness. The dizziness is definitely my worst symptom. Seriously though – where does the water go? How does the chemo just suck it up? If the last two experiences continue, I need to plan that I just can’t drive from days 3 to 6 or so.
@sarahjunefox Hope your sinus infection is gone now! I chose to cut my hair because losing it bit by bit was making me upset so many times a day. I personally felt I just needed to get it off and deal all at once. I don’t think it was a perfect solution, but I’ve stopped thinking about it all day long as I find hair all over me and I don’t jump when I catch a glance of myself somewhere. I hope you have fun in Disneyland!
@lyniepooh I too am frustrated with the damned if you do and damned if you don’t digestive issues. I feel like I should be able to find the happy medium, but not so far!
@ebfitzy My insurance didn’t approve the Neulasta shot so far. I have to get sick first apparently for them to approve it. My WBC has fluctuated wildly because of some extra steroids I needed for a rash but so far the doc says I’m okay. I just wanted to mention this because even though I haven’t had that shot, one of my SE has been bone aching especially in my hips and feet and it must be from one of the chemo drugs. Tylenol has helped.
@maitri I’m so sorry you are having to go through this a second time. I think that will be all of our worries for the rest of our lives. At least it feels that way right now.
@justsnapd8 I have to say the nausea is really been almost the least of my SE. Sooo happy it’s no longer “here is a bucket”!
@bailey.boo Hugs on the dealing with your hair. It stinks.
@dw0330 Sorry you are here, but nice to “meet” you.
jlhmom75
Re: My Husband, My Life, My Love, My Family, My Cancer
Irishlove that pain sounds horrible. I wish you a healing that leaves no ailment behind.
Nice to see you Shana girl.
Waving hello to all
Tanya
Re: My Husband, My Life, My Love, My Family, My Cancer
Irish - I want to second everything Tanya said above (thank you, Tanya). I just feel so badly for you and wish there was more that could be done, and asap! Fingers crossed that you will be much better as the day goes on and won't have to go to the hospital.🤞
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove how maddening and painful Digestive issues are. I honestly don know anything about diverticulitis. My Aunt had it and couldn’t eat seeds.
@micmel My appetite and eating habits have changed as I’ve gotten older. Although I mostly eat seafood and homemade Keizer…I usually at coconut ice pops. Every day and salads but salads often make me nauseous if the lettuce is not ultra fresh and crisp.
@tanya_djamila Hi Girl. 👋 waving Hello to you too.🌺
@mara51506 Glad to hear you enjoyed a movie 🍿
Hi all and. Wishing a peaceful painless evening. 🩵
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
@malleemiss251 That's a long time to wait for scan results so I hope you will not be too anxious with waiting. Keep us posted.
@radiation_cinderella So sorry to hear about these difficulties with the stress on your heart! You are way too young for heart problems so I can see why you didn't get it checked right away. It's a funny situation we're in, where we don't know what's significant and what's just the usual wear and tear. I hope the docs get it figured out.