Best Of
Re: How long have you been Stage IV?
In one month, I hit year 13! I’ll quote The Grateful Dead, ‘What a long strange trip it’s been…”
exbrnxgrl
Re: How long have you been Stage IV?
Originally diagnosed 2A when I was 37. Diagnosed Stage IV at age 42. Mets to spine. I’ve been Stage IV for 8 years and counting.
Re: How long have you been Stage IV?
3 years, I have been working part-time and have mostly been fine except for the side effects from the treatment which are manageable.
The pain in my hip has become consistent in the last few months. The scans show everything is stable so not sure what is going on.
Re: My Husband, My Life, My Love, My Family, My Cancer
My oncologist just called. She conferred with other radiologists and they all think it is just a finer resolution of what has been there before. Different types of scans show things clearer and in different types of tissues, etc. It fits with our discussion of CT, vs, Pet, vs MRI vs bone scan. So she wants me to keep on with my current treatment and she will rescan in three months. I am good with this. I have had liver metastasis since my first scan eight years ago so I think this may be right. My cancer also seems to grow slowly and my markers are unchanged with no new symptoms. Different scans have showed different things in my liver in the past. Thank you for your prayers and letting me take you with me on this wild journey.
Re: Ibrance (Palbociclib)
@Greatly blessed thank you for your prayer. I've actually been feeling terribly depressed. And this coming hot on the heels of a good CT-SCAN report?? It's like Murphys Law is tailing everything i do. I even started asking myself if it's a curse 😢😢😢. Its a long story. That's why I appreciate your prayers.
Yes I do have different side effects from IBRANCE each month. Makes me wonder whether the medication and disease are battling for supremacy all over my body. Since December the infections have been regular and really bad, and then May was ok. Even managing to go for Zumba, which I stopped coz of my arthritic
knee. Normally the fatigue is overwhelming.
Cancer is completely unpredictable. Sometimes I feel like it has ears, and is keeping tabs on what we say. Silly me 🤣🤣🤭.
It's a relief to discuss with people who truly understand when you discuss side effects etc. Everyones experience here has taught me something valuable that I've applied to myself, especially @brutersmom with the alternative IBRANCE scheduling. That has been a lifesaver for me ❤❤. My Oncologist had to agree to it, albeit reluctantly. I realised they dont like ideas coming from patients coz as doctors, they believe they should be the initiators. But I've also realised these support group discussions expose us to more varied treatment options and management of side effects than even our Oncologists are exposed/aware of.
Sending prayers, love and hugs to all in this group from out here in Nairobi, Kenya 🙏❤ 🫂
Re: My Husband, My Life, My Love, My Family, My Cancer
Hi everyone, it’s been awhile, not sure how long but I just realized I haven’t logged in for some time, I somehow forgot.
Micmel, I love an occasional root beer but I have trouble with the bubbles too and often can’t finish it.
Several months ago I bought tickets to a music festival in California and it’s finally almost here. I’m driving to El Paso for treatment on Thursday, then flying out immediately after. The fest is on Saturday, then my bff and I are spending Sunday in our hometown of Huntington Beach with another friend from school. Looking forward to the fest, my favorite foods and a dip in the cold Pacific Ocean.
You all already know I can pack like a champ and this time is no exception, I even found room for a hat, crossbody purse, water bottle and travel cocktail kit in addition to the clothes, swimsuit and sandals in my backpack.
illimae
Re: My Husband, My Life, My Love, My Family, My Cancer
Sf-cakes sorry to read of your latest struggles. DH cooked bacon and eggs on the outdoor grill this morning and we ate our first meal on the new deck. I will pay for the rich food soon I'm sure, but we really enjoyed it. Sorry for those who are struggling with food issues...and no, I couldn't finish it…
The second pic is our viewfrom the deck.
Re: My Husband, My Life, My Love, My Family, My Cancer
Getting some serious scanxiety here, as Monday is my day. I just hate this part of it all and have no real way to handle it. I think it gets worse each time, because I feel like, as time goes by, the odds that I'll have a bad scan go up. I suppose there's an equal argument the other way, but my brain can't find it.