Best Of

Any of us who lost our Mom's can empathize with each other. My Mom married my father, initially he was an alcoholic, never abusive but when she told him to stop drinking, he just stopped. He was a chronic paranoid schizophrenic who was in and out of the mental hospital with lots of electric shock therapy. She left the day he had a knife because the mafia was looking for him, she did not want us to grow up around that. We saw him every week and he lived with his parents, was compliant with his meds as well. Mom was strong but also anxiety ridden, I think I get that anxiety from her though I don't have to look after kids. She was a strong lady who was modest and tended to think less of her ability and talents for cooking, knitting and so on. Always nice, can count on one hand how many times she had to spank. She always took us upstairs. I still miss her so much after 5 years since she died. She died in peace with older brother putting a hand on her chest telling her she could rest now and dying. I got to tell her she was a great mom as well. A stroke left her almost non verbal but she was not in pain. I am glad for that.

enjoy the fussing as long as you can. Cancer is like a merry go round that never stops. Other people get on to ride with you, but there turn to get off always comes. Ours does not. I would love nothing more to have my dear sweet mother fussing over me. Now all I can do is talk /pray to her. Talking with Dad sounds special. I’m hoping your visit will bind your family even closer.
Irish~I’m hoping you get a break sounds like you could really use one. Thinking of you.
seeq~ you doing ok out there?
intolight~ I use Walmart as well nothing like their curbside for sure. My DH has been saying lately that Walmart and Aldi were worth going to vs giant. That giant was way too expensive. What $200 would get was 8 bag of groceries. Now you only get 4 bags. When you unpack it you don’t know what you bought because it’s not a lot. It’s ridiculous!!!

I’m having insomnia again.its a kicker. Makes for a long night and longer days.
I used to go and have my nails done every 5 weeks and when I got Covid I stopped going. I decided I was going to do them myself again with the sally Hansen gel nails. Well I’m pleased to say that my nails have all healed and are all back to the way they were before I had tips on some of them. But that ruined my nailbed. Luckily it healed. I’ll never do that again!!! Ouch!!!happy with what I have now by far! Going To try to count sheep. Caught some of the Olympics today. It was very entertaining, usually I watch everyday I’ve always loved the summer Olympics! Go USA! Go UK! Go Canada! So much fun to watch!

Hi ladies,

I made it home yesterday on like the worlds longest day, but I made it, with actually not many painkillers (uh, paying for that today lol) and only one small break down. Resting today and watching some Olympics on the European feeds.

Unfortunately my mom is clucking around like Im dying and its driving me up a wall. They got out my dads old walker which is helpful, but that was a bit much to see. The worst are the deep gin thoughts she delivers for hours on end at cocktail hour in the evening (how she manages HER hip pain) about oh you know who died and committed suicide? and you are just going to have to accept people helping you. Well sure, fine, folks helping at the airport (Heathrow was amazing) and asking for help sure, but being constantly asked do you want this, do you want that, here you probably want this (I dont), etc. She even put a barf bucket next to the bed :( All her references for cancer come from caring for her father who died 40 years ago of melanoma. On the plus side she called the hospital in Milwaukee and arranged for me to have a wig consult on Tuesday which was probably the most valuable and loving thing she could have done. Dad and I are doing a daddy daughter trip to the medical sock shop.

My dad well, he knows the score about pain and working with bad body parts, etc so he's given me some space. Its a bit of a relief to just sit with him and listen to him go on about garden plans even if Im only half listening.

At any rate, Im happy just to be home and spending time with them and a different environment. Things will iron out and settle down. Except Tuesday when my aunt and uncle are apparently coming by and mom wants me to tell them now (its a fairly special relationship I have with them). My aunt just had a mammogram recall. THANKS MOM.

The iron and blood Wednesday helped but the iron really gave me the runs quite a bit which has been annoying. But I will say its fab having people make me food and bring it to me:) Hubs is reclining with a beer and a nap today and he is happy like a pig in mud with a car to go get 'stuff' lol. If he's happy and having a great time, and is getting fussed over as well, then Im happy too.

Ill check in time to time but Im going to try and clock off from cancer as much as I can.

Sunshine, glad you got to visit with your granddaughter.

Tanya, glad you enjoyed some swimming and will likely get some really good rest tonight most likely.

I had a good day overall, best part was going to see Deadpool and Wolverine, best movie I have scene in years. Love Hugh Jackman and Ryan Reynolds together. We will see how sleep goes but I do not mind. Waited a couple of months to see it and it was well worth the wait.

Good afternoon

I had a bout with mouth sores last night. It seems one spot hurts when I lie down. I contacted doctor. Bc this is 2nd time I’ve been awakened by pain. The magic mouthwash tea tree salt gargling all temporary. Maybe it’s infected. They responded but I need some other options.

@shanagirl im glad you were able to do a few things today. I can do a few things too but sometimes I feel like I need a nap just to make it back from the kitchen to my bedroom. Once or twice I’ve felt so fatigued I laid on the floor for a few minutes. Two more pill left in instance pack before the 7 day break. Ugh.😩

@gailmary the coneflowers are beautiful. I had them when I lived in NY. Florida is difficult for some flowers 🌸 (sand for soil).

@irishlove i had a fracture in my l1 twice. I had khyphoplasty twice. It seemed one side fractured and then was repaired and then a year or so later the other side fractured. Two different surgeons.

I forced myself to swim today bc I do sleep better after some exercise and yesterday I didn’t swim. Looking forward to seeing my granddaughter and my 3 great grandchildren next week. They’re supposed to come to FL from GA. I haven’t had an update on where they’re staying but I’ll take the promise.

Take care all

Tanya

OK, while the person assessing me for health services that I might need and asking a bunch of health related questions was here, a person came to install a new door plate. Door is fully fixed and working. The person here asking questions asked if I was bothered with my health information getting out with him, I said I didn't mind. Does not matter if he knows I have cancer. The one service is a PT referral again and putting me on wait list for home services like grocery shopping etc. Would have to see how much the grocery shopping would be, could be cheaper to get Walmart delivery. Health worker also suggested rolling a garbage bag down the stairs instead of trying to carry it. Had not thought of that. Might see about that or just do lighter bags.

I think I've missed a bunch of posts. I see something I think I've already seen and it's dated July 7. Today is the 25th. Weird…

I love the creek photo. It looks so peaceful.

Saw my MO yesterday. TMs are continuing to climb. She went over the Guardant360 results with me. We don't have a lot of options, and some of those we do have some pretty nasty SEs. Others are good a particular mutation (ATM) but not with breast cancer.

I asked her about getting a second opinion at UCSD as they may have more clinical trials available. I didn't want to ask her, but she said, Carol, I care about YOU. I want what's best for you! I told her that I have no intention of leaving her as I've been very happy with the care I've received with her and with Scripps.

Got my Faslodex shots, kids are leaving today with our new granddaughter. It's been a wonderful visit. I think Mom is worn out. Baby is two months old, and this is their first. They're such good parents.

My house (mostly the floors) is/are a bit of a disaster with DH and DS going surfing every morning, tracking in just enough sand and grit to make the floors a mess. But it's all worth it.

Hope everyone has a great Thursday.

Carol