Best Of

Well, I woke this morning with extreme nausea and weakness, so much so that I didn't have energy enough to even brush my teeth. I tried for an hour but ended up calling the Infusion center and cancelling my appointment. Argh! They could only reschedule for tomorrow morning at 7:50 or next week — double Argh! So I am going to try to make it in the morning. Zometa and Faslodex have to be given at specific intervals so I can't just skip them. I will go out today somewhere and get my pre-labs done as it is too early tomorrow for pre-labs at the clinic. That means we need to take my DGD with us tomorrow as my DD will still be at work. Fortunately she works across the parking lot from the Infusion center (hospital) and gets off at 7:30 so we will exchange the kid. Complicated! I slept a few hours this morning and feel reasonable now so we will venture out soon. But I needed to eat so I will have to get fasting labs done at the end of the week for my PCP appointment Monday. And I thought I had it all worked out! Thank you everyone for the kind wishes but as we know we can't depend on things working out right.

@threetree I trust your appointment Thursday will work out better.

@irishlove I am so sorry to read of your DH's Covid. I pray his fever breaks now and that he can heal. I also pray for your pain and the healing of your fracture. Wow, so much pain and fatigue going on for you.

Wow, You all do so much. It takes me a couple of hours in the morning to be able to work through the fatigue and do anything. If I am having a good day I may dust a little, but I can't vacuum. The Roomba does most of it and my DH gets the corners. If my day continues well I may do dishes and fix lunch, and if I am really good I can cook dinner, but that's about it. The fatigue is too great after that to clean up. Mel you are right that a shower is a major production. Yesterday I was so bad I couldn't even brush my teeth, but thankfully improved a mite, but I had to take a nap after. I know the next few days I will be down again with SEs from Faslodex and Zometa so I am prepping for it. This morning isn't too bad yet. My DH goes to the gym every morning and if I am doing well I fix my own breakfast while he is gone. Mara, you inspire me to cook better…My plan today is to work on my latest crochet project and maybe work a little on the notebook I am trying to prepare. It is hard. Every time the nurse asks me if I am depressed I want to say OF COURSE but I usually don't. I scared my DH so badly yesterday that he put me in a wheelchair and wheeled me into the Infusion center and stayed with me the whole time. That is unusual for him as he usually just waits in the car. Even the nurses noticed it and said something.

Praying for a better day for us all especially for those of us who are struggling a little from the smoke from all the fires.

Shanagirl- Oh my gosh YES!!!! The fatigue is my worst side effect, that and the on and off nausea, but the fatigue is the worst. I am a morning person, always have been, so I get up early and feel like I am on a time limit of what I want to get done around the house. I know that once the fatigue hits, I am worthless. And that is usually around 1-1:30pm. I HAVE to nap almost every day- even for a "cat" nap of 30-45minutes. Just to recharge the batteries. Sometimes I have trouble thinking, like a fog is descending over my brain. Trouble concentrating or coming up with words.

Edited to say- Mae was posting the same time as me. She mentioned having more fatigue until they lowered her dose of chemo. I have been on Lynparza for almost 3 years, with a dose reduction after the first 3 months, so I have been on the same dose for 2 1/2 years. The fatigue has been constant those 2 1/2 years. I have found that some days are less fatigued, and others more fatigued, with no rhyme or reason. Totally unpredictable when will be a "good" day and when will be a bad one. But I nap almost every day.

CONSTANT OVERWHELMING FATIQUE & LACK OF ENERGY

Today I showered, folded some wash fed the dogs, did some general straightening up. I just felt so tired I felt I wanted to give in to the feeling, lay down in on the bed with a blanket, started reading, and I just can’t keep my eyes open., I’m so frustrated that I feel like this all the time, I did a little painting yesterday but every day is always exhausting. Ladies, Is it normal to feel this way with MBC treatment? Please post your own experiences and feelings about this subject. I’m so tired it’s even tough focusing on typing.🥱😴🩵I’m so tired of being so tired all the time.

Mel, it looks like he poses. If not you’re an awesome photographer. My cat was trying to get a photo of a third grader. I have one where he was caught by surprise

before grooming first photo. After grooming second photo. And I love this lol guy so much.

Hope you ladies are doing well. Had a fun day today with Theo. His bark box came today and he loves it when this box comes in the mail. He gets all excited and try’s to help me open the box for his toys. He got a toy called baby bark ribs and a dumpster fire , with little rodents to rescue from two holes. It’s absolutely adorable. The main toy was a fire hydrant that you hook up to a hose as it sprays water all over. DH and I both agree that theos too little and won’t really enjoy being wet. So we are going to donate it to the local Spca. They said they would use it in the fenced yard for all the dogs. She said they’d love it. So DH is going tomorrow to drop it off. Theo has like 30 toys or more , so it will make me happy to know dogs can use it. That dont live in nice air conditioned homes with toys galore. It was always my dream to strike it rich and be like Caesar Milan and have my own property with dog lodges and good homes for dogs until they can be housed in a forever home. I love dogs. Always have. I like cats too I’m just allergic. And so is DH. Hope everyone sleeps well tonight and have a good Sunday!