Best Of

Hi all my dear friends. @micmel I am so very sorry for the loss of your friend. So terribly young. My heart breaks for you and family. Sure is good though to hear how well your Gabby is doing.

@mara51506 @intolight @cookie54 Thanks for the wishes to clear up this UTI. The antibiotic is helping with the infected tooth, also. Dentist said is needs either to be pulled or another root canal. He won't touch it due to the meds I am on. I left a message at MO's office for that Ibrance break. Here's a hint on antibiotics. I get alot of UTI's. Blame it on MS or cancer. I can not empty my bladder properly. I use a manual technique, but it's not always successful. So years ago my Uro left me fill antibiotic and keep for emergency. I talked my Primary Dr. into letting me do this also. I use Azo test strip and wait till second day of symptoms and repeat the test. Then I start Cephalexin 500 mg 4 times daily for 7 days. I stop Ibrance. I noticed the one time I kept taking Ibrance with UTI and it was no cleared in 7 days. Just my observation. I then call Primary for refill and keep it stored in cool place.

@intolight That's sweet that you care for your families pup. We just adopted a mixed St. Bernard and ? He is 7 yrs. old and came from death row at the humane society. He is cheering Minnie and our whole family up. What a mug and sweet boy. We just wanted to give an old dog a place to lay his head. Buddy is doing a good job at that.

Full labs from primary tomorrow. Gotta go early and I am tired. Two infections at one time is two to much. In your pockets for scans and stability and all concerns.

Irishlove

@intolight and @irishlove I am in your pocket to hoping UTIs resolve quickly for you.

Both meals today were not good at all. The first one had too much italian seasoning that spilled onto it, tried to eat, it failed so I tried rinsing leftovers off, latter meal was easier to eat but some did get tossed. I need to find simpler meals to have. Tiring of the frozen pasta variety. I have discovered that Knorr meals need nothing added to them, just use as a side dish. I son't mind a few lentils made up but need to find easier stuff that tastes better. Meat pies or the mini pot pies are perfect. Not loving the frozen meals anymore and the store is out of the stir fry variety.

I did decide to put together an order, this time amount a little more 50.00. I do not mind as that only averages 25 per week. Tried to just get the stuff I enjoy so got some frozen sliced peppers as my store does not have the stir fry I enjoyed. Can take some of the sliced peppers and add those to anything. Did not buy anymore lentils or beans. I can make them last long by using 1/4 cut amounts and remembering I do not need them every meal as well. I did get 12 mini pizzas which is nice, can have those with lentils on top then top with cheese. Also need to remember to fry up some shredded cheese with stuff on top, see how that tastes. I set the delivery for 12pm, no delivery fee and think this will be good, also have burritos coming, I never get tired of those.

@intolight @irishlove Ugh, hope you both starting feel better from these darn UTI’s.. hugs 🤗

@shanagirl Wow, that is a lot of possibilities and sepsis is so serious. I know I need to walk more. I have been feeling so tired lately which I am sure is part of the UTI stuff, but your battle is much harder. I hope your respiratory therapist can show improvement in your oxygen levels. Pulling my O2 tubes around all day is getting old!

This is chemo day so I am trying to psych myself up. The nurses are always a big help and put a smile on my face.

@irishlove @mara51506 @cookie54 @threetree @intolight and all of your kind words.

Yesterday was my last day with the home visiting Physical Therapist. I told him how frustrated I was with my slow recovery. He had me walk for 3 1/2 minutes around the house and I was so weak and winded and felt like passing out. He told me not to get frustrated. He expects me to take several more weeks if not another month or so after that. He reminded me that what weakened me so much was the hemorrhaging blood vessels in my lungs, calling it hemorrhagic Pneumonia.. they tested me for everything in the hospital SARS Covid -Negative another Covid. Test, Negative, Streptococcal Pneumonia-Negative H1 N1 Flu Virus- Negative, Pulmonary Embolism -.Negative they said the Airborne bacterial infection from all the red tie bacteria from all thr dead manatees and fishe from there red tide algae bloom in South west fluorida got into my lungs and inflamed all the blood vessels to bleed out into my lungs, and causing sepsis in all the fluid it’s no wonder I feel so week with the pre existing bone Mets . Then he had me doing leg ankle and calf strengthening excersises.. I had big plans to clean out my closet after that but never got to it I was so exhausted. tomorrow the Respiratory therapist to check is coming to check my oxygen levels do breathing excersies and check my vitals🙄… Have a good day everyone.

Oh I just wanted to share picture of my Grandaughter and my 2nd great Rand son baby Layne.

Hi all. @shanagirl What an incredible recovery you are making. Keep it going, we are all rooting for you, thoughts and prayers. I'm so proud of you!

Enjoy Mackinac Island. I visualize my favorite movie "Somewhere In Time" being filmed there. The story touches ones heart.

Another UTI, brutally painful this time. Dentist for tooth in morning and then bloodtests Tuesday. It's so brutally hot here, we prefer not to go anywhere if it can be helped. Both appts. are early so bedtime it is.

Forgive me for a short chat, I promise I'll catch up soon.

Much love and in your pocket for scans and life in general.

Irishlove

@shanagirl Good news that you can stay on the same treatment. What a battle! You are in my prayers.

@micmel I identify with your daily battle of pain and fatigue. And I am happy your baby girl is doing well.

@irishlove I am battling a UTI also—ughh! This time I used a virtual appointment to get an appointment quickly then I had the meds delivered. I will deal with any oncologist fallout tomorrow when I see her for not calling her office first. I didn't feel well enough, nor did I feel I had enough time inbetween bathroom needs to sit in a car for a trip to travel to a lab and wait for results, etc. Besides, it was a Saturday. I hope it won't affect my infusion but I don't see why not. Anyone here have a chemo refused because of being on antibiotics for a UTI? My virtual doc said it was fine, but she was a very young PA. If I called the nurse it would have majorly delayed things. Anyways, I am feeling a lot better today and feel I can tolerate a chemo day tomorrow better too. The worst it can do is delay the chemo and since I have a MO appointment before the chemo, it won't be a wasted trip.

@mara51506 I added a humidifier to my living area and now I have a fine white dust on everything even with extra filters. It is very dry in Colorado and I was coughing a lot. I will just have to dust and clean my dark wood floors more often.

My DD and DGD are still on their Caribbean cruise and we have the responsibility of the dog. My DD wanted to take my DGD to Universal Studios and Harry Potter World for her eleventh birthday, and then they went on a cruise with her brother, my son. My DH doesn't want the dog to have to stay in her crate for the six hours we will be gone for my appointments tomorrow so he has decided to bring her and sit with her in the car, take her for walks, etc., while I deal with my appointments alone. I think she will be ok but it his extra work. We can't leave her loose as she has a tendency to run outside and bark if not crated. Our usual friends and family who love to watch her are all away. My problem is I will have my purse, my oxygen tank and the cooler with my feet and hand ice mitts so I will need a wheelchair or something to get around and carry things as they are heavy. Fortunately it is all at the hospital so hopefully I can get enough help. Should be an interesting day!

love to all you ladies….. I’m sorry about pigeon 😔 hugs and love to all

things have been going ok. The death of my best friends brother has us all flipped upside down. He was only 48. Two young teenagers My best friends only sibling. I’m trying to be supportive of her. Her father died the same way over 20 years ago. Heart attack at age 53. But other than that I’m feeling good trying to battle fatigue and pain. Is my full time job. Seeing my daughter get stronger and stronger makes me thrilled. Happy is not the word. She’s amazing this young lady is !!!
i hope all of you and your families are doing well. Thanks threetree for the hello. 💐🌹 I’ll check in again soon. Love you all